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From: friscoes on 26 Aug 2005 11:40
hi, my name is danielle di riscio, i'm 22 from nz & have linear morphea
scleroderma.
was wondering if anyone knows about the prevalence of this particular
type of scleroderma, and whether there are any groups in nz for people
with this. if not, i was thinking of starting one...

From: Barbara R on 26 Aug 2005 14:43
Hi Danielle,
While I am much, much older than you, I have linear morphea SD also. I was
diagnosed about eight years ago. The first two or three yrs. were the most
difficult mainly because I was not well informed. I found that the more
information I gathered the better I felt. While I realize this disease is
individualized in terms of no two persons have exactly the same symptoms, if
you would like to compare notes I would be happy to share my experiences
with you privately or here on the NG forum. Don't know of any groups for
just linear morphea have been formed, but there are several on Yahoo for SD
of all types.
Warm regards, Bobbie R.


> hi, my name is danielle di riscio, i'm 22 from nz & have linear morphea
> scleroderma.
> was wondering if anyone knows about the prevalence of this particular
> type of scleroderma, and whether there are any groups in nz for people
> with this. if not, i was thinking of starting one...
>


From: Amelia Yaussy on 30 Aug 2005 09:18
Prevalence of all morphea in the US is 2.7 per 100,000 population
according to this - http://tinyurl.com/7rkr9 That would be about 8000
people in the US. Seems low to me.

Contact the local Arthritis Association or Society to see if they know
of any groups. They might also help you form one.

Amie

friscoes(a)gmail.com wrote:

>hi, my name is danielle di riscio, i'm 22 from nz & have linear morphea
>scleroderma.
>was wondering if anyone knows about the prevalence of this particular
>type of scleroderma, and whether there are any groups in nz for people
>with this. if not, i was thinking of starting one...
>
>
>

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