From: BramGo on
Hi,

I have developed vitiligo at the age of 14. I am 22 years old now and
vitiligo took over most of my body. I am not a doctor and I do not
study in the medical field. But there hasn't passed a day in the last 6
years that I didn't think about vitiligo. I have visitted several
specialists but most of them gave me a rather amateuristic, money
hungry and arrogant impressions. Yet, I am dedicated to find a cure
with or without the aid of others.

I believe people with vitiligo should look deeper than just to the
vitiligo itself. Vitiligo is an inocent body-sign that should be
perceived as a warning that something is wrong with your immunity.
Therefore I believe that UVB and vitamine D therapies are agressive
cures that are avoiding the real problem. Personally I believe that
vitiligo should be stopped by fixing the immunity system.

There are some diseases that often come together with vitiligo of which
is known that they are often caused by a lack of vitamine B11 (also
known as B9) and B12. The body also needs vitamine B6 to be able to use
these vitamines.

About a month ago a 40 year old lady from the Netherlands told me she
was convinced she had cured her Vitiligo by taking vitamin B9
supplements during her pregnancy. At that time I didn't pay much
attention to it, but it does make sense in a way.

Does anybody know whether any research has been done with these
vitamins yet? Does anybody know a paper or report that talks about
this?

There are related deseases which are also based on these vitamins. The
best example is Pernicious anemia:
Symptoms may include weakness, an abnormally rapid heartbeat
(tachycardia), shortness of
breath, chest pains, an upset stomach including diarrhea,
difficulty walking, numbness and
tingling in the extemities, lack of color (pallor) in the lips,
gum, and tongue, and/or depression.
Pernicious anemia may cause inflammation of the tongue (glossitis).
It is also associated with
premature greying, blue eyes, blood group A and last but not least
VITILIGO. It is caused by a
vitamin B12 deficiency.

For those who would like to try it, such as myself:
Where to find these vitamins (ordered by importance):
B11: brussels sprouts,spinach , brocolli, brown bread, eggs, ... (green
vegetables in general)
B12: hamburgers, atlantic cod, quark, eggs, cheese, ...
B6: bananas, patatoes, brown bread, nuts, pork, ...

Besides that I always look at when buying products in the store...
today I noticed a "1 glass includes 40% of the encouraged daily dose of
vitamine B12" label on a chocodrink bottle.

PS: I don't know about vitamine B6, but getting an overdose of vitamin
B11 or B12 is nearly impossible. :) So, I wouldn't worry about that
;-).

Don't hesitate to post a comment.

From: benty on
It's good to talk to someone who is on my wave length. My son has
vitiligo. I did a some research and started giving him some B12
supplements but recently he took a B12/folic blood test and the Doctor
wants him to discontinue using the B12 saying that it is above acceptable
level. Can this be true, because I was told that our bodies dont store
these vitamins.

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From: BramGo on
On 25 jun, 02:37, "benty" <benty...(a)nospamyahoo.com> wrote:
> It's good to talk to someone who is on my wave length.  My son has
> vitiligo.  I did a some research and started giving him some B12
> supplements but recently he took a B12/folic blood test and the Doctor
> wants him to discontinue using the B12 saying that it is above acceptable
> level.  Can this be true, because I was told that our bodies dont store
> these vitamins.
>
> --
> Message posted usinghttp://www.talkaboutsupport.com/group/alt.support.skin-diseases.vitil...
> More information athttp://www.talkaboutsupport.com/faq.html

Dutch wikipedia page about B12 states that unwanted effects of
overdose of B12 do not exist or are currently unknown. That is
probably because the body is capable of regulating the intake of B12
it needs, it states.

However I googled a bit and found this:

Unwanted effects of B12 are:
Can cause low folate-related anemia, hyperthyroid,
numbness / tingling in right arm or face, hypokalemia,
anxieties, panic-anxiety attacks, heart palpitations,
insomnia, increased Vitamin B15 requirements,
optic nerve atrophy (in someone with Leber's disease),
some types of leukemia, liver and kidney diseases,
may worsen symptoms of mitral valve prolapse,
may increase / stimulate tumor / cancer cell division,

So maybe it's better to be prudent after all.