From: lepus29@gmail.com on
Does anyone else have breathlessness throughout the day with panic
attacks and GAD? I have days where I just cannot seem to catch my
breath. It is very disconcerting. I'm very agoraphobic right now and I
don't know if I should chalk this symptom up to anxiety or if I need to
be seen by a doctor. I don't know how I would make it to a doctor's
office right now. I was seen in the ER in February for a panic attack
and they took chest x-rays, did an EKG, etc. Everything was fine.

It feels like there is a tight band around my chest or that someone is
constricting it. I remember having a symptom like this one many years
ago and having a blood oxygen level taken and it was normal.

Anyone else?

I have another question. Has anyone ever been severely agoraphobic and
if so how did you break out of the pattern? I feel trapped. I am on
some meds but I cannot get to my doctor or therapist for more help.
They won't help me unless I come to them. I am trying to desensitize
myself and have made some strides. I manage to walk to the end of the
block now when it used to be that I could barely leave my bedroom. It
just seems like wherever I go I have a panic attack. I feel trapped and
am starting to get very depressed. I know I am in terrible physical
shape and have become deconditioned when I used to be an endurance
cyclist. I try to do larger things to desensitize myself (go to the
drugstrore, go for a drive) but have such awful panic attacks while
doing them that I just give up or become exhausted. I don't fully
understand how desensitization works. I have had panic attacks for 20
years, shouldn't I be desensitized to them by now? I'm at the worst I
have ever been with my experience with panic. At least I could get to
the doctor before. I just don't know what to do. I can't get to the
doctor and I couldn't even get myself admitted to a hospital!

Someone give me some hope, please.

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From: Monarchdancer on
On Tue, 18 Apr 2006 17:11:06 -0500, "lepus29(a)gmail.com" <lepus29(a)gmail.com>
wrote:

::Does anyone else have breathlessness throughout the day with panic
::attacks and GAD?

Hi,

Welcome to ASAPM! Shortness of breath is a common symptom of anxiety. It
sounds like your breathlessness is anxiety related but only a doctor can tell
you that for sure. It couldn`t hurt to have a thorough exam from your doctor.
You want to rule out physical disorders as being the cause of your symptoms.

::I have another question. Has anyone ever been severely agoraphobic and
::if so how did you break out of the pattern?

I`ve gone through a few periods of severe agoraphobia where I was pretty much
housebound. A few things helped........meds like paxil, cognitive behavioral
therapy and finding a local support group with people just like me.

:: I feel trapped. I am on
::some meds but I cannot get to my doctor or therapist for more help.
::They won't help me unless I come to them.

What meds are you on, how long, and what dose? What kind of therapy and for
how long? The more we know, the better we will be able to help you.

Is there anyone that would be willing to accompany you to the doctor? Some
options......find a doctor and therapist that is closer to your home, make
your appt the first of the day so you are in and out in a fairly short time. I
do that often with doctor appts and it helps a lot. If the waiting room is
hard for you, explain that to the receptionist/nurse/doctor and ask if they
could put you somewhere else to wait. Try to find a therapist that is willing
to make housecalls. A friend of mine who was severely agoraphobic found a
therapist that made house calls.

::I am trying to desensitize
::myself and have made some strides. I manage to walk to the end of the
::block now when it used to be that I could barely leave my bedroom. It
::just seems like wherever I go I have a panic attack. I feel trapped and
::am starting to get very depressed. I know I am in terrible physical
::shape and have become deconditioned when I used to be an endurance
::cyclist. I try to do larger things to desensitize myself (go to the
::drugstrore, go for a drive) but have such awful panic attacks while
::doing them that I just give up or become exhausted. I don't fully
::understand how desensitization works. I have had panic attacks for 20
::years, shouldn't I be desensitized to them by now?

Unless you are taught the proper way to desensitize yourself, you are probably
reinforcing your panic instead of desensitizing yourself to it. I strongly
recommend that you find a therapist that practices cognitive behavioral
therapy. CBT will teach you how to change and challenge your negative
thinking. It will also give you tools in which to manage and control your
panic and agoraphobia more effectively. Paxil helped me a lot......CBT helped
me even more to get out of my house and to start living again.

:: I'm at the worst I
::have ever been with my experience with panic. At least I could get to
::the doctor before. I just don't know what to do. I can't get to the
::doctor and I couldn't even get myself admitted to a hospital!

I hate saying this........but you have to push yourself and go to the doctor.
During my last severe setback, my husband had to drive me 40 minutes to my
therapy appts. It was hell.....but it was worth it.

::Someone give me some hope, please.

There are many people here that have been where you are right now. I`m one of
them. I`ve gone from being housebound to being able to a lot with very little
anxiety. I still have my battles but life is so much better now. Sometimes I
almost feel normal :) Never give up and never lose hope. It really can get
better.

Some information for you..........

Here are some informative links on cognitive behavioral therapy...
http://panicdisorder.about.com/cs/therapycbt/
http://www.cognitivetherapy.com/
http://panicdisorder.about.com/cs/therapycbt/a/cbtintro.htm

Here is a very informative site on anxiety and panic disorder.
http://panicdisorder.about.com/

On agoraphobia
http://panicdisorder.about.com/od/agoraphobia/
http://www.nlm.nih.gov/medlineplus/ency/article/000931.htm

Here you will find all sorts of self-help techniques like deep breathing and
muscle relaxation exercises that can help decrease your anxiety and panic.
http://panicdisorder.about.com/od/selfhelp/

You might want to check out the following books from your library:

"A Guide to Rational Living", by Albert Ellis, Ph.D
"Feeling Good, The New Mood Therapy", by David D. Burns, M.D.
"How to Control Your Anxiety, Before it Controls You", by Albert , Ph.D

I highly recommend this book! Chapters 7 and 8 deal with desensitization.
"The Anxiety & Phobia Workbook", by Edmund J., Ph.D. Bourne

I think you would benefit greatly by joining a local support group. Here is
information on how to find one.

http://www.adaa.org/Public/index.cfm

http://www.mentalhealth.samhsa.gov/databases/

~The NIMH Referral List can help you find a support group in your area. If there
are no groups near you, you may want to form your own. Some of the sources
listed can aid you in doing this. NIMH also has a Resource List that provides
some self-help information about panic disorder, including books, articles,
and
videotapes. (Call 1-800-64-PANIC)

~American Self-Help Group Clearinghouse
http://mentalhelp.net/selfhelp/ or www.selfhelpgroups.org
There they provide a keyword-searchable database of over 1,100 national
and online "self-help" support groups for most any specific illness,
disability, addiction, bereavement situation, parenting, caregiver
concern, abuse, or other stressful life situation; suggestions on
starting both community and online mutual help groups, research
studies; and a registry for those trying to start new national or
international support networks that don't yet exist in the world.

~They also have a listing of local non-profit self-help group
clearinghouses worldwide at the same site, which can provide
information on local anxiety support groups:
http://www.mentalhelp.net/selfhelp/selfhelp.php?id=859

Some more links for misc information.........

http://groups.google.com/group/alt.support.anxiety-panic.moderated/browse_frm/thread/35761d947db03a74/976253b8fef0c6b7?hl=en#976253b8fef0c6b7

http://groups.google.com/group/alt.support.anxiety-panic.moderated/browse_frm/thread/8691e85a0fd7aadf/ff158516ea900db1?hl=en#ff158516ea900db1

http://groups.google.com/group/alt.support.anxiety-panic.moderated/browse_frm/thread/f6f796e8ae59860c/ca0bf88baa205102?hl=en#ca0bf88baa205102


Please don`t hesitate to use this group for support and advice. We will do our
very best to help you through this rough time.

Jackie
~*~I`m an angel! Honest :) The horns are just there to keep my halo up
straight~*~

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From: lepus29@gmail.com on
Wow! That's a lot of information! Thank you!

I'll answer your questions first.

::What meds are you on, how long, and what dose? What kind of therapy
and for
how long?::

I am on Klonopin 1mg 3 times a day. I've been on this dose for 9
months. Previously I was on 1mg twice a day. Then my panic increased
and my psychiatrist increased my dosage. I've been on almost every
medication except the MAOIs. I don't react well to SSRIs or SNRIs. I
had the best luck with Tofranil.

This recent surge of anxiety was brought on by a specific incident I
believe. I woke up one night last October with my heart racing very
quickly, feeling out of breath and paralyzed. I called 911. At the
hospital they said I had hypothyroidism and had also experienced a
panic attack. They gave me some medicine and told me to see my doctor
which I did. Then two weeks later I went to my parent's vacation home.
I woke up with my heart racing again. I went to the ER again. My heart
rate was in the 140s-160s. Again, they said it was anxiety. Ever since
these incidents I have been petrified of my heart racing or having
another attack. I can't exercise or do anything really that increases
my heart rate. My heart just seems to take off a lot more easily now
but everyone says it just anxiety. But I've had anxiety since I was
quite young and I don't remember my heart ever beating this rapidly.

I've been in a downward spiral since October. My world has become
smaller and smaller and my actions more and more restricted. I just
have a lot of trouble believing there is nothing wrong with me other
than anxiety. I'm just so tired physically and mentally.

For therapy I've done CBT and DBT (Dialectical Behavioral Therapy).
It's been on and off for over 20 years. No one has been able to get
through to me. With my therapy right now I am afraid I am a bit stuck.
I am getting services through the county. I could maybe get a private
therapist and psychiatrist but to be honest there are not very many
good ones in this area. I seem to have exhausted my resources in that
department.

I do have someone who will accompany me to appointments but frankly it
never helps alleviate any of the anxiety. I don't have a "safe person"
so to speak. It's my understanding that most people with anxiety have
someone with whom they feel safer out in public. I do not have anyone
with whom I feel safe.

Right now my therapist won't come to the house because she thinks I
have to get there on my own to overcome this. I think I need more
skills. We are at an impasse. I really don't know who else there is to
go to for therapy around here. Honestly, there aren't many therapists
here. My therapist is a CBT and DBT therapist. I am not sure how good
she is with panic disorders though. Frankly, I have never found one who
is that great with panic disorders.

My psychiatrist is affiliated with my therapist and they both agree
that they will not see me or prescribe anything until I get there.
Problem is their office is 30 minutes away, downtown, tons of people
around, etc...basically the building has every trigger I have so going
there is like walking into the bowels of Hell for me. They just don't
seem to understand how bad I feel. They just aren't willing to meet me
halfway on anything! I don't feel like I have the tools to get there
either.

I have tried to explain my situation to my regular doctor and I get
nowhere. They don't understand. They just say to get there and will
make no concessions.

I do meditate. I just never can seem to do it when I start to panic. I
think I am going to have to learn to desensitize myself alone. I have
some of the books you've discussed. Time to really start studying them
I guess. I just feel trapped because I have tried to get myself help
even to the point of trying to get myself admitted to the hospital and
I couldn't even get them to do that! Then I don't feel like I am really
being given the tools to be able to make these efforts to get to the
doctor's office. I think I am just being told to do it and deal with
it. I just don't know what to do. I'm quite sure I've exhausted my
options here in terms of therapists and psychiatrists due to insurance
reasons, etc.

This is the worst it has ever been and I am scared to death.

Thank you for all the resources. I will check them out. Hopefully
something will be able to help me. I know I have to do it but I wish I
had some better tools. When I start panicking I really don't know what
to do even after all these years! It's ridiculous. I thought this
newest therapist was going to take me places and talk me through panic
attacks but it hasn't happened and now that I am at my worst where is
she? But I don't know who else to turn to...

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From: JimD on
lepus29(a)gmail.com wrote:
> Wow! That's a lot of information! Thank you!

<snip>

> I am on Klonopin 1mg 3 times a day. I've been on this dose for 9
> months. Previously I was on 1mg twice a day. Then my panic increased
> and my psychiatrist increased my dosage. I've been on almost every
> medication except the MAOIs. I don't react well to SSRIs or SNRIs. I
> had the best luck with Tofranil.

Have you asked if you can increase the klonopin? Maybe try xanax which
is faster acting? Are you still taking the tofranil?

> This recent surge of anxiety was brought on by a specific incident I
> believe. I woke up one night last October with my heart racing very
> quickly, feeling out of breath and paralyzed. I called 911. At the
> hospital they said I had hypothyroidism and had also experienced a
> panic attack. They gave me some medicine and told me to see my doctor
> which I did. Then two weeks later I went to my parent's vacation home.
> I woke up with my heart racing again. I went to the ER again. My heart
> rate was in the 140s-160s. Again, they said it was anxiety. Ever since
> these incidents I have been petrified of my heart racing or having
> another attack. I can't exercise or do anything really that increases
> my heart rate. My heart just seems to take off a lot more easily now
> but everyone says it just anxiety. But I've had anxiety since I was
> quite young and I don't remember my heart ever beating this rapidly.

Have you asked your doctor about a beta blocker? A beta blocker like
atenolol will stop that rapid heart beat in its tracks. I used to have
high blood pressure and atenolol brought it right down, no rapid
beating.

> I've been in a downward spiral since October. My world has become
> smaller and smaller and my actions more and more restricted. I just
> have a lot of trouble believing there is nothing wrong with me other
> than anxiety. I'm just so tired physically and mentally.

I can relate. I was doing pretty well for about 3 years and then this
past December had a relapse of symptoms. I have been fighting to get
better since then, though I am still dealing with anxiety, panic,
depression and some obsessive thoughts that cause anxiety.

> I do have someone who will accompany me to appointments but frankly it
> never helps alleviate any of the anxiety. I don't have a "safe person"
> so to speak. It's my understanding that most people with anxiety have
> someone with whom they feel safer out in public. I do not have anyone
> with whom I feel safe.

Neither do I. I want to be alone when I have panic since having anyone
around makes me more panicky.

> My psychiatrist is affiliated with my therapist and they both agree
> that they will not see me or prescribe anything until I get there.
> Problem is their office is 30 minutes away, downtown, tons of people
> around, etc...basically the building has every trigger I have so going
> there is like walking into the bowels of Hell for me. They just don't
> seem to understand how bad I feel. They just aren't willing to meet me
> halfway on anything! I don't feel like I have the tools to get there
> either.

Are there any small practices near where you live? I found my pdoc
right down the road because I didn't want to have to drive 45mins into
Orlando to see a pdoc. The only negative to this is that he doesn't
accept my insurance so I pay out of pocket and have to submit bills to
get reimbursed.

> This is the worst it has ever been and I am scared to death.

I can totally understand. Come to the group often and let out your
worries, anger, etc. It helps to just let it out : )

> Thank you for all the resources.

Jackie is great with all those resources.

> ... I am at my worst where is she?

Again, I can relate. My primary care doctor basically told me she
didn't want to "deal" with me when everything came crashing down this
past December. I have not been back to see here since and never will.

My prayers and best wishes to you,

Jim

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From: margrove2 on
On Tue, 18 Apr 2006 17:11:06 -0500, "lepus29(a)gmail.com"
<lepus29(a)gmail.com> wrote:

>Does anyone else have breathlessness throughout the day with panic
>attacks and GAD? I have days where I just cannot seem to catch my
>breath. It is very disconcerting. I'm very agoraphobic right now and I
>don't know if I should chalk this symptom up to anxiety or if I need to
>be seen by a doctor. I don't know how I would make it to a doctor's
>office right now. I was seen in the ER in February for a panic attack
>and they took chest x-rays, did an EKG, etc. Everything was fine.
>
>It feels like there is a tight band around my chest or that someone is
>constricting it. I remember having a symptom like this one many years
>ago and having a blood oxygen level taken and it was normal.
>
>Anyone else?
>
>I have another question. Has anyone ever been severely agoraphobic and
>if so how did you break out of the pattern? I feel trapped. I am on
>some meds but I cannot get to my doctor or therapist for more help.
>They won't help me unless I come to them. I am trying to desensitize
>myself and have made some strides. I manage to walk to the end of the
>block now when it used to be that I could barely leave my bedroom. It
>just seems like wherever I go I have a panic attack. I feel trapped and
>am starting to get very depressed. I know I am in terrible physical
>shape and have become deconditioned when I used to be an endurance
>cyclist. I try to do larger things to desensitize myself (go to the
>drugstrore, go for a drive) but have such awful panic attacks while
>doing them that I just give up or become exhausted. I don't fully
>understand how desensitization works. I have had panic attacks for 20
>years, shouldn't I be desensitized to them by now? I'm at the worst I
>have ever been with my experience with panic. At least I could get to
>the doctor before. I just don't know what to do. I can't get to the
>doctor and I couldn't even get myself admitted to a hospital!
>
>Someone give me some hope, please.



your doctor is commiting "abandonment" it is a litiginous event-you
can sue them for it. If you cannot get to their practice it is clearly
evident that you need to try meds until you find one that helps get
you there and then with therapy like you thought your therapist was
going to do-called in vivo or experiential stuff, you can get better.
If imipramine helped why are you not on it-if it helped desipramine or
other tca meds may help as well-beta blockers can reduce heart rate
and an adequate level of a benzo can offset panic attacks and lower
levels of generalized anxiety-cbt takes alot of work and lots of time
and a good doc who knows how to use it-most don't. Bottom line--it is
time to find another set of doctors, but you can still get these ones
to script some meds for you and see if that helps enough to get you to
another doc or find one that can come to you if needed-some still do
this-you need to find them though

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