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From: Shelagh on 10 Sep 2008 14:25
How old is this GD Janers?
I got SLE when I was a child, of course no dx atpit, but with my history
they traced it back to 12 and my symptoms began with joints and nephritis
and fatigue the first few years;
and 7 out of 11 symptoms were registered and recorded <including Rh factor,
false positive syph., elevated sed rate and few others in labs and several
physicals like BP up, joints inflamed, renal etc.>
for future monitoring, discovered at the mayo clinic in Rochester Minn.
where I was referred and accepted at age 17 due to my internists and
urologists and all here in BC, Canada, just not knowing where to go next
with me....
However, my dx was not made until age 28 **after many catastrophes** due
to docs unfamiliar with the whole scheme of lupus.... finally a rheumy saw
my history all together and said 'eureka' ... classic lupus, systemic......
and I've been treated 'properly' since...now almost 30 years ago! OMG! and
my prognosis was 10 to 15.... not likely lol.... these days they don't even
'go there' and TG!

Anyhow to your question:
AHA from what I have been reading is pointing to the anticardiolipin
antibody -- RE:
Quote: Some lupus patients with very high IgM anticardiolipin antibody have
a problem called Autoimmune Hemolytic Anemia, in which their immune system
attacks their red blood cells.
How that impacts vision I really don't know... though I read blurred vision
or loss of visual acuity can be a symptom along with headaches; maybe you
can search it out?
http://www.wrongdiagnosis.com/a/autoimmune_hemolytic_anemia/causes.htm
http://en.wikipedia.org/wiki/Autoimmune_hemolytic_anemia

Good luck and pray she is all clear on SLE and any anemias out there!
hugs,
Shelagh

"janers" <rojakort(a)bright.net> wrote in message
news:i-ednXCSuYRlSFrVnZ2dnUVZ_tTinZ2d(a)bright.net...
> Hi gang, knock your head together.
> An opthamologist is checking into my GD eye problems. NOW he seems to
> think she may have lupus due
> to her changes in visual acuity so fast. Did a CT scan and it was normal.
> NOW he wants the family
> doc to do the test for lupus. I of course stepped in and gave him a
> thorough list of them. Which I
> am sure my Daughter will hand to him LOL
>
> But the specialist wants to run a AHA or something like that. I know first
> I thought ANA but she
> said again AHA. Is that anti histone antibody?
> Anyone got ideas. I also thought antibody for anemia.
> GD is tired a lot, just no energy, hurts all over, complains of joint pain
> but no rashes or zip. She
> will also get thyroid checked.
> anyone on this AHA business
> thanks much
> just me janers
>
> --
> Life is not about waiting for the storms to pass...it�s about learning how
> to dance in the rain.
>
> Unknown
>
>




From: janers on 10 Sep 2008 17:48
Thanks Shelagh.

I too was sick for a number of years and finally when 53 was diagnosed at Cleveland clinic

GD is 17 will be 18 next April. she has complained for years of joint pain and they attributed it to
"GROWING PAINS" sound familiar? the fatigue hit about 2 years ago and she sleeps because of
exhaustion. That made her ouchy and then peer pressure due to her being so "smart". the teens make
it hard on any one who is "geek now a days" :)
but she got through it and was depressed a lot. Having lots of headaches, vison changes, lights
bothered her etc. But never rashes or anything like that.
NEVER been tested for blood in urine or any kidney stuff. DID do GI work up due to nausea, and gut
pain, found nothing. I wonder sometimes about these doctors looking into things.
I know from experience as YOU all do, that this disease is very frustrating to say the least. YOU
go from one doc to another then no one believes you feel like SH.., excuse that but it is true.

I sent MY daughter all the lab tests CC ran on me and IGG profiles are in that plus elecrophoresis
of the urine, Complement levels etccc. so I just hope they do them all.

She is pale, tired and just worn out. She is depressed now but working with a service dog to help
her cope. HE has been good for her but that is not the main problem I think nor does her mom who is
a counselor. SO good thing an opthamologist thought of this, and he worked at Cleveland clinic
quite a few years, so he knows what he is doing.

I will keep you informed and thanks all for your help
janers


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