another newbie - help?
in [Kidney Diseases]
|
Prev: Newbie Question
Next: Bleeding
From: Candi Bowen on 19 Jul 2007 10:49 Hi, I have lupus & anti-phospholipid syndrome (lupus anti-coagulant). Last week my doc found a 'significant' amount of albumin on a spot test & I had a biopsy yesterday. The results aren't in yet, but the ultrasound showed an infarction, looked to be about the size of a half dollar on the monitor. Four years ago I had extreme right kidney pain & a CT scan showed that my right ureter was swollen shut - no one could explain it, but it went away after Prednisone & meds. Now I'm wondering if it was a blood clot & caused the infarction. I wondered if anyone has had a similar experience & how bad it is. I'm very familiar with other aspects of lupus, but I've always skimmed over the kidney involvement because, well, I've never had involvement, until now. I guess I naively figured that at 50 if it hadn't happened yet, I had been spared that particular problem. Thanks in advance. Candi
From: B C on 26 Jul 2007 23:47 Hi I was diagnosed with lupus nephritis. I always have a high albumin count and an out of range "bun" on my lab work. My nephrologist told me he did not want to see me anymore and just to go on and live my life. I am 64 and so far I feel ok. i am always worried about it but I just go to a gp doctor who is overworked and under interested in me. Im glad I found this group because nobody wants to talk about kidney disease, its a taboo subject.
From: Candi Bowen on 27 Jul 2007 07:27 I don't think it's nephritis - I had a biopsy 8 days ago that showed an infarction (dead tissue) about the size of a half dollar, if the ultrasound monitor is true to size. Usually from a blood clot in the renal vein & usually from the anti-phospholipid syndrome. I'm still waiting for the lab results. BC do you frequent any of the lupus sites? alt.support.lupus or http://www.thelupussite.com are good. Candi "B C" <berbob711(a)webtv.net> wrote in message news:12862-46A96AD4-1494(a)storefull-3117.bay.webtv.net... > Hi I was diagnosed with lupus nephritis. I always have a high albumin > count and an out of range "bun" on my lab work. My nephrologist told me > he did not want to see me anymore and just to go on and live my life. I > am 64 and so far I feel ok. i am always worried about it but I just go > to a gp doctor who is overworked and under interested in me. Im glad I > found this group because nobody wants to talk about kidney disease, its > a taboo subject. >
From: mainframetech on 17 Aug 2007 17:09 On Jul 26, 11:47 pm, berbob...(a)webtv.net (B C) wrote: > Hi I was diagnosed with lupus nephritis. I always have a high albumin > count and an out of range "bun" on my lab work. My nephrologist told me > he did not want to see me anymore and just to go on and live my life. I > am 64 and so far I feel ok. i am always worried about it but I just go > to a gp doctor who is overworked and under interested in me. Im glad I > found this group because nobody wants to talk about kidney disease, its > a taboo subject. B C, I found that many doctors, including some nephrologists, would rather just do nothing and watch your progress to dialysis. I saw a professor at a N.Y. hospital that taught other doctors in nephrology. His only comment to me after 2 months was "come back in 3 months". All this time my labs were going into the dumpster. A nurse told me that many doctors that put a patient into dialysis get a monthly payment from Medicare or some insurance companies, even if they never see the patient again. They collect while the patients have to sit for hours 3 times a week hoping they don't get an infection or some other related problem. A number of sites show statistics that say that 25% of new dialysis patients die within 2 years. Some folks disagree with that, because the dates of the data are from 200 to 2003. I tend to think that still carries some weight. In any event, I'm glad I found the Walser book, as iit has slowed my progress to dialysis. Good luck, Chris
From: Alan on 17 Aug 2007 21:29
Well if your nurse(s) told you that, it MUST be true, dahhhhhhhhhhh mainframetech wrote: > On Jul 26, 11:47 pm, berbob...(a)webtv.net (B C) wrote: >> Hi I was diagnosed with lupus nephritis. I always have a high albumin >> count and an out of range "bun" on my lab work. My nephrologist told me >> he did not want to see me anymore and just to go on and live my life. I >> am 64 and so far I feel ok. i am always worried about it but I just go >> to a gp doctor who is overworked and under interested in me. Im glad I >> found this group because nobody wants to talk about kidney disease, its >> a taboo subject. > > B C, > I found that many doctors, including some nephrologists, would > rather just do nothing and watch your progress to dialysis. I saw a > professor at a N.Y. hospital that taught other doctors in nephrology. > His only comment to me after 2 months was "come back in 3 months". > All this time my labs were going into the dumpster. A nurse told me > that many doctors that put a patient into dialysis get a monthly > payment from Medicare or some insurance companies, even if they never > see the patient again. They collect while the patients have to sit > for hours 3 times a week hoping they don't get an infection or some > other related problem. A number of sites show statistics that say > that 25% of new dialysis patients die within 2 years. Some folks > disagree with that, because the dates of the data are from 200 to > 2003. I tend to think that still carries some weight. In any event, > I'm glad I found the Walser book, as iit has slowed my progress to > dialysis. > > Good luck, > Chris > |