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From: amanita on 6 Apr 2008 16:05
Alice, I'm so sorry you are still feeling so dreadful. Maybe your
upcoming test resuts will shed some light on things.
I know how bad you feel. Unfortunately recovery from thyroid problems
can take longer for some than for others. Please hang on in there.

Alice.theCamel wrote:
> I just don't understand why despite being told my thyroid is in the
> normal range on last test (0.43) and that all my antibody test are
> normal, so no graves, that i still feel dreadful.
>
> I was diagnosed with hyperthyroidism 3 months ago now, was on
> Propylthiouracil for 2 months, then it made me really ill, stopped it
> and now on carbimazil 10mg a day, due to be retested this week.
>
> Has anyone else found that despite being told everything is now
> 'normal' they still feel so bad. I am totally wiped out still,
> everything aches, find it hard to get breath, agitated, my heart still
> pounds,headaches, just awful. I feel like my body is on the verge of
> collapse, surely I should be better now the meds have fixed the
> thyroid problem???
>
> I am under so much pressure to get back to work ,and desperate to just
> have some scrap of a life again, not struggle just to get round the
> house and look after my daughter and myself.
>
> I think i might join a depression group aswell today, sorry to drone
> on just so fed up and getting desperate :o(
From: Rod on 7 Apr 2008 04:17
Alice.theCamel wrote:
> I just don't understand why despite being told my thyroid is in the
> normal range on last test (0.43) and that all my antibody test are
> normal, so no graves, that i still feel dreadful.
>
> I was diagnosed with hyperthyroidism 3 months ago now, was on
> Propylthiouracil for 2 months, then it made me really ill, stopped it
> and now on carbimazil 10mg a day, due to be retested this week.
>
> Has anyone else found that despite being told everything is now
> 'normal' they still feel so bad. I am totally wiped out still,
> everything aches, find it hard to get breath, agitated, my heart still
> pounds,headaches, just awful. I feel like my body is on the verge of
> collapse, surely I should be better now the meds have fixed the
> thyroid problem???
>
> I am under so much pressure to get back to work ,and desperate to just
> have some scrap of a life again, not struggle just to get round the
> house and look after my daughter and myself.
>
> I think i might join a depression group aswell today, sorry to drone
> on just so fed up and getting desperate :o(

When you have a headache and take a couple of tablets the dosage really
doesn't matter very much. Add or subtract 50% and you would probably
still get more or less the same relief.

Unfortunately, the amount of thyroid hormone is far more critical. Being
even a tiny bit over or under may be very noticeable. This applies
whether the thyroid hormone level is being controlled by a
nearly-working thyroid, by adding thyroid hormone in tablet form (e.g.
thyroxine) or by suppressing your internal production. Further, the
levels can be affected by food, how warm or cold the weather, exercise, etc.

Further, it can take a while for your body to re-adjust to any regime of
medication - likely a few weeks or maybe more. You have had several
significant changes in the past few months.

I really understand the effect thyroid disease can have on quality of
life (partner suffers - not me). I sympathise.

Do join any groups you like. But I suggest you are very cautious if
anyone (on a group or a your doctor) suggests anti-depressants. There
are lots of links between mind and thyroid (see the thyromind link in my
signature) and between anti-depressants and thyroid hormones - and few
who understand them or factor them into treatment. Note - I said to be
cautious which does not necessarily mean saying a flat no. That you will
have to decide.

Have you had other tests such as for Free T4? If so, do post them as
well - includng reference ranges.

All the best. Keep posting.

--
Rod

Hypothyroidism is a seriously debilitating condition with an insidious
onset.
Although common it frequently goes undiagnosed.
<www.thyromind.info> <www.thyroiduk.org> <www.altsupportthyroid.org>
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