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From: Otis T. on 1 Oct 2008 09:54
I went and saw my liver doctor yesterday and I did not feel so well
when I left. He said that because of my morbid obesity he would not
treat me as he felt I could not tolerate the treatment. Plus I have a
cyst in my pancreas and he wants that looked at again. I cannot really
read his handwriting, but what I have in my pancreas is called a
mucinous cystic neoplasm or something like that. When I had it
biospied at the University of Michigan Hospital in Ann Arbor a year
ago, they did not seem too concerned. Yet, my liver doctor wants it to
be looked at again.

He also says I have cirrhosis (as cyrotic liver as he called it). He
said that does not necessarily mean a death sentence and many people
go on to live normal lives, with it, for many years. Is that true?
Also, he said that blood tests reveal all liver functions are normal.
Of course, I am scared and concerned.

I do not drink alcohol. What other things can I do to please Mr. Liver
as far as what not to eat, drink, or stuff like that. Also, would milk
thistle be good to take?

Thanks in advance for your help.

Otis
From: Sara on 1 Oct 2008 11:30

"Otis T." <ferrante276-otist(a)yahoo.com> wrote in message
news:7mv6e4lkcjm02a3a72h8g6dikfkmdttvc2(a)4ax.com...
>I went and saw my liver doctor yesterday and I did not feel so well
> when I left. He said that because of my morbid obesity he would not
> treat me as he felt I could not tolerate the treatment. Plus I have a
> cyst in my pancreas and he wants that looked at again. I cannot really
> read his handwriting, but what I have in my pancreas is called a
> mucinous cystic neoplasm or something like that. When I had it
> biospied at the University of Michigan Hospital in Ann Arbor a year
> ago, they did not seem too concerned. Yet, my liver doctor wants it to
> be looked at again.
>
> He also says I have cirrhosis (as cyrotic liver as he called it). He
> said that does not necessarily mean a death sentence and many people
> go on to live normal lives, with it, for many years. Is that true?
> Also, he said that blood tests reveal all liver functions are normal.
> Of course, I am scared and concerned.
>
> I do not drink alcohol. What other things can I do to please Mr. Liver
> as far as what not to eat, drink, or stuff like that. Also, would milk
> thistle be good to take?
>
> Thanks in advance for your help.
>
> Otis

I think it's time to find a new doctor, Otis! Can I ask where you live that
you are going to U of M hospital? Are you near Detroit? I was treated
at Henry Ford Medical Center in downtown Detroit, and they have a great
staff of doctors there if that's a possibility for you.....
but I definitely would not continue to see a doctor with the attitude your
guy has :(

Others will advise you better than I can as far as the cirrhosis and other
things go. I do not understand how you can have cirrhosis though, and
have normal liver functions. In the meantime, is it possible to start
losing some weight? If you need a weight-loss buddy, let me know! I need
to lose some too, maybe we can motivate each other :)) feel free to email
me at bb at wowway dot com.

Sara

From: TX-012 on 1 Oct 2008 13:17
On Oct 1, 8:30 am, "Sara" <puff...(a)wowway.com> wrote:
> "Otis T." <ferrante276-ot...(a)yahoo.com> wrote in message
>
> news:7mv6e4lkcjm02a3a72h8g6dikfkmdttvc2(a)4ax.com...
>
>
>
> >I went and saw my liver doctor yesterday and I did not feel so well
> > when I left. He said that because of my morbid obesity he would not
> > treat me as he felt I could not tolerate the treatment. Plus I have a
> > cyst in my pancreas and he wants that looked at again. I cannot really
> > read his handwriting, but what I have in my pancreas is called a
> > mucinous cystic neoplasm or something like that. When I had it
> > biospied at the University of Michigan Hospital in Ann Arbor a year
> > ago, they did not seem too concerned. Yet, my liver doctor wants it to
> > be looked at again.
>
> > He also says I have cirrhosis (as cyrotic liver as he called it). He
> > said that does not necessarily mean a death sentence and many people
> > go on to live normal lives, with it, for many years. Is that true?
> > Also, he said that blood tests reveal all liver functions are normal.
> > Of course, I am scared and concerned.
>
> > I do not drink alcohol. What other things can I do to please Mr. Liver
> > as far as what not to eat, drink, or stuff like that. Also, would milk
> > thistle be good to take?
>
> > Thanks in advance for your help.
>
> > Otis
>
> I think it's time to find a new doctor, Otis!  

What she said.

Yes, it would be helpful if you lost weight---overweight people do
less well on treatment---but this is no reason to refuse to treat you,
esp. if your liver is in less than perfect shape as it is.

You want to find an _experienced_ hepatologist who has treated many
patients in all sorts of physical conditions; someone who will adjust
the treatment (longer duration, higher dosages, Infergen, etc.) to
help you reach an SVR if at all possible.

This may take a bit of work on your part. There are many wimpy,
skittish doctors out there who are chickenshits when it comes to
treating people with hep c.

There are also some real gems.

Find one of the gems.
From: dBo on 1 Oct 2008 16:17
Can't blame you for feeling anxious and concerned. I too was found to
have a pancreatic cyst during prelimanry testing prior to treatment.
It was referred to a probable "pseudocyst" and determined to not be
anything to be overly concerned about, tho they suggested follow up on
it.

I had another ultrasound that said it was no longer showing up, then a
second followup ultrasound, a year and a half post treatment, and that
time they said they could see it again, but that there was no change
from the original findings. Again, maybe not a big deal.

As previously stated, it does seem questionable that he would say you
have cirrhosis when you have normal liver function... something
doesn't sound right.

On the other hand, MY PCP assured me for 2-3 years that my "mildly
elevated" liver enzymes were nothing to be concerned about, just As We
Get Older, Fatty Liver sets in, I had gained some weight and blah
blah blah - and HE was wrong as well, turned out I had HEP C, but he
didnt' feel there was any reason to pursue further testing....so it
just goes to show another example where one doctor can be wrong, and
another opinion may be totally different.

I agree with the others suggesting you may want to consult another
doctor. Too bad you aren't a beer drinker.... I lost the first 20
pounds fairly quickly once I quit drinking after diagnosis! haha!

From: Thip on 1 Oct 2008 19:01

"Otis T." <ferrante276-otist(a)yahoo.com> wrote in message
news:7mv6e4lkcjm02a3a72h8g6dikfkmdttvc2(a)4ax.com...
>I went and saw my liver doctor yesterday and I did not feel so well
> when I left. He said that because of my morbid obesity he would not
> treat me as he felt I could not tolerate the treatment. Plus I have a
> cyst in my pancreas and he wants that looked at again. I cannot really
> read his handwriting, but what I have in my pancreas is called a
> mucinous cystic neoplasm or something like that. When I had it
> biospied at the University of Michigan Hospital in Ann Arbor a year
> ago, they did not seem too concerned. Yet, my liver doctor wants it to
> be looked at again.
>
> He also says I have cirrhosis (as cyrotic liver as he called it). He
> said that does not necessarily mean a death sentence and many people
> go on to live normal lives, with it, for many years. Is that true?
> Also, he said that blood tests reveal all liver functions are normal.
> Of course, I am scared and concerned.
>
> I do not drink alcohol. What other things can I do to please Mr. Liver
> as far as what not to eat, drink, or stuff like that. Also, would milk
> thistle be good to take?
>
> Thanks in advance for your help.
>
> Otis

1. Find another doctor
2. I've got cirrhosis with a vengeance and I ain't near ready to keel over
(and will go out kicking and screaming when the time does come). I go to
work every day, come home and play with my horse and my dogs and my
grandkids, and in general enjoy myself.
3. Lose weight. Your body's got enough stress to deal with. Eat
*sensibly*. Weight Watcher's is a good one to follow, but avoid iron.
Drink water water and more water.
4. Find another doctor.

Good luck. :-)


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