The suffering no one wants to know about
in [Fibromyalgia]
|
From: Katie on 5 Oct 2005 05:18 I go to doctors with my fibromyalgia and my weight problem and not a single one of them has any idea even where to start. I feel totally abandoned with this problem. I just cannot get along with any doctors or find one who has any good ideas about what I could do to feel better. They even tend to make me feel everything's my fault. So what if it is? Can't they help at all? Can't they do their jobs? If they can't do their jobs, can they be honest enough to admit it? Why don't they just say "I don't accept patients with fibromyalgia." ? None of them even seems to believe me when I say that I have been gaining weight for no good reason. (4 kilos a year since 1999) So I try another doctor and am once again disappointed and have wasted my time and energy (especially emotional energy). I get so angry about this I could scream. In fact I did scream in the shower this morning: "I HATE YOU GOD!" I'm sorry if that is offending, but that's how desperate I feel. I even got angry with my therapist/psychologist so now I am truly alone. I can't believe I went to him so long and all along he was just an incompetent guy who only wanted to show off all his knowledge. You know how guys are... they only want to talk about themselves. Anyway I'm rambling. I know I don't post here much so I don't deserve any support. Just to let you know I am with you in spirit. Another sufferer of this illness that nobody wants to hear about. Katie
From: Janey Pooh on 5 Oct 2005 08:53 Katie wrote: > I go to doctors with my fibromyalgia and my weight problem and not a single > one of them has any idea even where to start. I feel totally abandoned with > this problem. I just cannot get along with any doctors or find one who has > any good ideas about what I could do to feel better. They even tend to make > me feel everything's my fault. So what if it is? Can't they help at all? > Can't they do their jobs? If they can't do their jobs, can they be honest > enough to admit it? Why don't they just say "I don't accept patients with > fibromyalgia." ? > > None of them even seems to believe me when I say that I have been gaining > weight for no good reason. (4 kilos a year since 1999) So I try another > doctor and am once again disappointed and have wasted my time and energy > (especially emotional energy). > > I get so angry about this I could scream. In fact I did scream in the shower > this morning: "I HATE YOU GOD!" I'm sorry if that is offending, but that's > how desperate I feel. I even got angry with my therapist/psychologist so now > I am truly alone. I can't believe I went to him so long and all along he > was just an incompetent guy who only wanted to show off all his knowledge. > You know how guys are... they only want to talk about themselves. > > Anyway I'm rambling. I know I don't post here much so I don't deserve any > support. Just to let you know I am with you in spirit. Another sufferer of > this illness that nobody wants to hear about. > > Katie {{{{{{{Katie}}}}}}}} You're wrong about *one* thing - you DO deserve support. You deserve it here just as much as anyone else who posts here does. You deserve it from your doctors, your psychologist, your loved ones - EVERYONE involved with you in any way. Everyone deserves support if they need it. We all gotta hold each other up sometimes. I'm so sorry you're finding it hard to find a GOOD doctor. I wish I knew the answer to that one, but I don't. Too bad your therapist didn't work out. :o( That sucks. Just wanted to let you know I am there with you in spirit. Would another hug help? {{{{{{{{Katie}}}}}}}} Take GOOD Care, Janey
From: fran on 5 Oct 2005 11:20 Katie, you don't have to post here with any frequency to have our support, you just have to ask for it. I'm sorry your doctors aren't helping you, I think that's a common complaint here that the docs don't know what to do with our complaints and don't want to admit they have no idea how to manage our illness. Have you seen a rheumatologist? That might be one way to go. And interview a new counselor. Let them know what you are looking for and that you are "shopping" around for someone who will be compatable with your needs and your personality. They will appreciate your candor, and generally be up front with you about what they can and can not do. Come back more often--fran Katie wrote: > I go to doctors with my fibromyalgia and my weight problem and not a single > one of them has any idea even where to start. I feel totally abandoned with > this problem. I just cannot get along with any doctors or find one who has > any good ideas about what I could do to feel better. They even tend to make > me feel everything's my fault. So what if it is? Can't they help at all? > Can't they do their jobs? If they can't do their jobs, can they be honest > enough to admit it? Why don't they just say "I don't accept patients with > fibromyalgia." ? > > None of them even seems to believe me when I say that I have been gaining > weight for no good reason. (4 kilos a year since 1999) So I try another > doctor and am once again disappointed and have wasted my time and energy > (especially emotional energy). > > I get so angry about this I could scream. In fact I did scream in the shower > this morning: "I HATE YOU GOD!" I'm sorry if that is offending, but that's > how desperate I feel. I even got angry with my therapist/psychologist so now > I am truly alone. I can't believe I went to him so long and all along he > was just an incompetent guy who only wanted to show off all his knowledge. > You know how guys are... they only want to talk about themselves. > > Anyway I'm rambling. I know I don't post here much so I don't deserve any > support. Just to let you know I am with you in spirit. Another sufferer of > this illness that nobody wants to hear about. > > Katie
From: Katie on 5 Oct 2005 12:03 "Janey Pooh" <janepooh(a)la.shockware.com> a ?crit dans le message de news: 1128516816.718802.106270(a)g43g2000cwa.googlegroups.com... > > Katie wrote: >> I go to doctors with my fibromyalgia and my weight problem and not a >> single >> one of them has any idea even where to start. I feel totally abandoned >> with >> this problem. I just cannot get along with any doctors or find one who >> has >> any good ideas about what I could do to feel better. They even tend to >> make >> me feel everything's my fault. So what if it is? Can't they help at all? >> Can't they do their jobs? If they can't do their jobs, can they be honest >> enough to admit it? Why don't they just say "I don't accept patients with >> fibromyalgia." ? >> >> None of them even seems to believe me when I say that I have been gaining >> weight for no good reason. (4 kilos a year since 1999) So I try another >> doctor and am once again disappointed and have wasted my time and energy >> (especially emotional energy). >> >> I get so angry about this I could scream. In fact I did scream in the >> shower >> this morning: "I HATE YOU GOD!" I'm sorry if that is offending, but >> that's >> how desperate I feel. I even got angry with my therapist/psychologist so >> now >> I am truly alone. I can't believe I went to him so long and all along he >> was just an incompetent guy who only wanted to show off all his >> knowledge. >> You know how guys are... they only want to talk about themselves. >> >> Anyway I'm rambling. I know I don't post here much so I don't deserve any >> support. Just to let you know I am with you in spirit. Another sufferer >> of >> this illness that nobody wants to hear about. >> >> Katie > > {{{{{{{Katie}}}}}}}} > > You're wrong about *one* thing - you DO deserve support. You deserve > it here just as much as anyone else who posts here does. You deserve > it from your doctors, your psychologist, your loved ones - EVERYONE > involved with you in any way. > > Everyone deserves support if they need it. We all gotta hold each > other up sometimes. I'm so sorry you're finding it hard to find a GOOD > doctor. I wish I knew the answer to that one, but I don't. Too bad > your therapist didn't work out. :o( That sucks. > > Just wanted to let you know I am there with you in spirit. Would > another hug help? {{{{{{{{Katie}}}}}}}} > > Take GOOD Care, > > Janey Thanks so much. You have brought tears to my eyes with your hugs. I know your situation is worse than mine, but I really lose it sometimes... thanks again. Katie >
From: Katie on 5 Oct 2005 12:07
"fran" <fmc116(a)yahoo.com> a ?crit dans le message de news: 1128525622.343438.177910(a)z14g2000cwz.googlegroups.com... > Katie, you don't have to post here with any frequency to have our > support, you just have to ask for it. I'm sorry your doctors aren't > helping you, I think that's a common complaint here that the docs don't > know what to do with our complaints and don't want to admit they have > no idea how to manage our illness. Have you seen a rheumatologist? > That might be one way to go. And interview a new counselor. Let them > know what you are looking for and that you are "shopping" around for > someone who will be compatable with your needs and your personality. > They will appreciate your candor, and generally be up front with you > about what they can and can not do. Come back more often--fran Thanks fran. Yes I've seen a couple rheumatologists. I suppose one of these days I'll get up the energy to search again. I listen to other people and sometimes when they mention a good doctor I try him/her. Katie > Katie wrote: >> I go to doctors with my fibromyalgia and my weight problem and not a >> single >> one of them has any idea even where to start. I feel totally abandoned >> with >> this problem. I just cannot get along with any doctors or find one who >> has >> any good ideas about what I could do to feel better. They even tend to >> make >> me feel everything's my fault. So what if it is? Can't they help at all? >> Can't they do their jobs? If they can't do their jobs, can they be honest >> enough to admit it? Why don't they just say "I don't accept patients with >> fibromyalgia." ? >> >> None of them even seems to believe me when I say that I have been gaining >> weight for no good reason. (4 kilos a year since 1999) So I try another >> doctor and am once again disappointed and have wasted my time and energy >> (especially emotional energy). >> >> I get so angry about this I could scream. In fact I did scream in the >> shower >> this morning: "I HATE YOU GOD!" I'm sorry if that is offending, but >> that's >> how desperate I feel. I even got angry with my therapist/psychologist so >> now >> I am truly alone. I can't believe I went to him so long and all along he >> was just an incompetent guy who only wanted to show off all his >> knowledge. >> You know how guys are... they only want to talk about themselves. >> >> Anyway I'm rambling. I know I don't post here much so I don't deserve any >> support. Just to let you know I am with you in spirit. Another sufferer >> of >> this illness that nobody wants to hear about. >> >> Katie > |