The suffering no one wants to know about
in [Fibromyalgia]
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From: Katie on 6 Oct 2005 07:33 "Mercy" <olsonsej(a)charter.net> a ?crit dans le message de news: isU0f.1859$Uk7.250(a)fe05.lga... > I know this sounds like a trite question; especially looking back at what > everybody else has said but.... are you on any antidepressant? Having > clinical depression myself, I immediately identified with your thought > patterns when I am in a serious depressive episode. If I do not take > adequate depression medication, EVERYTHING looks grim to me and I feel > hopeless. It is because of a chemical imbalance. Can you talk to your > dr. about this? I have found from past experience, that drs. and even > counselors do not recognize the need for an antidepressant. I even got my > mom to start taking them. It has helped her considerably. She is more > upbeat and able to cope with her serious health issues better. I don't > think that drugs are the answer for everything but sometimes they can > help. I wouldn't even think of going off my antidepressants or I would > start spiraling downward to the point where everything look really grim to > me. Can you please consider this? Hi Nettie, I totally respect your choice, but personally, antidepressants are against my religion. Not any organized religion but my own personal religion states that *all* psychotropic meds are out. It's a long story, based on psychiatric abuse I got when I was a teenager and then my long addiction to tranquilizers.. I know I'm probably chronically depressed. In fact I had one doctor tell me that it was no use taking antidepressants because my depression is chronic and long term antidepressants are not a good idea. Remember I am in Europe where doctors are slightly different. There is a current wave of disillusionment with mainstream medicine here. Anyway, concerning depression: I have learned to live with it better than I have learned to live with fibromyalgia and overweight, that's for sure. My rheumatologist doesn't believe antidepressants help with fibromyalgia, but since I don't want them anyway, that's not one of the problems I have with him. I think you are right to be proactive with your doctors. Not all of them like it, but they do eventually get used to it I suppose. thanks so much for your support Katie > > And, this is the right place for you to be for support Katie. We don't > count posts here and if you need/want to speak out, complain, whine... > whatever, this is the place to do so. Take care and I truly hope you can > find the help you so much want and need. I prefer women drs. and > counselors too because they can at least identify a little better with > what may be going on with you. But, it doesn't necessarily guarantee they > are any more competent. I guess I have been fortunate enough to find the > right drs. for me. I am also very up front with my drs. and tell them > when I don't think some type of med or treatment is working as it should > and I want to try another. My drs. seem to like that I am pro-active in > my own health care. It takes time to build a rapport with your drs. But, > first and foremost, I think your depression needs to be managed better. > Depression is very often a part of fibro .... many of us are taking > antidepressants. Best of luck Katie. > > Nettie > > "Katie" <vfolle(a)yahoo.fr> wrote in message > news:43439a23$0$1163$5402220f(a)news.sunrise.ch... > >I go to doctors with my fibromyalgia and my weight problem and not a > single > > one of them has any idea even where to start. I feel totally abandoned > with > > this problem. I just cannot get along with any doctors or find one who > has > > any good ideas about what I could do to feel better. They even tend to > make > > me feel everything's my fault. So what if it is? Can't they help at > all? > > Can't they do their jobs? If they can't do their jobs, can they be > honest > > enough to admit it? Why don't they just say "I don't accept patients > with > > fibromyalgia." ? > > > > None of them even seems to believe me when I say that I have been > gaining > > weight for no good reason. (4 kilos a year since 1999) So I try another > > doctor and am once again disappointed and have wasted my time and > energy > > (especially emotional energy). > > > > I get so angry about this I could scream. In fact I did scream in the > shower > > this morning: "I HATE YOU GOD!" I'm sorry if that is offending, but > that's > > how desperate I feel. I even got angry with my therapist/psychologist > so now > > I am truly alone. I can't believe I went to him so long and all along > he > > was just an incompetent guy who only wanted to show off all his > knowledge. > > You know how guys are... they only want to talk about themselves. > > > > Anyway I'm rambling. I know I don't post here much so I don't deserve > any > > support. Just to let you know I am with you in spirit. Another sufferer > of > > this illness that nobody wants to hear about. > > > > Katie > > > > > >
From: Katie on 6 Oct 2005 07:35 "Alex" <abarna(a)mn.rr.com> a ?crit dans le message de news: 3aV0f.91524$32.14188(a)tornado.rdc-kc.rr.com... > Hi Kate, > > I guess some the doctors over in Europe are as stupid as some of them > here in the States. yes! Definitely! > > A steady weight gain can be caused by a unregulated thyroid or type 2 > diabetes & either problem can cause the same symptoms as Fibromyalgia. I did ask for thryroid tests a couple times and nothing was found. As I understand it though, in the US they are more thorough in this. Diabetes I didn't ask about though and I will remember to. Thanks ! Katie > > I would suggest you go back to your doctor & demand a complete thyroid > panel & at least a 4 hour glucose tolerance test. > > I found out years ago we can't expect the medical community to fix us, > unless we advocate for ourself. > > Katie wrote: > > <snipped> > > Sending Good Thoughts, > {{{{Katie}}}} > > GramPaHugs, > Alex, > > -- > > Any information is included for informational > or entertainment purposes only, is based on my > personal experiences & is an expression of my opinion. > > **************************************************** > * Love radiating from 45.10n x 93.30w M/SP Mn > * http://home.mn.rr.com/apbiii > * http://grampahugs.is-a-geek.org/ > * http://grampahugs.ath.cx/grampahugs/ > * http://www.goldenmist.org > ****************************************************
From: dingalingdeb on 9 Oct 2005 22:22
You said it all, Janey. That's exactly how I feel. dingaling deb If you're a cowboy and you're dragging a guy behind your horse, I bet it would really make you mad if you looked back and the guy was reading a magazine. Jack Handey "Janey Pooh" <janepooh(a)la.shockware.com> wrote in message news:1128531064.780832.203390(a)g14g2000cwa.googlegroups.com... Katie wrote: > "Janey Pooh" <janepooh(a)la.shockware.com> a ?crit dans le message de news: > 1128516816.718802.106270(a)g43g2000cwa.googlegroups.com... > > Thanks so much. You have brought tears to my eyes with your hugs. I know > your situation is worse than mine, but I really lose it sometimes... > thanks > again. > > Katie Ah, sweet Katie. I need to say something to you and to everybody else who thinks this way about *my* situation . . . Your situation is every bit as important, serious and *worthy* of support as mine - to you. I see this kind of comment a lot and while I understand where it's coming from and appreciate the thought, I also think it's really important not to hold me up as a 'guideline' for how much support, understanding and {{HUGS}} one is entitled to. I come to this newsgroup because I have fibromyalgia but, in fact, I feel like I'm MUCH better off where *that* is concerned than many (make that MOST) other people who post here. I've been talking about my aneurysm, epilepsy and such cuz that's what happened to me and it's an unavoidable part of my life now - but I'm posting to a Fibro group and don't expect or deserve any more support than anyone else here. Plus, one can ALWAYS find someone else who is *worse off* than them, but that doesn't mean they don't deserve support. For instance, there are MANY MANY people in Louisiana who are worse off than me right now. They deserve support. But that doesn't mean I deserve LESS support from the people *I* interact with. There are TONS of people in poor countries all over the world whose suffering is far greater than any of ours - but that does not mean WE should not expect and receive support. I implore every single person reading this right now to Put Themselves First. Doesn't mean I don't want you to reply to MY posts and give me support when I ask for it (or obviously NEED it but don't seem to be asking ;o) What it means is - Don't judge your own situation by comparing it to anyone else's. Judge your own situation based on your own feelings about YOU. If you feel bad, you ALL should be able to SAY SO!!! Please don't EVER think something like, "I'd say something, ask for help, but Jane has it so much worse than I do. How can I complain?" My situation is not necessarily *worse* than yours, Katie. It's just different. We both deserve {{{{{{Katie and Jane}}}}}} hugs and I'm always happy to give and receive them when I can. :o) Same goes for pretty much everyone on this group. 'Kay, Rant Over. Take GOOD Care and lots of {{{HUGS}}} Janey |