From: John on
I've been going in and out from hospitals since I was 6, dealing with the
removal of polypses from my igmorium, which for some reason became infected
internally, probably by Staph around this age.

To make a long story short, Staph Aureus transferred from my nose to my
skin, and combined with acne vulgaris, now at age 40+, causes now cysts all
over my body, including genital areas, buttocks, armpits, and soft tissue.

I've had a puss sample taken and given to a microbiologist, who verified
that it was full of Staph Aureus aggregates, and had several antibiotics
recommended, such as Amoxil-clavulanic acid, Ampicillin, Cefaclor,
Cefoxitin, Ciprofloxacin, Gentamicin, Amikacin, Fucidic Acid,Clindamycin,
Tetracyclin, Co-trimoxazole, Vancomycin.

I've had infections and cysts since I can remember myself as a teenager.
I've had one month run with Tetracycline when I was a teenager, and two
6-month runs with Isotretinoin (Ro-accutaine) (one when I was 24 one when I
was 35) with no good results. I've had 5-6, one month runs with Augmentin
@650mg/8hrs and the first time the results were good. The second and and
subsequent times not much difference. Upon stopping, cysts started coming
back.

It appears as though what's in me has mutated to a degree uncontrollable by
conventional antibiotics. I've searched the net and found that the last
resort is Vancomycin, but there have been found strains of Staph Aureus,
which are resistant even to this.

What I end up doing, to avoid getting new cysts all over my body, is fill my
bathtub with water and dillute half a bottle to a bottle of Betadine
Solution and soak my body in it for half an hour, once/twice a week. This
seems to better the situation somewhat.

I've also went to numerous dermatologists, who just cannot offer any serious
help. One of them helped me somewhat, by extracting over 300 cysts from my
back, using electro-surgery. I really can't afford to do this once every
6-12 months though.

Is there any hope for me? This thing is slowly killing me. It is moving into
more and more obscure areas of my body and is now resistant to most
conventional antibiotics and no doctor, dermatologist or infection
specialist knows of any cure, so far.

Help!!
--
John


From: John Gentile on
On 2005-10-22 13:22:38 -0400, "John" <mongrel(a)home.com> said:

> I've been going in and out from hospitals since I was 6, dealing with the
> removal of polypses from my igmorium, which for some reason became infected
> internally, probably by Staph around this age.
>
> To make a long story short, Staph Aureus transferred from my nose to my
> skin, and combined with acne vulgaris, now at age 40+, causes now cysts all
> over my body, including genital areas, buttocks, armpits, and soft tissue.
>
> I've had a puss sample taken and given to a microbiologist, who verified
> that it was full of Staph Aureus aggregates, and had several antibiotics
> recommended, such as Amoxil-clavulanic acid, Ampicillin, Cefaclor,
> Cefoxitin, Ciprofloxacin, Gentamicin, Amikacin, Fucidic Acid,Clindamycin,
> Tetracyclin, Co-trimoxazole, Vancomycin.
>
> I've had infections and cysts since I can remember myself as a teenager.
> I've had one month run with Tetracycline when I was a teenager, and two
> 6-month runs with Isotretinoin (Ro-accutaine) (one when I was 24 one when I
> was 35) with no good results. I've had 5-6, one month runs with Augmentin
> @650mg/8hrs and the first time the results were good. The second and and
> subsequent times not much difference. Upon stopping, cysts started coming
> back.
>
> It appears as though what's in me has mutated to a degree uncontrollable by
> conventional antibiotics. I've searched the net and found that the last
> resort is Vancomycin, but there have been found strains of Staph Aureus,
> which are resistant even to this.
>
> What I end up doing, to avoid getting new cysts all over my body, is fill my
> bathtub with water and dillute half a bottle to a bottle of Betadine
> Solution and soak my body in it for half an hour, once/twice a week. This
> seems to better the situation somewhat.
>
> I've also went to numerous dermatologists, who just cannot offer any serious
> help. One of them helped me somewhat, by extracting over 300 cysts from my
> back, using electro-surgery. I really can't afford to do this once every
> 6-12 months though.
>
> Is there any hope for me? This thing is slowly killing me. It is moving into
> more and more obscure areas of my body and is now resistant to most
> conventional antibiotics and no doctor, dermatologist or infection
> specialist knows of any cure, so far.
>
> Help!!

I am truly sorry for your condition and can only hope that you do find
the answer. Not all doctors really understand some infectious disease
and you might have to keep looking for a doctor that can treat your
whole body and not just 1 symptom. You might have more than one thing
going on enabling the Staph to run rampant.

Your report of the sensitivity suggests that it is not a deadly
multi-resistant bug (commonly called MRSA for Methcillin Resistant
Staph aureus). It would be highly unusual for your isolate to go from a
sensitive one to a multiresistant one, and if you do have a MRSA then
you probably picked it up and it joined your regular one.

Antibiotics usually aren't the entire weapon in killing dangerous germs
- your immune system has to help too. If you and any other conditions
that can weaken your immune response then the infections can resist
treatment even if the antibiotic is effective to that organism. I think
you need to find an Infectious Disease specialist who can look at your
whole body for other clues to your condition.

Good Luck

--
John Gentile
Editor
Rhode Island Apple Group

From: steve on
Ultraviolet blood irradiation may help. My wife suffered from
recurrent antibiotic resistant Staph aureus infections. The usual
problem was Cellulitis in her legs. A few treatments of ultraviolet
blood irradiation seems to have cured the problem. She has had no
trouble for over a year.

Steve
From: John on
? <steve(a)tropheus.demon.co.uk> ?????? ??? ??????
news:boqml19isoadtf466fj8dn3ts5l708padg(a)4ax.com...
>
> Ultraviolet blood irradiation may help. My wife suffered from
> recurrent antibiotic resistant Staph aureus infections. The usual
> problem was Cellulitis in her legs. A few treatments of ultraviolet
> blood irradiation seems to have cured the problem. She has had no
> trouble for over a year.

Thanks to both respondents. I have UV equipment, but could you be a bit more
specific on how it's done?

> Steve
--
John


From: steve on
On Sun, 23 Oct 2005 16:12:46 +0300, "John" <mongrel(a)home.com> wrote:

>? <steve(a)tropheus.demon.co.uk> ?????? ??? ??????
>news:boqml19isoadtf466fj8dn3ts5l708padg(a)4ax.com...
>>
>> Ultraviolet blood irradiation may help. My wife suffered from
>> recurrent antibiotic resistant Staph aureus infections. The usual
>> problem was Cellulitis in her legs. A few treatments of ultraviolet
>> blood irradiation seems to have cured the problem. She has had no
>> trouble for over a year.
>
>Thanks to both respondents. I have UV equipment, but could you be a bit more
>specific on how it's done?
>

John,

A cannula is inserted into a suitable vein. 500cc of blood is drawn
into a vacuum bottle over a UV tube. The vacuum is "released" and the
bottle is hung up. The blood flows back over the UV tube. The process
should take about 30 minutes. The actual UV exposure is controlled by
a box of electronics which I think is just a power source and a timer.

The first time my wife had the treatment the tubing blocked up because
her blood was very thick (antibodies?) so the treatment took nearly
two hours. The second treatment, a few days later, her blood was
flowing much better.

There is a description of the method at
http://www.bio-immuno-development.com/ubitherapy.html

My wife was treated by a consultant in the UK but I'm sure you will be
able to find someone in your country.

It wasn't cheap because of the time involved and the disposables are
quite expensive!

Steve
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