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From: dolfrog on 9 Jul 2007 14:51
In another thread Raymond seems toi have got all upset for no reason
at all.

My Dyslexic history goes like this.
My eldest son was first diagnosed as being dyslexic at the age of 6
years old, and at the time I identified that the issues the
professionals were describing as his dyslexic problems, 3 years later
when i was 42 years old I was diagnosed as being dyslexic, but both of
us did not fit the perscribed models of dyslexia that existed back in
the late 1990s. After 4 years of agonising assessments my son was
finally diagnosed as having CAPD (Central Auditory Processing
Disorder) as it was then, this was 1998. So CAPD was his underlying
cause of dyslexia, and his nominal dyspraxic issues hindered his
ability to create coping strategies to work around these problems.
In the UK, where we live, no-one had heard of CAPD, although dyslexia
was well know, and some were talking about the mythical Auditory
Dyslexia (which is APD) So basically I had to start from nowhere to
lobby for the UK research Scientists to begin an APD research program
in the UK. part of this campaign was the biulding of an information
web site, to support our campiagn, and because we were lobbying
scientific researchers we had to have a real understanding of the
information we added to the web site, so most of our links were and
still are to existing peer reviewed scientific Research papers free of
subjective opinions and theories. Most of these research papers were
sourced from Universitry based Research investigating the Theories of
Developmental Dyslexia, most of which were investigating and
researching the visual and auditory factors that cause the dyslexic
symptoms.
http://www.infolinks.apduk.org/ukapdprof.htm
http://www.infolinks.apduk.org/international_page.htm
http://www.infolinks.apduk.org/audiovisual_dyselxia.htm
and my own recently updated dyslexia web page at
http://capdlinks.homestead.com/Dyslexia.html

In the UK the term dyslexia had been defined back in the 1970s and
1980s and by organisations and agencies who were set up to support
those who haver dyslexia, and these defintions were based on the best
science of the day, and linked into the best amd possible only support
programs of the day. But science has moved on but for many reasons
these agencies and organisations have not moved on in step with ther
scientific research, some for fanciual reasons such as the programs
they promote, some because of their fundraising agendas, and others
because they it is easier to support the status quo. So dyslexia had
become a blanket umbrella term to conceal the underlying issues that
cause dyslexia.

Folowing this international Dyslexia research trail you will find
cultural issues relating to the type of langauge used and/or the type
of visual notation of the auditory language usd in each culture
creates a variety of different issues that dominate each cultures
potential dyslexics. So say in the chinese adn many Asian cultures the
visual issues are the real problem where as in our English based
cultures the Auditory (sometimes also called Phonological) processing
issues are the manin set of issues. The real dilema is thast there are
too many opnions coming from too many backgrounds, and no single body
of research scienbtists co-ordinatinf all of this vast amount of
research and subjective opinion to have a single definition of waht
dyslexia really is.

However many leading researchers from around the world have recognised
the need to have an internationally recognised set of defintions of
these issues, so that they can communicate and share information so
that they can take these issues forward. And the accepted way forward
is via Peer Reviewed Research, and by this process eventually all the
various theories of dyslexia will either be proved or disproved, and
subjective professional opinion will be eliminated hopefully.
This was easier to apply to Auditory Processing Disorder, as there was
not so many historical interest agendas, the main problem was for the
USA to come to an agreed defintion of APD, which took ASHA % years of
arranged conferences and discussion until thye published theit (C)APD
Technical Report in 2005. A similar Exercise has been started in the
USA regarding Dyslexia, last year, and this project was awarded to
Florida State University.

So as Raymond has already listed there a whole range of issues that
can cause your dyslexic symptoms, and each one requires identifying,
and requires medical assessment. These underlying causes have more
problems than just dyslexia ( having problems with reading, writng and
spelling) some also share relative poor menory issues, so if you have
an auditory cause of your dyslexic symptoms you may have a poor
auditory memory, simialary for visual issues and visual memory. But
these are medical conditions which notthat can cause dyslexia but not
all who have the symptoms of dyslexia have all of these condtions. So
dyslexia is a useful beacon that high;lights the possible existance of
a whole range of conditions and it is the responsiblity of each
dyslexic to discover which conditions are the underlying cause of
their dyslexia and find out the other problems assocciated with each
condition that they may have.

Each dyslexic has their own package of underlying cause of their
dyslexic symptoms, and these conditions need to be recognised and
defined, and not hidden under a dyslexia umbrella.
Some of these underlying conditions can be comorbid, or co exist, so
you may have more than one underlying cause of your dyslexia, while
others may just have one, no two dyslexics are identically the same.
We al have different strngths to help cope with our dyslexia, some who
have one or more auditory processing issues either are natural Visual
learners or develop visual learning coping strategies (Davis,) and
even those who are Visuial-Spatail Learners, which is a Learning style
are also dyslexic (Silverman)
The other an very importan issue is how others view those of us who
have these probles using this man made communication system. The
system was created and developed by those best able to the
communication system, and little regard was made to those who had
problems using this system (dyslexics). So those who are best able to
use this communication system are not always aware of the problems
that others, who they would consider less fortunate than themselves,
and it is they who dominate the education systems of our various
countries.

So Raymond my think that I am only concerned with APD as a cause of
dyslexia, this is not true, what I am concerned with is is toi have
all dyslexics discover the real underlying causes of their dyslexia,
have them medically assessed and diagnosed in their own right so that
it is possible toi begin to define how each dyslexic canbest help
themselves work around their problems. Because some of the coping
strategioes used by one underlying cause of dyslexia may not work for
another, or it could even be harmful to another underlying cause of
dyslexia.
Yes I know more about APD than other underlying cause of dyslexia,
that is becxause it my own undelying cause of dyslexia, but other
dyslexics should have a similar understanding of their underlying
cause(s) of dyslexia and support help support other dyslexics who
share their problems.

There is also a need to eliminate the trivial nonsense claims to be
cause of dyslexia, which are not supported by peer reviewed scientific
research.

So from my perspectiver Raymond shouls have been assessed for APD as
he would appear from waht he says to have APD as one of his underlying
cause of dyslexia inaddition to his visual issues.


best wishes

dolfrog

From: astynaz on 9 Jul 2007 18:50
On Jul 9, 11:51 am, dolfrog <dolf...(a)apduk.org> wrote:
> In another thread Raymond seems toi have got all upset for no reason
> at all.
>
> My Dyslexic history goes like this.
> My eldest son was first diagnosed as being dyslexic at the age of 6
> years old, and at the time I identified that the issues the
> professionals were describing as his dyslexic problems, 3 years later
> when i was 42 years old I was diagnosed as being dyslexic, but both of
> us did not fit the perscribed models of dyslexia that existed back in
> the late 1990s. After 4 years of agonising assessments my son was
> finally diagnosed as having CAPD (Central Auditory Processing
> Disorder) as it was then, this was 1998. So CAPD was his underlying
> cause of dyslexia, and his nominal dyspraxic issues hindered his
> ability to create coping strategies to work around these problems.
> In the UK, where we live, no-one had heard of CAPD, although dyslexia
> was well know, and some were talking about the mythical Auditory
> Dyslexia (which is APD) So basically I had to start from nowhere to
> lobby for the UK research Scientists to begin an APD research program
> in the UK. part of this campaign was the biulding of an information
> web site, to support our campiagn, and because we were lobbying
> scientific researchers we had to have a real understanding of the
> information we added to the web site, so most of our links were and
> still are to existing peer reviewed scientific Research papers free of
> subjective opinions and theories. Most of these research papers were
> sourced from Universitry based Research investigating the Theories of
> Developmental Dyslexia, most of which were investigating and
> researching the visual and auditory factors that cause the dyslexic
> symptoms.http://www.infolinks.apduk.org/ukapdprof.htmhttp://www.infolinks.apduk.org/international_page.htmhttp://www.infolinks.apduk.org/audiovisual_dyselxia.htm
> and my own recently updated dyslexia web page athttp://capdlinks.homestead.com/Dyslexia.html
>
> In the UK the term dyslexia had been defined back in the 1970s and
> 1980s and by organisations and agencies who were set up to support
> those who haver dyslexia, and these defintions were based on the best
> science of the day, and linked into the best amd possible only support
> programs of the day. But science has moved on but for many reasons
> these agencies and organisations have not moved on in step with ther
> scientific research, some for fanciual reasons such as the programs
> they promote, some because of their fundraising agendas, and others
> because they it is easier to support the status quo. So dyslexia had
> become a blanket umbrella term to conceal the underlying issues that
> cause dyslexia.
>
> Folowing this international Dyslexia research trail you will find
> cultural issues relating to the type of langauge used and/or the type
> of visual notation of the auditory language usd in each culture
> creates a variety of different issues that dominate each cultures
> potential dyslexics. So say in the chinese adn many Asian cultures the
> visual issues are the real problem where as in our English based
> cultures the Auditory (sometimes also called Phonological) processing
> issues are the manin set of issues. The real dilema is thast there are
> too many opnions coming from too many backgrounds, and no single body
> of research scienbtists co-ordinatinf all of this vast amount of
> research and subjective opinion to have a single definition of waht
> dyslexia really is.
>
> However many leading researchers from around the world have recognised
> the need to have an internationally recognised set of defintions of
> these issues, so that they can communicate and share information so
> that they can take these issues forward. And the accepted way forward
> is via Peer Reviewed Research, and by this process eventually all the
> various theories of dyslexia will either be proved or disproved, and
> subjective professional opinion will be eliminated hopefully.
> This was easier to apply to Auditory Processing Disorder, as there was
> not so many historical interest agendas, the main problem was for the
> USA to come to an agreed defintion of APD, which took ASHA % years of
> arranged conferences and discussion until thye published theit (C)APD
> Technical Report in 2005. A similar Exercise has been started in the
> USA regarding Dyslexia, last year, and this project was awarded to
> Florida State University.
>
> So as Raymond has already listed there a whole range of issues that
> can cause your dyslexic symptoms, and each one requires identifying,
> and requires medical assessment. These underlying causes have more
> problems than just dyslexia ( having problems with reading, writng and
> spelling) some also share relative poor menory issues, so if you have
> an auditory cause of your dyslexic symptoms you may have a poor
> auditory memory, simialary for visual issues and visual memory. But
> these are medical conditions which notthat can cause dyslexia but not
> all who have the symptoms of dyslexia have all of these condtions. So
> dyslexia is a useful beacon that high;lights the possible existance of
> a whole range of conditions and it is the responsiblity of each
> dyslexic to discover which conditions are the underlying cause of
> their dyslexia and find out the other problems assocciated with each
> condition that they may have.
>
> Each dyslexic has their own package of underlying cause of their
> dyslexic symptoms, and these conditions need to be recognised and
> defined, and not hidden under a dyslexia umbrella.
> Some of these underlying conditions can be comorbid, or co exist, so
> you may have more than one underlying cause of your dyslexia, while
> others may just have one, no two dyslexics are identically the same.
> We al have different strngths to help cope with our dyslexia, some who
> have one or more auditory processing issues either are natural Visual
> learners or develop visual learning coping strategies (Davis,) and
> even those who are Visuial-Spatail Learners, which is a Learning style
> are also dyslexic (Silverman)
> The other an very importan issue is how others view those of us who
> have these probles using this man made communication system. The
> system was created and developed by those best able to the
> communication system, and little regard was made to those who had
> problems using this system (dyslexics). So those who are best able to
> use this communication system are not always aware of the problems
> that others, who they would consider less fortunate than themselves,
> and it is they who dominate the education systems of our various
> countries.
>
> So Raymond my think that I am only concerned with APD as a cause of
> dyslexia, this is not true, what I am concerned with is is toi have
> all dyslexics discover the real underlying causes of their dyslexia,
> have them medically assessed and diagnosed in their own right so that
> it is possible toi begin to define how each dyslexic canbest help
> themselves work around their problems. Because some of the coping
> strategioes used by one underlying cause of dyslexia may not work for
> another, or it could even be harmful to another underlying cause of
> dyslexia.
> Yes I know more about APD than other underlying cause of dyslexia,
> that is becxause it my own undelying cause of dyslexia, but other
> dyslexics should have a similar understanding of their underlying
> cause(s) of dyslexia and support help support other dyslexics who
> share their problems.
>
> There is also a need to eliminate the trivial nonsense claims to be
> cause of dyslexia, which are not supported by peer reviewed scientific
> research.
>
> So from my perspectiver Raymond shouls have been assessed for APD as
> he would appear from waht he says to have APD as one of his underlying
> cause of dyslexia inaddition to his visual issues.
>
> best wishes
>
> dolfrog

Please don't use me as one of your examples. I would really appreciate
it.

I already talked about that I had my speech and hearing tested when I
was 4 years old because of disorganized
speech. They told my mother that I wasn't hearing things right and
that I was turning stuff around and that it was a
form of Dyslexia. They told her that people needed to slow down when
talking to me. I had auditory therapy,
speech therapy,and phonics to help remediate my Dyslexia. I had fine
motor skills therapy that helped with my
Dyspraxia.


I also have visual processing problems(poor saccadic,pursuit
movements,eye coordination) that I have already mentioned as well as
cross dominance
Also my eyes get tired. I don't like bright lights......I tend to
wear sunglasses.

FYI information Doctor Levinson tested me for inner ear problems and
he used a 3D auditory scanner to test my
auditory processing. He tested my auditory blurring speed. The
results were abnormal. He also noted that I have auditory input speech
lags. He tested
my eye coordination. My eye coordination was tested with
electronystagmography and the results were abnormal. I even mentioned
that I was diagnosed as having cerebellar vestibular dysfunction which
he believed was the root of my Dyslexia,Dyspraxia issues. It was his
testing that I took to the Veteran Affairs neurologisst
that enabled me to get neurological and neuropsychological testing.
They concluded that I have Dyslexia and
Dyspraxia. they tested me. you didn't. So I would appreciate that
you stop assuming stuff about me not knowing
about myself and the causes of my symptoms. I have a good idea what
they are. They already friggen told me.
I already mentioned that I have impaired immediate visual memory and
borderline impaired immediate verbal memory. That
was in the neuropsychological report....that helped get my Dyslexia
and Dyspraxia diagnosed.

Omega 3 fatty acids helped me with my Dyslexic,Dyspraxic,ADHD
symptoms.

so please don't mention anything more about me...don't assume anything
more about me. Don't use me for any
examples. That's what upset me. I didn't just get upset over
nothing. You have done this more once. It's friggen
irritating.




From: dolfrog on 10 Jul 2007 16:02
On Jul 9, 11:50 pm, "asty...(a)yahoo.com" <asty...(a)yahoo.com> wrote:
> On Jul 9, 11:51 am, dolfrog <dolf...(a)apduk.org> wrote:
>
>
>
>
>
> > In another thread Raymond seems toi have got all upset for no reason
> > at all.
>
> > My Dyslexic history goes like this.
> > My eldest son was first diagnosed as being dyslexic at the age of 6
> > years old, and at the time I identified that the issues the
> > professionals were describing as his dyslexic problems, 3 years later
> > when i was 42 years old I was diagnosed as being dyslexic, but both of
> > us did not fit the perscribed models of dyslexia that existed back in
> > the late 1990s. After 4 years of agonising assessments my son was
> > finally diagnosed as having CAPD (Central Auditory Processing
> > Disorder) as it was then, this was 1998. So CAPD was his underlying
> > cause of dyslexia, and his nominal dyspraxic issues hindered his
> > ability to create coping strategies to work around these problems.
> > In the UK, where we live, no-one had heard of CAPD, although dyslexia
> > was well know, and some were talking about the mythical Auditory
> > Dyslexia (which is APD) So basically I had to start from nowhere to
> > lobby for the UK research Scientists to begin an APD research program
> > in the UK. part of this campaign was the biulding of an information
> > web site, to support our campiagn, and because we were lobbying
> > scientific researchers we had to have a real understanding of the
> > information we added to the web site, so most of our links were and
> > still are to existing peer reviewed scientific Research papers free of
> > subjective opinions and theories. Most of these research papers were
> > sourced from Universitry based Research investigating the Theories of
> > Developmental Dyslexia, most of which were investigating and
> > researching the visual and auditory factors that cause the dyslexic
> > symptoms.http://www.infolinks.apduk.org/ukapdprof.htmhttp://www.infolinks.apdu...
> > and my own recently updated dyslexia web page athttp://capdlinks.homestead.com/Dyslexia.html
>
> > In the UK the term dyslexia had been defined back in the 1970s and
> > 1980s and by organisations and agencies who were set up to support
> > those who haver dyslexia, and these defintions were based on the best
> > science of the day, and linked into the best amd possible only support
> > programs of the day. But science has moved on but for many reasons
> > these agencies and organisations have not moved on in step with ther
> > scientific research, some for fanciual reasons such as the programs
> > they promote, some because of their fundraising agendas, and others
> > because they it is easier to support the status quo. So dyslexia had
> > become a blanket umbrella term to conceal the underlying issues that
> > cause dyslexia.
>
> > Folowing this international Dyslexia research trail you will find
> > cultural issues relating to the type of langauge used and/or the type
> > of visual notation of the auditory language usd in each culture
> > creates a variety of different issues that dominate each cultures
> > potential dyslexics. So say in the chinese adn many Asian cultures the
> > visual issues are the real problem where as in our English based
> > cultures the Auditory (sometimes also called Phonological) processing
> > issues are the manin set of issues. The real dilema is thast there are
> > too many opnions coming from too many backgrounds, and no single body
> > of research scienbtists co-ordinatinf all of this vast amount of
> > research and subjective opinion to have a single definition of waht
> > dyslexia really is.
>
> > However many leading researchers from around the world have recognised
> > the need to have an internationally recognised set of defintions of
> > these issues, so that they can communicate and share information so
> > that they can take these issues forward. And the accepted way forward
> > is via Peer Reviewed Research, and by this process eventually all the
> > various theories of dyslexia will either be proved or disproved, and
> > subjective professional opinion will be eliminated hopefully.
> > This was easier to apply to Auditory Processing Disorder, as there was
> > not so many historical interest agendas, the main problem was for the
> > USA to come to an agreed defintion of APD, which took ASHA % years of
> > arranged conferences and discussion until thye published theit (C)APD
> > Technical Report in 2005. A similar Exercise has been started in the
> > USA regarding Dyslexia, last year, and this project was awarded to
> > Florida State University.
>
> > So as Raymond has already listed there a whole range of issues that
> > can cause your dyslexic symptoms, and each one requires identifying,
> > and requires medical assessment. These underlying causes have more
> > problems than just dyslexia ( having problems with reading, writng and
> > spelling) some also share relative poor menory issues, so if you have
> > an auditory cause of your dyslexic symptoms you may have a poor
> > auditory memory, simialary for visual issues and visual memory. But
> > these are medical conditions which notthat can cause dyslexia but not
> > all who have the symptoms of dyslexia have all of these condtions. So
> > dyslexia is a useful beacon that high;lights the possible existance of
> > a whole range of conditions and it is the responsiblity of each
> > dyslexic to discover which conditions are the underlying cause of
> > their dyslexia and find out the other problems assocciated with each
> > condition that they may have.
>
> > Each dyslexic has their own package of underlying cause of their
> > dyslexic symptoms, and these conditions need to be recognised and
> > defined, and not hidden under a dyslexia umbrella.
> > Some of these underlying conditions can be comorbid, or co exist, so
> > you may have more than one underlying cause of your dyslexia, while
> > others may just have one, no two dyslexics are identically the same.
> > We al have different strngths to help cope with our dyslexia, some who
> > have one or more auditory processing issues either are natural Visual
> > learners or develop visual learning coping strategies (Davis,) and
> > even those who are Visuial-Spatail Learners, which is a Learning style
> > are also dyslexic (Silverman)
> > The other an very importan issue is how others view those of us who
> > have these probles using this man made communication system. The
> > system was created and developed by those best able to the
> > communication system, and little regard was made to those who had
> > problems using this system (dyslexics). So those who are best able to
> > use this communication system are not always aware of the problems
> > that others, who they would consider less fortunate than themselves,
> > and it is they who dominate the education systems of our various
> > countries.
>
> > So Raymond my think that I am only concerned with APD as a cause of
> > dyslexia, this is not true, what I am concerned with is is toi have
> > all dyslexics discover the real underlying causes of their dyslexia,
> > have them medically assessed and diagnosed in their own right so that
> > it is possible toi begin to define how each dyslexic canbest help
> > themselves work around their problems. Because some of the coping
> > strategioes used by one underlying cause of dyslexia may not work for
> > another, or it could even be harmful to another underlying cause of
> > dyslexia.
> > Yes I know more about APD than other underlying cause of dyslexia,
> > that is becxause it my own undelying cause of dyslexia, but other
> > dyslexics should have a similar understanding of their underlying
> > cause(s) of dyslexia and support help support other dyslexics who
> > share their problems.
>
> > There is also a need to eliminate the trivial nonsense claims to be
> > cause of dyslexia, which are not supported by peer reviewed scientific
> > research.
>
> > So from my perspectiver Raymond shouls have been assessed for APD as
> > he would appear from waht he says to have APD as one of his underlying
> > cause of dyslexia inaddition to his visual issues.
>
> > best wishes
>
> > dolfrog
>
> Please don't use me as one of your examples. I would really appreciate
> it.
>
> I already talked about that I had my speech and hearing tested when I
> was 4 years old because of disorganized
> speech. They told my mother that I wasn't hearing things right and
> that I was turning stuff around and that it was a
> form of Dyslexia. They told her that people needed to slow down when
> talking to me. I had auditory therapy,
> speech therapy,and phonics to help remediate my Dyslexia. I had fine
> motor skills therapy that helped with my
> Dyspraxia.
>
> I also have visual processing problems(poor saccadic,pursuit
> movements,eye coordination) that I have already mentioned as well as
> cross dominance
> Also my eyes get tired. I don't like bright lights......I tend to
> wear sunglasses.
>
> FYI information Doctor Levinson tested me for inner ear problems and
> he used a 3D auditory scanner to test my
> auditory processing. He tested my auditory blurring speed. The
> results were abnormal. He also noted that I have auditory input speech
> lags. He tested
> my eye coordination. My eye coordination was tested with
> electronystagmography and the results were abnormal. I even mentioned
> that I was diagnosed as having cerebellar vestibular dysfunction which
> he believed was the root of my Dyslexia,Dyspraxia issues. It was his
> testing that I took to the Veteran Affairs neurologisst
> that enabled me to get neurological and neuropsychological testing.
> They concluded that I have Dyslexia and
> Dyspraxia. they tested me. you didn't. So I would appreciate that
> you stop assuming stuff about me not knowing
> about myself and the causes of my symptoms. I have a good idea what
> they are. They already friggen told me.
> I already mentioned that I have impaired immediate visual memory and
> borderline impaired immediate verbal memory. That
> was in the neuropsychological report....that helped get my Dyslexia
> and Dyspraxia diagnosed.
>
> Omega 3 fatty acids helped me with my Dyslexic,Dyspraxic,ADHD
> symptoms.
>
> so please don't mention anything more about ...
>
> read more »- Hide quoted text -
>
> - Show quoted text -


Hi In the USA APD can only diagnosed by an Audiologist, and you keep
on telling me that you have these issues as the underlying cause of
dyslexia.
All I am sayinmg is go get it diagnoised properly, so that ypou could
be like my eldest son who has APD andf dyspraxia as his underlying
causes of his dyslexia. these are medical conditions, dyslexia is not.
If you have APD there are a whole range of other issues you may need
to consider, which can onl;y be indetified by an trained audiologist.
As fasr as I am aware Dr Levinson is not a qualified audiologist, i
could be wrong, but if he was he would not have left in inh this
diagnostic shambles, which you keep repeating.
>From what I can make out you have ADHD, and Dyspraxia, and the
dyslexic symptoms, all I am saying is that you shpould havew your
dyslexic symptoms investigated and clinically identified, which is now
possible. So id you have experienced all of these auditory problems
then you should have a diagnosis of APD, and a proper understanding of
the issues you have. There are many issues regarding APD that affect
adults and these issues can become worse with age, and you may require
regular check ups, this has now happened with me aas i have to have an
annual hearing test because of my age and because i have APD.

best wishes

dolfrog


From: dolfrog on 10 Jul 2007 16:18
On a techincal Note

you say below thast Dr.Levison used and I quote
__________________________________________
FYI information Doctor Levinson tested me for inner ear problems and
> he used a 3D auditory scanner to test my
> auditory processing. He tested my auditory blurring speed. The
> results were abnormal.
_________________________________________
As far as I am aware these are not the accepted APD diagnostic tests
used by qualified Audiologists in the USA, to diagnose APD.

There are many professionals who are very good a providing a basic
good all round assessment but who are not qualified to perfrom a full
diagnosis, and some of these professionals, not all, are reluctant to
refer patients on to other better qualified professionals for fear of
a lose of future income.

best wishes

dolfrog

>
> Please don't use me as one of your examples. I would really appreciate
> it.
>
> I already talked about that I had my speech and hearing tested when I
> was 4 years old because of disorganized
> speech. They told my mother that I wasn't hearing things right and
> that I was turning stuff around and that it was a
> form of Dyslexia. They told her that people needed to slow down when
> talking to me. I had auditory therapy,
> speech therapy,and phonics to help remediate my Dyslexia. I had fine
> motor skills therapy that helped with my
> Dyspraxia.
>
> I also have visual processing problems(poor saccadic,pursuit
> movements,eye coordination) that I have already mentioned as well as
> cross dominance
> Also my eyes get tired. I don't like bright lights......I tend to
> wear sunglasses.
>
> FYI information Doctor Levinson tested me for inner ear problems and
> he used a 3D auditory scanner to test my
> auditory processing. He tested my auditory blurring speed. The
> results were abnormal. He also noted that I have auditory input speech
> lags. He tested
> my eye coordination. My eye coordination was tested with
> electronystagmography and the results were abnormal. I even mentioned
> that I was diagnosed as having cerebellar vestibular dysfunction which
> he believed was the root of my Dyslexia,Dyspraxia issues. It was his
> testing that I took to the Veteran Affairs neurologisst
> that enabled me to get neurological and neuropsychological testing.
> They concluded that I have Dyslexia and
> Dyspraxia. they tested me. you didn't. So I would appreciate that
> you stop assuming stuff about me not knowing
> about myself and the causes of my symptoms. I have a good idea what
> they are. They already friggen told me.
> I already mentioned that I have impaired immediate visual memory and
> borderline impaired immediate verbal memory. That
> was in the neuropsychological report....that helped get my Dyslexia
> and Dyspraxia diagnosed.
>
> Omega 3 fatty acids helped me with my Dyslexic,Dyspraxic,ADHD
> symptoms.
>
> so please don't mention anything more about ...
>
> read more »- Hide quoted text -
>
> - Show quoted text -


From: astynaz on 10 Jul 2007 20:22
On Jul 10, 1:02 pm, dolfrog <dolf...(a)dolfrog.com> wrote:
> On Jul 9, 11:50 pm, "asty...(a)yahoo.com" <asty...(a)yahoo.com> wrote:
>
> > On Jul 9, 11:51 am, dolfrog <dolf...(a)apduk.org> wrote:
>
> > > In another thread Raymond seems toi have got all upset for no reason
> > > at all.
>
> > > My Dyslexic history goes like this.
> > > My eldest son was first diagnosed as being dyslexic at the age of 6
> > > years old, and at the time I identified that the issues the
> > > professionals were describing as his dyslexic problems, 3 years later
> > > when i was 42 years old I was diagnosed as being dyslexic, but both of
> > > us did not fit the perscribed models of dyslexia that existed back in
> > > the late 1990s. After 4 years of agonising assessments my son was
> > > finally diagnosed as having CAPD (Central Auditory Processing
> > > Disorder) as it was then, this was 1998. So CAPD was his underlying
> > > cause of dyslexia, and his nominal dyspraxic issues hindered his
> > > ability to create coping strategies to work around these problems.
> > > In the UK, where we live, no-one had heard of CAPD, although dyslexia
> > > was well know, and some were talking about the mythical Auditory
> > > Dyslexia (which is APD) So basically I had to start from nowhere to
> > > lobby for the UK research Scientists to begin an APD research program
> > > in the UK. part of this campaign was the biulding of an information
> > > web site, to support our campiagn, and because we were lobbying
> > > scientific researchers we had to have a real understanding of the
> > > information we added to the web site, so most of our links were and
> > > still are to existing peer reviewed scientific Research papers free of
> > > subjective opinions and theories. Most of these research papers were
> > > sourced from Universitry based Research investigating the Theories of
> > > Developmental Dyslexia, most of which were investigating and
> > > researching the visual and auditory factors that cause the dyslexic
> > > symptoms.http://www.infolinks.apduk.org/ukapdprof.htmhttp://www.infolinks.apdu...
> > > and my own recently updated dyslexia web page athttp://capdlinks.homestead.com/Dyslexia.html
>
> > > In the UK the term dyslexia had been defined back in the 1970s and
> > > 1980s and by organisations and agencies who were set up to support
> > > those who haver dyslexia, and these defintions were based on the best
> > > science of the day, and linked into the best amd possible only support
> > > programs of the day. But science has moved on but for many reasons
> > > these agencies and organisations have not moved on in step with ther
> > > scientific research, some for fanciual reasons such as the programs
> > > they promote, some because of their fundraising agendas, and others
> > > because they it is easier to support the status quo. So dyslexia had
> > > become a blanket umbrella term to conceal the underlying issues that
> > > cause dyslexia.
>
> > > Folowing this international Dyslexia research trail you will find
> > > cultural issues relating to the type of langauge used and/or the type
> > > of visual notation of the auditory language usd in each culture
> > > creates a variety of different issues that dominate each cultures
> > > potential dyslexics. So say in the chinese adn many Asian cultures the
> > > visual issues are the real problem where as in our English based
> > > cultures the Auditory (sometimes also called Phonological) processing
> > > issues are the manin set of issues. The real dilema is thast there are
> > > too many opnions coming from too many backgrounds, and no single body
> > > of research scienbtists co-ordinatinf all of this vast amount of
> > > research and subjective opinion to have a single definition of waht
> > > dyslexia really is.
>
> > > However many leading researchers from around the world have recognised
> > > the need to have an internationally recognised set of defintions of
> > > these issues, so that they can communicate and share information so
> > > that they can take these issues forward. And the accepted way forward
> > > is via Peer Reviewed Research, and by this process eventually all the
> > > various theories of dyslexia will either be proved or disproved, and
> > > subjective professional opinion will be eliminated hopefully.
> > > This was easier to apply to Auditory Processing Disorder, as there was
> > > not so many historical interest agendas, the main problem was for the
> > > USA to come to an agreed defintion of APD, which took ASHA % years of
> > > arranged conferences and discussion until thye published theit (C)APD
> > > Technical Report in 2005. A similar Exercise has been started in the
> > > USA regarding Dyslexia, last year, and this project was awarded to
> > > Florida State University.
>
> > > So as Raymond has already listed there a whole range of issues that
> > > can cause your dyslexic symptoms, and each one requires identifying,
> > > and requires medical assessment. These underlying causes have more
> > > problems than just dyslexia ( having problems with reading, writng and
> > > spelling) some also share relative poor menory issues, so if you have
> > > an auditory cause of your dyslexic symptoms you may have a poor
> > > auditory memory, simialary for visual issues and visual memory. But
> > > these are medical conditions which notthat can cause dyslexia but not
> > > all who have the symptoms of dyslexia have all of these condtions. So
> > > dyslexia is a useful beacon that high;lights the possible existance of
> > > a whole range of conditions and it is the responsiblity of each
> > > dyslexic to discover which conditions are the underlying cause of
> > > their dyslexia and find out the other problems assocciated with each
> > > condition that they may have.
>
> > > Each dyslexic has their own package of underlying cause of their
> > > dyslexic symptoms, and these conditions need to be recognised and
> > > defined, and not hidden under a dyslexia umbrella.
> > > Some of these underlying conditions can be comorbid, or co exist, so
> > > you may have more than one underlying cause of your dyslexia, while
> > > others may just have one, no two dyslexics are identically the same.
> > > We al have different strngths to help cope with our dyslexia, some who
> > > have one or more auditory processing issues either are natural Visual
> > > learners or develop visual learning coping strategies (Davis,) and
> > > even those who are Visuial-Spatail Learners, which is a Learning style
> > > are also dyslexic (Silverman)
> > > The other an very importan issue is how others view those of us who
> > > have these probles using this man made communication system. The
> > > system was created and developed by those best able to the
> > > communication system, and little regard was made to those who had
> > > problems using this system (dyslexics). So those who are best able to
> > > use this communication system are not always aware of the problems
> > > that others, who they would consider less fortunate than themselves,
> > > and it is they who dominate the education systems of our various
> > > countries.
>
> > > So Raymond my think that I am only concerned with APD as a cause of
> > > dyslexia, this is not true, what I am concerned with is is toi have
> > > all dyslexics discover the real underlying causes of their dyslexia,
> > > have them medically assessed and diagnosed in their own right so that
> > > it is possible toi begin to define how each dyslexic canbest help
> > > themselves work around their problems. Because some of the coping
> > > strategioes used by one underlying cause of dyslexia may not work for
> > > another, or it could even be harmful to another underlying cause of
> > > dyslexia.
> > > Yes I know more about APD than other underlying cause of dyslexia,
> > > that is becxause it my own undelying cause of dyslexia, but other
> > > dyslexics should have a similar understanding of their underlying
> > > cause(s) of dyslexia and support help support other dyslexics who
> > > share their problems.
>
> > > There is also a need to eliminate the trivial nonsense claims to be
> > > cause of dyslexia, which are not supported by peer reviewed scientific
> > > research.
>
> > > So from my perspectiver Raymond shouls have been assessed for APD as
> > > he would appear from waht he says to have APD as one of his underlying
> > > cause of dyslexia inaddition to his visual issues.
>
> > > best wishes
>
> > > dolfrog
>
> > Please don't use me as one of your examples. I would really appreciate
> > it.
>
> > I already talked about that I had my speech and hearing tested when I
> > was 4 years old because of disorganized
> > speech. They told my mother that I wasn't hearing things right and
> > that I was turning stuff around and that it was a
> > form of Dyslexia. They told her that people needed to slow down when
> > talking to me. I had auditory therapy,
> > speech therapy,and phonics to help remediate my Dyslexia. I had fine
> > motor skills therapy that helped with my
> > Dyspraxia.
>
> > I also have visual processing problems(poor saccadic,pursuit
> > movements,eye coordination) that I have already mentioned as well as
> > cross dominance
> > Also my eyes get tired. I don't like bright lights......I tend to
> > wear sunglasses.
>
> > FYI information Doctor Levinson tested me for inner ear problems and
> > he used a 3D auditory scanner to test my
> > auditory processing. He tested my auditory blurring speed. The
> > results were abnormal. He also noted that I have auditory input speech
> > lags. He tested
> > my eye coordination. My eye coordination was tested with
> > electronystagmography and the results were abnormal. I even mentioned
> > that I was diagnosed as having cerebellar vestibular dysfunction which
> > he believed was the root of my Dyslexia,Dyspraxia issues. It was his
> > testing that I took to the Veteran Affairs neurologisst
> > that enabled me to get neurological and neuropsychological testing.
> > They concluded that I have Dyslexia and
> > Dyspraxia. they tested me. you didn't. So I would appreciate that
> > you stop assuming stuff about me not knowing
> > about myself and the causes of my symptoms. I have a good idea what
> > they are. They already friggen told me.
> > I already mentioned that I have impaired immediate visual memory and
> > borderline impaired immediate verbal memory. That
> > was in the neuropsychological report....that helped get my Dyslexia
> > and Dyspraxia diagnosed.
>
> > Omega 3 fatty acids helped me with my Dyslexic,Dyspraxic,ADHD
> > symptoms.
>
> > so please don't mention anything more about ...
>
> > read more »- Hide quoted text -
>
> > - Show quoted text -
>
> Hi In the USA APD can only diagnosed by an Audiologist, and you keep
> on telling me that you have these issues as the underlying cause of
> dyslexia.
> All I am sayinmg is go get it diagnoised properly, so that ypou could
> be like my eldest son who has APD andf dyspraxia as his underlying
> causes of his dyslexia. these are medical conditions, dyslexia is not.
> If you have APD there are a whole range of other issues you may need
> to consider, which can onl;y be indetified by an trained audiologist.
> As fasr as I am aware Dr Levinson is not a qualified audiologist, i
> could be wrong, but if he was he would not have left in inh this
> diagnostic shambles, which you keep repeating.>From what I can make out you have ADHD, and Dyspraxia, and the
>
> dyslexic symptoms, all I am saying is that you shpould havew your
> dyslexic symptoms investigated and clinically identified, which is now
> possible. So id you have experienced all of these auditory problems
> then you should have a diagnosis of APD, and a proper understanding of
> the issues you have. There are many issues regarding APD that affect
> adults and these issues can become worse with age, and you may require
> regular check ups, this has now happened with me aas i have to have an
> annual hearing test because of my age and because i have APD.
>
> best wishes
>
> dolfrog


Why should I have a diagnosis of APD? because you said so.
Damn you really are trying to label me something based on your
ideology. I figure that.

Look man
'

my friggen Dyslexic symptoms were investigated! They told my mom
that I wasn't hearing things right,and that I was turning stuff
around. My speech and hearing was tested. So I got auditory therapy
as in I was taught to hear things correctly ...I got speech
therapy.......I got phonics training. I was in 3 yrs of special
education getting my Dyslexia corrected.

How many times have I friggen told you.

I already had my speech and hearing tested at 4 years old!

I got early intervenvetion for it!

Therefore I got the auditory processing issues corrected

I keep friggen telling you
I had auditory therapy,speech therapy,and phonics to correct the
auditory,phonological,speech issues of my dyslexia.........now its
more of me being a corrected/compensated Dyslexic.

I keep friggen telling you. I don't have auditory reversals like I
used to.

You are not paying attention to a damn thing that I am saying. You are
saying to me to get it checked out.

Duh......if I didn't get it checked out and treated, I wouldn't be
able to communicate at words right now. I can communicate in words
because I did get my auditory processing issues checked and treated.

That's what the auditory therapy,speech therapy,and phonics was for.
My mother was told what the problem was and I got help for it.

I am not you. I am not your son. Don't compare me with you and your
son.

I got early intervention for my auditory processing issues of my
dyslexia......now they are more milder issues of auditory input
speech lags and people seem to talk too fast for me at times.
I have the same problems with visual stuff....visual input lags and
things that I read overload in my mind.
The neuropsychologist already pointed that I have problems with
string of words.....both visual and auditory.


The neurologists,neuropsychologists, and Dr. Levinson tested me. They
know me.
You don't know me. So I suggest that you stop assuming that you know
me when you don't. you haven't tested me. Don't project your APD
issues onto me. Don't compare me to you and your children. I don't
slam me for being an American too.
I had early intervention for my Dyslexia. I was a severe auditory
Dyslexic that I qualifed for special education when many milder
Dyslexics don't. My Dyslexia has been corrected for the most part. I
keep friggen telling you that.

I am done with this thread. I am not sure if you even bother to try
to pay attention to what I type and understand that I am a corrected/
compensated auditory dyslexic.


I am not going to bother reading more of your stuff. You are
obviously a serious fanatic about your APD. That's very scary.

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