Shortness of breath
in [Thyroid]
|
Prev: Gluten intolerance
Next: 7 Kito suppliment- T3 ?
From: Elizabeth on 20 Aug 2008 09:47 Hi all, I haven't posted in a while because I've actually been feeling tolerable mostly, although I have a number of symptoms that still bother me. I think I am about 70-80% well on Synthroid, but the remaining symptoms keep me from feeling what I would call good. I am still waiting to see the naturopathic doctor who prescribes Armour. I am told that my name should rise to the top of the waiting list soon. Meanwhile, I trudge on. I'm due for my next bloodwork at the old doctor's next week. My question today is, have any of you experienced shortness of breath? I don't remember having this before starting Synthroid, although maybe I did. It feels like my lungs are too tired to breathe properly, almost. I'm not breathing fast or panting. It's slow breathing with a feeling of not getting enough air unless I purposefully inhale deeply. I do still feel tired, so maybe it's just the result of overall fatigue. E.
From: Rhonda Lea Kirk Fries on 20 Aug 2008 10:29 Elizabeth wrote: > Hi all, > > I haven't posted in a while because I've actually been feeling > tolerable mostly, although I have a number of symptoms that still > bother me. Have you considered that you may be overmedicated? I've found that to be worse than undermedicated in some ways. For almost five years, I was living in Florida and taking 200 mcg of Synthroid daily. All my tests were spot on, and I felt fine. When I came back to New Jersey, I started to be symptomatic. I made a lot of erroneous assumptions about those symptoms--thought I needed more medication, not less, because that had been the pattern--but I couldn't afford a doctor at the time, so I lived with it. Then I was off the meds entirely for four months. It took another six months to figure out that 200 was too much, 150 was too little, and 175 was also too much. I now alternate 150 and 175 for an average of 162.5. I experimented (on my own)with a pattern of 1-150 to 2-175s, and found that it was also too much. At this point, I'm being tested every three months, because it's all so wonky. > I think I am about 70-80% well on Synthroid, but the > remaining symptoms keep me from feeling what I would call good. I am > still waiting to see the naturopathic doctor who prescribes Armour. I > am told that my name should rise to the top of the waiting list soon. > Meanwhile, I trudge on. I'm due for my next bloodwork at the old > doctor's next week. > My question today is, have any of you experienced shortness of > breath? Only when I'm taking *too much* medication. I don't know what your situation is, but I know that a lot of symptoms that seemed to me to be hypo symptoms were really *hyper* symptoms. I think people taking Cytomel and Armour have a little more flexibility because the half life of T3 is so short, but T4 can get toxic pretty quickly, IMO. This is a complete turnaround in my opinion of the matter, btw. > I don't remember having this before starting Synthroid, > although maybe I did. It feels like my lungs are too tired to breathe > properly, almost. I'm not breathing fast or panting. It's slow > breathing with a feeling of not getting enough air unless I > purposefully inhale deeply. I do still feel tired, so maybe it's just > the result of overall fatigue. I got good results taking a daily B-12 and D supplement. The doctor still wants to check me for Lyme but I no longer feel as if there's something wrong with me, so I'm not very concerned. -- Rhonda Lea Kirk Fries "You know you can indict a ham sandwich if you want to." William J. Martini, Judge, United States District Court
From: Elizabeth on 20 Aug 2008 11:16 Rhonda, you may be right. I did have seemingly hyper symptoms not long after starting this batch of meds -- insomnia, sweating, tremor. They subsided, but maybe I am actually still a bit over. I have been noticing aches and pains too that I didn't have before. Hm. Elizabeth "Rhonda Lea Kirk Fries" <nimue(a)databasix.com> wrote in message news:g8hb3f$jc4$1(a)blackhelicopter.databasix.com... > Elizabeth wrote: >> Hi all, >> >> I haven't posted in a while because I've actually been feeling >> tolerable mostly, although I have a number of symptoms that still >> bother me. > > Have you considered that you may be overmedicated? I've found that to be > worse than undermedicated in some ways. > > For almost five years, I was living in Florida and taking 200 mcg of > Synthroid daily. All my tests were spot on, and I felt fine. > > When I came back to New Jersey, I started to be symptomatic. I made a lot > of erroneous assumptions about those symptoms--thought I needed more > medication, not less, because that had been the pattern--but I couldn't > afford a doctor at the time, so I lived with it. > > Then I was off the meds entirely for four months. > > It took another six months to figure out that 200 was too much, 150 was > too little, and 175 was also too much. > > I now alternate 150 and 175 for an average of 162.5. I experimented (on my > own)with a pattern of 1-150 to 2-175s, and found that it was also too > much. At this point, I'm being tested every three months, because it's all > so wonky. > >> I think I am about 70-80% well on Synthroid, but the >> remaining symptoms keep me from feeling what I would call good. I am >> still waiting to see the naturopathic doctor who prescribes Armour. I >> am told that my name should rise to the top of the waiting list soon. >> Meanwhile, I trudge on. I'm due for my next bloodwork at the old >> doctor's next week. >> My question today is, have any of you experienced shortness of >> breath? > > Only when I'm taking *too much* medication. > > I don't know what your situation is, but I know that a lot of symptoms > that seemed to me to be hypo symptoms were really *hyper* symptoms. I > think people taking Cytomel and Armour have a little more flexibility > because the half life of T3 is so short, but T4 can get toxic pretty > quickly, IMO. > > This is a complete turnaround in my opinion of the matter, btw. > >> I don't remember having this before starting Synthroid, >> although maybe I did. It feels like my lungs are too tired to breathe >> properly, almost. I'm not breathing fast or panting. It's slow >> breathing with a feeling of not getting enough air unless I >> purposefully inhale deeply. I do still feel tired, so maybe it's just >> the result of overall fatigue. > > I got good results taking a daily B-12 and D supplement. The doctor still > wants to check me for Lyme but I no longer feel as if there's something > wrong with me, so I'm not very concerned. > > -- > Rhonda Lea Kirk Fries > > "You know you can indict a ham sandwich if you want to." > William J. Martini, Judge, United States District Court >
From: kgrhoads on 20 Aug 2008 11:56 On Aug 20, 1:47 pm, "Elizabeth" <esniv...(a)earthlink.net> wrote: > Hi all, > > I haven't posted in a while because I've actually been feeling tolerable > mostly, although I have a number of symptoms that still bother me. I think I > am about 70-80% well on Synthroid, but the remaining symptoms keep me from > feeling what I would call good. I am still waiting to see the naturopathic > doctor who prescribes Armour. I am told that my name should rise to the top > of the waiting list soon. Meanwhile, I trudge on. I'm due for my next > bloodwork at the old doctor's next week. > > My question today is, have any of you experienced shortness of breath? I > don't remember having this before starting Synthroid, although maybe I did. > It feels like my lungs are too tired to breathe properly, almost. I'm not > breathing fast or panting. It's slow breathing with a feeling of not getting > enough air unless I purposefully inhale deeply. I do still feel tired, so > maybe it's just the result of overall fatigue. > > E. "air hunger" is how it has been described by some. One of the Doctors that has since been hounded out of practice noticed that many of his asthma patients who were diagnosed with hypo- thyroid had the asthma get better or even go away when started on thyroid hormone. He then tried low dose thyroid on some asthma patients, and many got better. We noticed this effect in two of our hypo-s. Both Nora and Tom were on inhalers, inhaled corticosteroids and fast-acting bronchodialators for asthma. After starting on synth-T4 the need for these went down, way down. After starting on armour the need for asthma meds went away. When dose was reduced "to bring TSH into range" both got very sick -- including the asthma returning with severe symptoms. When doses were increased again, the asthma starting going away, again. It is pretty much "gone" for Nora and fairly much so for Tom. We have hopes for complete remission for both -- <rant> and we will NOT tolerate clueless MDs putzing with their thyroid doses ANY MORE. </rant> So the "air hunger" may (repeat MAY, not definite) be a sign that your present dose is too low. DIsclaimer -- my doctorate is NOT in medicine Kevin
From: Elizabeth on 20 Aug 2008 15:34
<kgrhoads(a)alum.mit.edu> wrote in message news:7b1df4f6-7110-4bb3-9909-3daf6da9d362(a)c65g2000hsa.googlegroups.com... > On Aug 20, 1:47 pm, "Elizabeth" <esniv...(a)earthlink.net> wrote: >> Hi all, >> >> I haven't posted in a while because I've actually been feeling tolerable >> mostly, although I have a number of symptoms that still bother me. I >> think I >> am about 70-80% well on Synthroid, but the remaining symptoms keep me >> from >> feeling what I would call good. I am still waiting to see the >> naturopathic >> doctor who prescribes Armour. I am told that my name should rise to the >> top >> of the waiting list soon. Meanwhile, I trudge on. I'm due for my next >> bloodwork at the old doctor's next week. >> >> My question today is, have any of you experienced shortness of breath? I >> don't remember having this before starting Synthroid, although maybe I >> did. >> It feels like my lungs are too tired to breathe properly, almost. I'm not >> breathing fast or panting. It's slow breathing with a feeling of not >> getting >> enough air unless I purposefully inhale deeply. I do still feel tired, so >> maybe it's just the result of overall fatigue. >> >> E. > > > "air hunger" is how it has been described by some. > > One of the Doctors that has since been hounded out of > practice noticed that many of his asthma patients > who were diagnosed with hypo- thyroid had the > asthma get better or even go away when started on > thyroid hormone. He then tried low dose thyroid > on some asthma patients, and many got better. > > We noticed this effect in two of our hypo-s. > Both Nora and Tom were on inhalers, > inhaled corticosteroids and fast-acting > bronchodialators for asthma. After starting on > synth-T4 the need for these went down, way > down. After starting on armour the need for > asthma meds went away. When dose was > reduced "to bring TSH into range" both > got very sick -- including the asthma returning > with severe symptoms. > > When doses were increased again, the > asthma starting going away, again. It is > pretty much "gone" for Nora and fairly > much so for Tom. We have hopes for > complete remission for both -- <rant> > and we will NOT tolerate clueless MDs > putzing with their thyroid doses ANY MORE. > </rant> > > So the "air hunger" may (repeat MAY, not > definite) be a sign that your present dose is > too low. > > DIsclaimer -- my doctorate is NOT in medicine > Kevin Kevin, that is fascinating! Thank you for this. Elizabeth |