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From: sheder1 on 1 Jul 2008 20:53
A young friend of mine, 19 years old, has just had this diagnosis. I
understand from her Mom that this is a very rare form of ovarian
cancer. What can anyone tell me about this?
It was discovered from abdominal distention, subsequent surgery and
removal of a 20 pound tumor. My young friend promptly named her tumor
"Joe."
She was away at college and living there. Went to the campus clinic
and they told her she was constipated and needed a good enema. Well,
she was constipated, but the enema did not relieve the discomfort
although it did do its job. She went to her PC who referred her for
scans, and that is how the tumor was found, removed, tissue sent to
pathology, etc.
Any info appreciated. And, of course, prayers.
I would refer her Mom to this site except now it seems to be overrun
with kooks and trolls. I am not sure the support they need would be
available. Such a pity.
From: J on 2 Jul 2008 06:09
sheder1 wrote:

> A young friend of mine, 19 years old, has just had this diagnosis. I
> understand from her Mom that this is a very rare form of ovarian
> cancer. What can anyone tell me about this?
> It was discovered from abdominal distention, subsequent surgery and
> removal of a 20 pound tumor. My young friend promptly named her tumor
> "Joe."
> She was away at college and living there. Went to the campus clinic
> and they told her she was constipated and needed a good enema. Well,
> she was constipated, but the enema did not relieve the discomfort
> although it did do its job. She went to her PC who referred her for
> scans, and that is how the tumor was found, removed, tissue sent to
> pathology, etc.
> Any info appreciated. And, of course, prayers.
> I would refer her Mom to this site except now it seems to be overrun
> with kooks and trolls. I am not sure the support they need would be
> available. Such a pity.

A rare, but usually benign and slow-growing tumor ?
If the pathology report confirms it (benign), she's had all the treatment
and support required?

http://www.nlm.nih.gov/medlineplus/ency/article/001172.htm
http://en.wikipedia.org/wiki/Sertoli-Leydig_cell_tumour
http://edbook.ascopubs.org/cgi/content/abstract/2008/1/225

Sorry, not sure..
<
http://www.bccancer.bc.ca/HPI/CancerManagementGuidelines/Gynecology/OvaryNonepithelial/DiagnosisStaging.htm
>

J

From: sheder1 on 2 Jul 2008 09:03
On Jul 2, 6:09 am, J <xnswex(a)nalid;"no> > A rare, but usually benign
and slow-growing tumor ?

No, not benign, as I wrote. I have been to various sites. I can
google and wikipedia with the best of them I am looking more for
first hand knowledge/experience. And about someone relatively in her
age group. Support for teen cancers is hard to find..


From: xela56 on 2 Jul 2008 17:12
Try the wellness community

http://virtual.thewellnesscommunity.org/register.php?do=register

Everyone has to have their diagnosis verified by a healthcare provider.


"sheder1" <turtletrot1(a)bellsouth.net> wrote in message
news:83191e23-9c1f-4090-a45d-c7c2c6f1b099(a)x41g2000hsb.googlegroups.com...
On Jul 2, 6:09 am, J <xnswex(a)nalid;"no> > A rare, but usually benign
and slow-growing tumor ?

No, not benign, as I wrote. I have been to various sites. I can
google and wikipedia with the best of them I am looking more for
first hand knowledge/experience. And about someone relatively in her
age group. Support for teen cancers is hard to find..


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