From: George Parton on
Hi all,
I haven't been here for a while so I thought I should check in for an
update. I celebrated a birthday yesterday so I feel thankful the
dastardly lupus has been thwarted for another year.
I have provided the link below which is a good explanation of the new
(chemo type) therapy I am getting. It is called Retuxin therapy. I have
had 3 infusions with one more to go. My Rheumy doctor is enthusiastic
as am I. I will try to come back with results after I have completed
the series.
This therapy holds great promise and I hope it may be of benefit to
others here.
George Parton

http://www.hon.ch/News/HSN/511214.html

From: Mo on

George Parton wrote:
> Hi all,
> I haven't been here for a while so I thought I should check in for an
> update. I celebrated a birthday yesterday so I feel thankful the
> dastardly lupus has been thwarted for another year.
> I have provided the link below which is a good explanation of the new
> (chemo type) therapy I am getting. It is called Retuxin therapy. I have
> had 3 infusions with one more to go. My Rheumy doctor is enthusiastic
> as am I. I will try to come back with results after I have completed
> the series.
> This therapy holds great promise and I hope it may be of benefit to
> others here.
> George Parton
>
> http://www.hon.ch/News/HSN/511214.html

From: Mo on
Hi George,
Good to hear that it is working for you. I went to the link you added.
So, this therapy is high doses of cyclophosphomide? How's the after
effects? When I was getting the high dose IV treatments I was REALLY
ill for about 3 days.
Mo

From: BJ on
Hi George,
I am a little late, but Happy Birthday to you. I hope you had a really nice
day. Retuxin is used for people who have thrombocytopenia. Doctors seem to
turn to that, if the platelets do not respond to prednisone and IVIG. I did
not realize that it was used for other lupus related problems. Are you on
pred as well? I will be interested to hear how it works for you long term.
My platelets have taken a downturn and I have thought of requesting Retuxin,
if I need treatment again. Good luck with this and keep us posted.
BJ-Sk. Canada
"George Parton" <gparton1(a)cox.net> wrote in message
news:432AF648.5080503(a)cox.net...
> Hi all,
> I haven't been here for a while so I thought I should check in for an
> update. I celebrated a birthday yesterday so I feel thankful the
> dastardly lupus has been thwarted for another year.
> I have provided the link below which is a good explanation of the new
> (chemo type) therapy I am getting. It is called Retuxin therapy. I have
> had 3 infusions with one more to go. My Rheumy doctor is enthusiastic
> as am I. I will try to come back with results after I have completed
> the series.
> This therapy holds great promise and I hope it may be of benefit to
> others here.
> George Parton
>
> http://www.hon.ch/News/HSN/511214.html
>


From: Cynthia Ward on
Hi BJ hope your ok miss you think bout you all the time. Have you moved
yet. That can be such an ordeal. Cindy W.

BJ wrote:

>Hi George,
>I am a little late, but Happy Birthday to you. I hope you had a really nice
>day. Retuxin is used for people who have thrombocytopenia. Doctors seem to
>turn to that, if the platelets do not respond to prednisone and IVIG. I did
>not realize that it was used for other lupus related problems. Are you on
>pred as well? I will be interested to hear how it works for you long term.
>My platelets have taken a downturn and I have thought of requesting Retuxin,
>if I need treatment again. Good luck with this and keep us posted.
>BJ-Sk. Canada
>"George Parton" <gparton1(a)cox.net> wrote in message
>news:432AF648.5080503(a)cox.net...
>
>
>>Hi all,
>>I haven't been here for a while so I thought I should check in for an
>>update. I celebrated a birthday yesterday so I feel thankful the
>>dastardly lupus has been thwarted for another year.
>>I have provided the link below which is a good explanation of the new
>>(chemo type) therapy I am getting. It is called Retuxin therapy. I have
>>had 3 infusions with one more to go. My Rheumy doctor is enthusiastic
>>as am I. I will try to come back with results after I have completed
>>the series.
>>This therapy holds great promise and I hope it may be of benefit to
>>others here.
>>George Parton
>>
>>http://www.hon.ch/News/HSN/511214.html
>>
>>
>>
>
>
>
>

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