Remicade and Crohn's
in [Colitis]
|
From: Musashi on 26 Oct 2005 09:10 I was on Remicade for about 6 months and all was going well. I wasn't finding any side-effect or anything. Only that my immune system was right down, and I had to be very careful not to keep catching colds and bugs etc. Anyway, my last infusion (June this year) ended me up in hospital. The next day I got a blockage from scar tissue. Remicade is known to sometime cause this, as it makes the healing process happen to quick, it leave scar tissue behind. Luckily, the blockage managed to open up with steroids and antibiotics and not eating for about 5 days. I can't ever go back on Remicade because of this reaction. Wouldn't want it to happen again. I was warned by my physician about this possibility before I started on the infusions. And it had to happen to me lol! My physician doesn't understand why everything that could go wrong, happens to me. But that's besides the point. Musashi "Mike G" <mgoony(a)one.net> wrote in message news:11lqqvodrntm749(a)corp.supernews.com... >I have had Crohn's for 20 years and my Dr. has been trying to get me on >Remicade for the last 5 years but I got pregnant twice and so he never was >able to do it. I have my first infusion scheduled for Thursday morning and >I am concerned about the possible side effects of it. My disease is pretty >much in remission (thanks to Imuran)and now I just get periodic blockages >which I treat with prednisone. I am tired of going on and off the >Prednisone and it's side effects. I also have a small fistula. Overall I am >in pretty good health. > > Can anyone tell me about their experiences with Remicade? I am also > concerned about the cost. My company just switched insurances so I am back > to square one with deductibles (luckily they give us until 1/1/07 for your > deductibles to turn over. ) > > Also, I used to stop in to this newsgroup fairly regularly about 5 years > ago and it's nice to see some of the reguars are still here. Thanks to 2 > job changes I now have time to stop back in. > > Thanks for your help, > > Mickey
From: jitow on 26 Oct 2005 10:22 You got a blockage from scar tissue related to Remicade infusions? I wonder if this happened to me as it wasnt long after the infusions that I had to have more surgery. Does the info say anything about this? Lots to consider here. Thanks :)
From: Musashi on 26 Oct 2005 13:12 Yeah I did. It was one or two days after my last infusion. I was warned by my specialist before starting on Remicade that this is a complication that could happen with Remicade. How I heard it was that it heals so fast that it makes scar tissue and that scar tissue builds up to case a blockage. I don't know if this info can be found anywhere, I'm just going by what I was told by the specialist and what actually happened. Musashi "jitow" <jitow04(a)yahoo.com> wrote in message news:1130336539.622861.149330(a)o13g2000cwo.googlegroups.com... > You got a blockage from scar tissue related to Remicade infusions? I > wonder if this happened to me as it wasnt long after the infusions that > I had to have more surgery. Does the info say anything about this? Lots > to consider here. Thanks :) >
From: Mickey on 26 Oct 2005 14:18 Okay I have decided to hold off on the infusions until I am sicker (hopefully never!) I just spoke with my dr. and he is okay with this considering that I am pretty healthy right now and really anxious about it. We are going to up the Imuran a little for now. Thanks for all your help, Mickey
From: mgbio on 26 Oct 2005 23:22
Hi Mickey, When I was having fistulas, my GI used Remicade frequently with me with a great deal of success in treating those fistulas. I was fortunate to not have any allergic reactions. No one really knows about long term side effects as the drug is too new, it was only approved for use in the Fall of '98. The reason we stopped using Remicade was the GI raised my 6MP dosage and my fistulizing CD is mostly in remission. It it weren't, I'm sure we would still be using it. The one thing I would advise is to insist that you receive your infusion in a hospital setting and not an infusion center or by home health care. I say this because allergic reactions are still unpredictable and a hospital is the safest setting should you suddenly develop complications, and they usually happen pretty quickly. Good luck! :) mgbio Mike G wrote: > I have had Crohn's for 20 years and my Dr. has been trying to get me on > Remicade for the last 5 years but I got pregnant twice and so he never > was able to do it. I have my first infusion scheduled for Thursday > morning and I am concerned about the possible side effects of it. My > disease is pretty much in remission (thanks to Imuran)and now I just get > periodic blockages which I treat with prednisone. I am tired of going on > and off the Prednisone and it's side effects. I also have a small > fistula. Overall I am in pretty good health. > > Can anyone tell me about their experiences with Remicade? I am also > concerned about the cost. My company just switched insurances so I am > back to square one with deductibles (luckily they give us until 1/1/07 > for your deductibles to turn over. ) > > Also, I used to stop in to this newsgroup fairly regularly about 5 years > ago and it's nice to see some of the reguars are still here. Thanks to > 2 job changes I now have time to stop back in. > > Thanks for your help, > > Mickey |