Prev: Iron Induced Injury
Next: Clinical Trials at Rush U in Chicago.
From: Rufus on 22 Jul 2008 15:28
Yeah - "gut feeling" be your guide...I agree. I usually let something
bother me twice, and then I eliminate it. I'm very fortunate and
haven't had to eliminate much from my diet other than acidic foods like
tomatoes and citrus fruits/drinks. I take 500 mg daily of vitamin C,
and that's working just fine - my gums get sensitive if I miss a dose or
two. And I've developed a taste for green tea that I hadn't had
previously. I have to watch it with the honey...I like tea with honey,
but I try to limit myself with sugars.

I've been on Protonix for a little over a year and a half, and now I
have no reflux problem at all. My gastro at UCLA had once suggested I
wean off of Protonix, but when I asked about that last month he eschewed
the idea and wrote me for another years worth of it. I think I'd like
to try and come off it if I can, though. Eventually. But I also think
that the combination of Protonix and Colazal together are benefiting me.

I've been trying to eat more seafood when I can, but when you live in
the middle of the Mojave desert eating seafood can be pretty risky...we
have a fair sushi place in town that I'd been enjoying, but the last two
times I went there I got sick to my stomach after/during the meal...the
first time I think I got some bad clams, and this last time I wasn't
even eating anything with fish in it - just rice and chicken. I don't
think sushi has any MSG in it in general, does it? I do have issues
with MSG...

I also tend to avoid things with bubbles - like sodas and/or beer. I
really wanted a beer last Friday night for the first time on the last
three years, and can tolerate it, but I just wouldn't drink one because
I've slipped into a habit of not drinking it. I'm also finding trying
to develop a habit of drinking a glass of red wine every other day about
as hard as breaking my habit of only eating two meals per day...I'm
probably back down to about 175 lbs now from the 180 lbs that looked
pretty good on me...even though 180 is the heaviest I've ever been in my
life.

I need exercise too - most of what I get is just doing a lot of walking
at work and riding my Harley. I still have the thera-bands from my
doing physical therapy for my shoulder, and I may try and get back into
a routine with them. It's good muscle toning exercise, if not really a
cardio workout. My biggest physical complaints are fatigue - which I'm
more and more convinced is because the meds are interrupting my sleep
pattern - and that I sometimes feel unsure on my feet at a stop on my
motorcycle. I won't ride with a passenger anymore because of that...at
least I haven't tried.

Other than that, I've felt really good since Sunday and generally good
for the last few months since I was last scoped. Whatever I'm doing is
working well for me, and has been for some time now. I also noticed
that Rush U hospital is also conducting another trial to evaluate
efficacy of alternative mind/body practices in decreasing flare
frequency for both UC and Crohn's. I would mind participating in that
one...but I haven't really been "practicing" anything alternative - like
meditation, yoga, or acupuncture, and they want people that include or
have included some form of practice in their lives. But I do firmly
believe in mind/body connection - like with "gut feeling".

--
- Rufus

Vanny wrote:
> I am a great believer in gut feeling. Prior to diagnosis of my Crohn's my
> diet had changed to virtually no vegetables except for potatoes and I had
> thrown in a daily vitamin tablet for good measure.
>
> I forgot the PPIs. I am on Omeprazole. Unfortunately, I can't drink alcohol
> because my stomach starts burning - red wine is particularly rough on my
> stomach. If your reflux symptoms increase then you will most likely have to
> stop the red wine.
>
> The best thing to unclog arteries (assuming that they are not too far gone
> in which case a dangerous unclogging operation will be necessary) is lots of
> exercise and a really good mediteranean diet with lots of fish and salads
> (!!) with either flaxseed oil or walnut oil dressing (these oils must be
> stored in the fridge and not used for cooking). Basically, low saturated
> fats, low sugar and no fast food. The body can make its own fat from sugars
> and even protein. This diet should probably be started at about age 2 for
> life-long healthiness.
>
> I was at my cardiologists recently and he diagnosed some artherosclerosis on
> the tricuspidal, mitral and aorta valves. However, this can be explained by
> the damage caused by carditis in the early 1990s and the resulting damage to
> the valves serving as a good site for circulating cholesterol and other fats
> and proteins to latch onto and settle down to eventually build up a bigger
> clot, which breaks away and either clogs up the head (stroke) or heart or
> lungs, etc. I am removing high saturated fat foods, e.g., butter and cream
> etc. from my diet to address this, but my biggest problem is not being able
> to do any sport because of the short bowel syndrome.
>
> Vanny
>
> "Rufus" <not(a)home.com> schrieb im Newsbeitrag
> news:R15hk.209095$TT4.165296(a)attbi_s22...
>> ...I must have instinct, or intuition, or common sense, or something...I'm
>> on a 5-ASA and Protonix only...but I'll double check about Protonix.
>>
>> I've recently set myself a goal to drink a bottle a week, though I seem to
>> actually be drinking a bottle every other week. I'll generally open a
>> bottle for Sunday dinner, drink a single glass then, and then every other
>> night with dinner until the bottle is gone (so one bottle lasts about a
>> week, depending on which size wine glass I use) - and never without an
>> accompanying glass of cold water.
>>
>> I used to really like red wine with dinner, but have lost my taste for
>> alcohol in general over the past few years/changes. I'm only
>> rediscovering it because of my doc's recommendation...LOL.
>>
>> --
>> - Rufus
>>
>> Vanny wrote:
>>> Red wine contains polyphenols (most plants have these) that are indicated
>>> to be life giving and also clear the arteries somewhat. IBD patients are
>>> prone to thrombosis (blood clotting, e.g. pulmonary thrombosis, ischaemic
>>> stroke, ischaemic heart attack, deep vein thrombosis) and light intake
>>> (one glass every other evening) of red wine may help prevent this.
>>> http://circ.ahajournals.org/cgi/content/full/111/2/e10
>>>
>>> However, dehydration is a major cause of thrombosis in IBD patients and
>>> the diuretic effect of the alcohol in the red wine may actually
>>> counteract the positive effects of the phenolic compounds and thus
>>> facilitate clot formation. In addition, if you are on steroids,
>>> chemotherapy (Azathioprine aka Imuran, 6-MP aka Purinethol, Methotrexate,
>>> etc.), alcohol is contraindicated.
>>>
>>> If you drink alcohol as an IBD patient and with an OK from your doctor, I
>>> recommend drinking a big glass of water to every unit of alcohol.
>>>
>>> "Avoid drinking alcohol while you are taking prednisolone."
>>> http://www.drugs.com/mtm/prednisolone.html
>>>
>>> "Avoid alcoholic beverages until you have discussed their use with your
>>> doctor . Alcohol may increase the harmful effects of this medicine."
>>> http://www.drugs.com/cons/purinethol.html
>>>
>>> Those on 5-ASAs only are not restricted with respect to light to moderate
>>> alcohol intake, depending on their overall state of health and any liver
>>> problems.
>>>
>>> More side-effects and drug interactions of medication can be found at
>>> www.drugs.com and www.rxlist.com
>>>
>>> Vanny
>>>
>>>
>>>
>>>
>>> "Rufus" <not(a)home.com> schrieb im Newsbeitrag
>>> news:luTgk.262847$yE1.56179(a)attbi_s21...
>>>> I just finished a glass, and I'm curious...my mother mentioned seeing
>>>> something about drinking red wine being helpful for IBD a few weeks ago,
>>>> and I recall my doc telling me once that I could feel free to drink all
>>>> the red wine I wanted...
>>>>
>>>> I Googled and couldn't find anything definitive - anyone got any
>>>> pointers on the subject?
>>>>
>>>> I did find this, however -
>>>>
>>>> http://www.rush.edu/rumc/page-1175113022209.html
>>>>
>>>> Being originally from the area and fitting the basic requirements, I'd
>>>> participate if I could...out of taste and curiosity if nothing else...
>>>>
>>>> --
>>>> - Rufus
>
From: Vanny on 23 Jul 2008 05:39
I believe that the PPIs have been shown to be effective in the treatment of
upper GI Crohn's in addition to increasing general well-being in IBD
patients with colitis. So, I think that there is something in the more
alkaline diet that is better for us. The thing to remember with PPIs is that
long-term use can lead to depletion of vitamin B12 stores in the liver and
elsewhere, and eventually can lead to symptoms of deficiency - sore tongue,
ulceration, tiredness, etc. Malnutrition and/or certain vitamin and mineral
deficiencies can also lead to sleep disorders/insomnia.
http://ods.od.nih.gov/Health_information/Vitamin_and_Mineral_Supplement_Fact_Sheets.aspx

A Japanese guy discovered the flavour enhancing properties of
monosodiumglutamate around 1906, but I don't believe that they would put it
in sushi. I make my own sushi with avocado and smoked salmon at home and
then I know what is in it. Unfortunately, I have to be careful because the
sugar and vinegar in the rice plus the smoked fish exacerbates my GERD. I
don't use wasanabe/horseradish sauce

I need daily vitamin C too and, like yourself, I don't do bubbles. If your
red-wine habit is making you feel better, or not making you feel worse, then
I would stick to it.

A couple of my suggestions for the tiredness would be to take at least a
vitamin B complex sublingual tablet, you could also look into Forvia
http://www.forvia.com/cgi-bin/forvia2.storefront. Research into sleep
hygiene http://www.google.de/search?hl=de&q=sleep+hygiene&meta= . I suspect
that you are already having your bloods checked at a regular interval to
keep an eye on the inflammatory parameters. Lots of sport is always a good
idea as is lots of rest. I have difficulties with knowing my energy limits
and I push myself until I almost drop. This is a mistake, but I know as soon
as I sit down that I won't be able to get back up again, so I still do it
and make myself unhappy in the process. It is, however, the only way that I
can bring tasks to completion. I am fed up of tripping up over the vacuum
cleaner placed strategically in the middle of a room for weeks at a time
because I didn't have the strength to finish the vacuum cleaning project. A
couple of female friends come and help me about once a month/every couple of
months and I am too proud to ask for more help, but I also think that I must
keep moving and light housework is the most sport I can do at present. I
actually stopped driving around 7 years ago because of tiredness/exhaustion
and inability to concentrate. I have not ridden a motorbike since 1993. I
wouldn't be safe on the roads - pumped full of Opium and as tired as I am.

Vanny

"Rufus" <not(a)home.com> schrieb im Newsbeitrag
news:8xqhk.265218$yE1.44479(a)attbi_s21...
> Yeah - "gut feeling" be your guide...I agree. I usually let something
> bother me twice, and then I eliminate it. I'm very fortunate and haven't
> had to eliminate much from my diet other than acidic foods like tomatoes
> and citrus fruits/drinks. I take 500 mg daily of vitamin C, and that's
> working just fine - my gums get sensitive if I miss a dose or two. And
> I've developed a taste for green tea that I hadn't had previously. I have
> to watch it with the honey...I like tea with honey, but I try to limit
> myself with sugars.
>
> I've been on Protonix for a little over a year and a half, and now I have
> no reflux problem at all. My gastro at UCLA had once suggested I wean off
> of Protonix, but when I asked about that last month he eschewed the idea
> and wrote me for another years worth of it. I think I'd like to try and
> come off it if I can, though. Eventually. But I also think that the
> combination of Protonix and Colazal together are benefiting me.
>
> I've been trying to eat more seafood when I can, but when you live in the
> middle of the Mojave desert eating seafood can be pretty risky...we have a
> fair sushi place in town that I'd been enjoying, but the last two times I
> went there I got sick to my stomach after/during the meal...the first time
> I think I got some bad clams, and this last time I wasn't even eating
> anything with fish in it - just rice and chicken. I don't think sushi has
> any MSG in it in general, does it? I do have issues with MSG...
>
> I also tend to avoid things with bubbles - like sodas and/or beer. I
> really wanted a beer last Friday night for the first time on the last
> three years, and can tolerate it, but I just wouldn't drink one because
> I've slipped into a habit of not drinking it. I'm also finding trying to
> develop a habit of drinking a glass of red wine every other day about as
> hard as breaking my habit of only eating two meals per day...I'm probably
> back down to about 175 lbs now from the 180 lbs that looked pretty good on
> me...even though 180 is the heaviest I've ever been in my life.
>
> I need exercise too - most of what I get is just doing a lot of walking at
> work and riding my Harley. I still have the thera-bands from my doing
> physical therapy for my shoulder, and I may try and get back into a
> routine with them. It's good muscle toning exercise, if not really a
> cardio workout. My biggest physical complaints are fatigue - which I'm
> more and more convinced is because the meds are interrupting my sleep
> pattern - and that I sometimes feel unsure on my feet at a stop on my
> motorcycle. I won't ride with a passenger anymore because of that...at
> least I haven't tried.
>
> Other than that, I've felt really good since Sunday and generally good for
> the last few months since I was last scoped. Whatever I'm doing is
> working well for me, and has been for some time now. I also noticed that
> Rush U hospital is also conducting another trial to evaluate efficacy of
> alternative mind/body practices in decreasing flare frequency for both UC
> and Crohn's. I would mind participating in that one...but I haven't
> really been "practicing" anything alternative - like meditation, yoga, or
> acupuncture, and they want people that include or have included some form
> of practice in their lives. But I do firmly believe in mind/body
> connection - like with "gut feeling".
>
> --
> - Rufus
>
> Vanny wrote:
>> I am a great believer in gut feeling. Prior to diagnosis of my Crohn's my
>> diet had changed to virtually no vegetables except for potatoes and I had
>> thrown in a daily vitamin tablet for good measure.
>>
>> I forgot the PPIs. I am on Omeprazole. Unfortunately, I can't drink
>> alcohol because my stomach starts burning - red wine is particularly
>> rough on my stomach. If your reflux symptoms increase then you will most
>> likely have to stop the red wine.
>>
>> The best thing to unclog arteries (assuming that they are not too far
>> gone in which case a dangerous unclogging operation will be necessary) is
>> lots of exercise and a really good mediteranean diet with lots of fish
>> and salads (!!) with either flaxseed oil or walnut oil dressing (these
>> oils must be stored in the fridge and not used for cooking). Basically,
>> low saturated fats, low sugar and no fast food. The body can make its own
>> fat from sugars and even protein. This diet should probably be started at
>> about age 2 for life-long healthiness.
>>
>> I was at my cardiologists recently and he diagnosed some artherosclerosis
>> on the tricuspidal, mitral and aorta valves. However, this can be
>> explained by the damage caused by carditis in the early 1990s and the
>> resulting damage to the valves serving as a good site for circulating
>> cholesterol and other fats and proteins to latch onto and settle down to
>> eventually build up a bigger clot, which breaks away and either clogs up
>> the head (stroke) or heart or lungs, etc. I am removing high saturated
>> fat foods, e.g., butter and cream etc. from my diet to address this, but
>> my biggest problem is not being able to do any sport because of the short
>> bowel syndrome.
>>
>> Vanny
>>
>> "Rufus" <not(a)home.com> schrieb im Newsbeitrag
>> news:R15hk.209095$TT4.165296(a)attbi_s22...
>>> ...I must have instinct, or intuition, or common sense, or
>>> something...I'm on a 5-ASA and Protonix only...but I'll double check
>>> about Protonix.
>>>
>>> I've recently set myself a goal to drink a bottle a week, though I seem
>>> to actually be drinking a bottle every other week. I'll generally open
>>> a bottle for Sunday dinner, drink a single glass then, and then every
>>> other night with dinner until the bottle is gone (so one bottle lasts
>>> about a week, depending on which size wine glass I use) - and never
>>> without an accompanying glass of cold water.
>>>
>>> I used to really like red wine with dinner, but have lost my taste for
>>> alcohol in general over the past few years/changes. I'm only
>>> rediscovering it because of my doc's recommendation...LOL.
>>>
>>> --
>>> - Rufus
>>>
>>> Vanny wrote:
>>>> Red wine contains polyphenols (most plants have these) that are
>>>> indicated to be life giving and also clear the arteries somewhat. IBD
>>>> patients are prone to thrombosis (blood clotting, e.g. pulmonary
>>>> thrombosis, ischaemic stroke, ischaemic heart attack, deep vein
>>>> thrombosis) and light intake (one glass every other evening) of red
>>>> wine may help prevent this.
>>>> http://circ.ahajournals.org/cgi/content/full/111/2/e10
>>>>
>>>> However, dehydration is a major cause of thrombosis in IBD patients and
>>>> the diuretic effect of the alcohol in the red wine may actually
>>>> counteract the positive effects of the phenolic compounds and thus
>>>> facilitate clot formation. In addition, if you are on steroids,
>>>> chemotherapy (Azathioprine aka Imuran, 6-MP aka Purinethol,
>>>> Methotrexate, etc.), alcohol is contraindicated.
>>>>
>>>> If you drink alcohol as an IBD patient and with an OK from your doctor,
>>>> I recommend drinking a big glass of water to every unit of alcohol.
>>>>
>>>> "Avoid drinking alcohol while you are taking prednisolone."
>>>> http://www.drugs.com/mtm/prednisolone.html
>>>>
>>>> "Avoid alcoholic beverages until you have discussed their use with your
>>>> doctor . Alcohol may increase the harmful effects of this medicine."
>>>> http://www.drugs.com/cons/purinethol.html
>>>>
>>>> Those on 5-ASAs only are not restricted with respect to light to
>>>> moderate alcohol intake, depending on their overall state of health and
>>>> any liver problems.
>>>>
>>>> More side-effects and drug interactions of medication can be found at
>>>> www.drugs.com and www.rxlist.com
>>>>
>>>> Vanny
>>>>
>>>>
>>>>
>>>>
>>>> "Rufus" <not(a)home.com> schrieb im Newsbeitrag
>>>> news:luTgk.262847$yE1.56179(a)attbi_s21...
>>>>> I just finished a glass, and I'm curious...my mother mentioned seeing
>>>>> something about drinking red wine being helpful for IBD a few weeks
>>>>> ago, and I recall my doc telling me once that I could feel free to
>>>>> drink all the red wine I wanted...
>>>>>
>>>>> I Googled and couldn't find anything definitive - anyone got any
>>>>> pointers on the subject?
>>>>>
>>>>> I did find this, however -
>>>>>
>>>>> http://www.rush.edu/rumc/page-1175113022209.html
>>>>>
>>>>> Being originally from the area and fitting the basic requirements, I'd
>>>>> participate if I could...out of taste and curiosity if nothing else...
>>>>>
>>>>> --
>>>>> - Rufus
>>


From: anon on 23 Jul 2008 19:43
You really need to stop dispensing medical advice to people you have never
examined. Even a doctor would not presume to do this--and you are not a
doctor.


"Vanny" <Vannyss2003(a)antispam.com> wrote in message
news:g66u8o$ipf$1(a)newsreader2.netcologne.de...
>I believe that the PPIs have been shown to be effective in the treatment of
>upper GI Crohn's in addition to increasing general well-being in IBD
>patients with colitis. So, I think that there is something in the more
>alkaline diet that is better for us. The thing to remember with PPIs is
>that long-term use can lead to depletion of vitamin B12 stores in the liver
>and elsewhere, and eventually can lead to symptoms of deficiency - sore
>tongue, ulceration, tiredness, etc. Malnutrition and/or certain vitamin and
>mineral deficiencies can also lead to sleep disorders/insomnia.
>http://ods.od.nih.gov/Health_information/Vitamin_and_Mineral_Supplement_Fact_Sheets.aspx
>
> A Japanese guy discovered the flavour enhancing properties of
> monosodiumglutamate around 1906, but I don't believe that they would put
> it in sushi. I make my own sushi with avocado and smoked salmon at home
> and then I know what is in it. Unfortunately, I have to be careful because
> the sugar and vinegar in the rice plus the smoked fish exacerbates my
> GERD. I don't use wasanabe/horseradish sauce
>
> I need daily vitamin C too and, like yourself, I don't do bubbles. If your
> red-wine habit is making you feel better, or not making you feel worse,
> then I would stick to it.
>
> A couple of my suggestions for the tiredness would be to take at least a
> vitamin B complex sublingual tablet, you could also look into Forvia
> http://www.forvia.com/cgi-bin/forvia2.storefront. Research into sleep
> hygiene http://www.google.de/search?hl=de&q=sleep+hygiene&meta= . I
> suspect that you are already having your bloods checked at a regular
> interval to keep an eye on the inflammatory parameters. Lots of sport is
> always a good idea as is lots of rest. I have difficulties with knowing my
> energy limits and I push myself until I almost drop. This is a mistake,
> but I know as soon as I sit down that I won't be able to get back up
> again, so I still do it and make myself unhappy in the process. It is,
> however, the only way that I can bring tasks to completion. I am fed up of
> tripping up over the vacuum cleaner placed strategically in the middle of
> a room for weeks at a time because I didn't have the strength to finish
> the vacuum cleaning project. A couple of female friends come and help me
> about once a month/every couple of months and I am too proud to ask for
> more help, but I also think that I must keep moving and light housework is
> the most sport I can do at present. I actually stopped driving around 7
> years ago because of tiredness/exhaustion and inability to concentrate. I
> have not ridden a motorbike since 1993. I wouldn't be safe on the roads -
> pumped full of Opium and as tired as I am.
>
> Vanny
>
> "Rufus" <not(a)home.com> schrieb im Newsbeitrag
> news:8xqhk.265218$yE1.44479(a)attbi_s21...
>> Yeah - "gut feeling" be your guide...I agree. I usually let something
>> bother me twice, and then I eliminate it. I'm very fortunate and haven't
>> had to eliminate much from my diet other than acidic foods like tomatoes
>> and citrus fruits/drinks. I take 500 mg daily of vitamin C, and that's
>> working just fine - my gums get sensitive if I miss a dose or two. And
>> I've developed a taste for green tea that I hadn't had previously. I
>> have to watch it with the honey...I like tea with honey, but I try to
>> limit myself with sugars.
>>
>> I've been on Protonix for a little over a year and a half, and now I have
>> no reflux problem at all. My gastro at UCLA had once suggested I wean
>> off of Protonix, but when I asked about that last month he eschewed the
>> idea and wrote me for another years worth of it. I think I'd like to try
>> and come off it if I can, though. Eventually. But I also think that the
>> combination of Protonix and Colazal together are benefiting me.
>>
>> I've been trying to eat more seafood when I can, but when you live in the
>> middle of the Mojave desert eating seafood can be pretty risky...we have
>> a fair sushi place in town that I'd been enjoying, but the last two times
>> I went there I got sick to my stomach after/during the meal...the first
>> time I think I got some bad clams, and this last time I wasn't even
>> eating anything with fish in it - just rice and chicken. I don't think
>> sushi has any MSG in it in general, does it? I do have issues with
>> MSG...
>>
>> I also tend to avoid things with bubbles - like sodas and/or beer. I
>> really wanted a beer last Friday night for the first time on the last
>> three years, and can tolerate it, but I just wouldn't drink one because
>> I've slipped into a habit of not drinking it. I'm also finding trying to
>> develop a habit of drinking a glass of red wine every other day about as
>> hard as breaking my habit of only eating two meals per day...I'm probably
>> back down to about 175 lbs now from the 180 lbs that looked pretty good
>> on me...even though 180 is the heaviest I've ever been in my life.
>>
>> I need exercise too - most of what I get is just doing a lot of walking
>> at work and riding my Harley. I still have the thera-bands from my doing
>> physical therapy for my shoulder, and I may try and get back into a
>> routine with them. It's good muscle toning exercise, if not really a
>> cardio workout. My biggest physical complaints are fatigue - which I'm
>> more and more convinced is because the meds are interrupting my sleep
>> pattern - and that I sometimes feel unsure on my feet at a stop on my
>> motorcycle. I won't ride with a passenger anymore because of that...at
>> least I haven't tried.
>>
>> Other than that, I've felt really good since Sunday and generally good
>> for the last few months since I was last scoped. Whatever I'm doing is
>> working well for me, and has been for some time now. I also noticed that
>> Rush U hospital is also conducting another trial to evaluate efficacy of
>> alternative mind/body practices in decreasing flare frequency for both UC
>> and Crohn's. I would mind participating in that one...but I haven't
>> really been "practicing" anything alternative - like meditation, yoga, or
>> acupuncture, and they want people that include or have included some form
>> of practice in their lives. But I do firmly believe in mind/body
>> connection - like with "gut feeling".
>>
>> --
>> - Rufus
>>
>> Vanny wrote:
>>> I am a great believer in gut feeling. Prior to diagnosis of my Crohn's
>>> my diet had changed to virtually no vegetables except for potatoes and I
>>> had thrown in a daily vitamin tablet for good measure.
>>>
>>> I forgot the PPIs. I am on Omeprazole. Unfortunately, I can't drink
>>> alcohol because my stomach starts burning - red wine is particularly
>>> rough on my stomach. If your reflux symptoms increase then you will most
>>> likely have to stop the red wine.
>>>
>>> The best thing to unclog arteries (assuming that they are not too far
>>> gone in which case a dangerous unclogging operation will be necessary)
>>> is lots of exercise and a really good mediteranean diet with lots of
>>> fish and salads (!!) with either flaxseed oil or walnut oil dressing
>>> (these oils must be stored in the fridge and not used for cooking).
>>> Basically, low saturated fats, low sugar and no fast food. The body can
>>> make its own fat from sugars and even protein. This diet should probably
>>> be started at about age 2 for life-long healthiness.
>>>
>>> I was at my cardiologists recently and he diagnosed some
>>> artherosclerosis on the tricuspidal, mitral and aorta valves. However,
>>> this can be explained by the damage caused by carditis in the early
>>> 1990s and the resulting damage to the valves serving as a good site for
>>> circulating cholesterol and other fats and proteins to latch onto and
>>> settle down to eventually build up a bigger clot, which breaks away and
>>> either clogs up the head (stroke) or heart or lungs, etc. I am removing
>>> high saturated fat foods, e.g., butter and cream etc. from my diet to
>>> address this, but my biggest problem is not being able to do any sport
>>> because of the short bowel syndrome.
>>>
>>> Vanny
>>>
>>> "Rufus" <not(a)home.com> schrieb im Newsbeitrag
>>> news:R15hk.209095$TT4.165296(a)attbi_s22...
>>>> ...I must have instinct, or intuition, or common sense, or
>>>> something...I'm on a 5-ASA and Protonix only...but I'll double check
>>>> about Protonix.
>>>>
>>>> I've recently set myself a goal to drink a bottle a week, though I seem
>>>> to actually be drinking a bottle every other week. I'll generally open
>>>> a bottle for Sunday dinner, drink a single glass then, and then every
>>>> other night with dinner until the bottle is gone (so one bottle lasts
>>>> about a week, depending on which size wine glass I use) - and never
>>>> without an accompanying glass of cold water.
>>>>
>>>> I used to really like red wine with dinner, but have lost my taste for
>>>> alcohol in general over the past few years/changes. I'm only
>>>> rediscovering it because of my doc's recommendation...LOL.
>>>>
>>>> --
>>>> - Rufus
>>>>
>>>> Vanny wrote:
>>>>> Red wine contains polyphenols (most plants have these) that are
>>>>> indicated to be life giving and also clear the arteries somewhat. IBD
>>>>> patients are prone to thrombosis (blood clotting, e.g. pulmonary
>>>>> thrombosis, ischaemic stroke, ischaemic heart attack, deep vein
>>>>> thrombosis) and light intake (one glass every other evening) of red
>>>>> wine may help prevent this.
>>>>> http://circ.ahajournals.org/cgi/content/full/111/2/e10
>>>>>
>>>>> However, dehydration is a major cause of thrombosis in IBD patients
>>>>> and the diuretic effect of the alcohol in the red wine may actually
>>>>> counteract the positive effects of the phenolic compounds and thus
>>>>> facilitate clot formation. In addition, if you are on steroids,
>>>>> chemotherapy (Azathioprine aka Imuran, 6-MP aka Purinethol,
>>>>> Methotrexate, etc.), alcohol is contraindicated.
>>>>>
>>>>> If you drink alcohol as an IBD patient and with an OK from your
>>>>> doctor, I recommend drinking a big glass of water to every unit of
>>>>> alcohol.
>>>>>
>>>>> "Avoid drinking alcohol while you are taking prednisolone."
>>>>> http://www.drugs.com/mtm/prednisolone.html
>>>>>
>>>>> "Avoid alcoholic beverages until you have discussed their use with
>>>>> your doctor . Alcohol may increase the harmful effects of this
>>>>> medicine." http://www.drugs.com/cons/purinethol.html
>>>>>
>>>>> Those on 5-ASAs only are not restricted with respect to light to
>>>>> moderate alcohol intake, depending on their overall state of health
>>>>> and any liver problems.
>>>>>
>>>>> More side-effects and drug interactions of medication can be found at
>>>>> www.drugs.com and www.rxlist.com
>>>>>
>>>>> Vanny
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> "Rufus" <not(a)home.com> schrieb im Newsbeitrag
>>>>> news:luTgk.262847$yE1.56179(a)attbi_s21...
>>>>>> I just finished a glass, and I'm curious...my mother mentioned seeing
>>>>>> something about drinking red wine being helpful for IBD a few weeks
>>>>>> ago, and I recall my doc telling me once that I could feel free to
>>>>>> drink all the red wine I wanted...
>>>>>>
>>>>>> I Googled and couldn't find anything definitive - anyone got any
>>>>>> pointers on the subject?
>>>>>>
>>>>>> I did find this, however -
>>>>>>
>>>>>> http://www.rush.edu/rumc/page-1175113022209.html
>>>>>>
>>>>>> Being originally from the area and fitting the basic requirements,
>>>>>> I'd participate if I could...out of taste and curiosity if nothing
>>>>>> else...
>>>>>>
>>>>>> --
>>>>>> - Rufus
>>>
>
>


From: Rufus on 24 Jul 2008 15:26
Vanny wrote:
> I believe that the PPIs have been shown to be effective in the treatment of
> upper GI Crohn's in addition to increasing general well-being in IBD
> patients with colitis. So, I think that there is something in the more
> alkaline diet that is better for us. The thing to remember with PPIs is that
> long-term use can lead to depletion of vitamin B12 stores in the liver and
> elsewhere, and eventually can lead to symptoms of deficiency - sore tongue,
> ulceration, tiredness, etc. Malnutrition and/or certain vitamin and mineral
> deficiencies can also lead to sleep disorders/insomnia.
> http://ods.od.nih.gov/Health_information/Vitamin_and_Mineral_Supplement_Fact_Sheets.aspx
>

Yeah...I was re-reading about Protonix on drugs.com and came across
that, and about Protonix also having a small incidence of producing
insomnia, so I could be getting a double whammy from both it and the
mesalamine produced by Colazal. That, and about long term usage
possibly contributing to stomach cancer...I've become a bit concerned of
late about my long-term odds of developing cancer...probably because I
have a cousin that just finished a resection and is about to start chemo
for colon cancer. I had a "gut feeling" about weaning off Protonix, now
I've got another substantiated reason to feel that way...or to find an
alternative PPI. Problem is that it works so well...

> A Japanese guy discovered the flavour enhancing properties of
> monosodiumglutamate around 1906, but I don't believe that they would put it
> in sushi. I make my own sushi with avocado and smoked salmon at home and
> then I know what is in it. Unfortunately, I have to be careful because the
> sugar and vinegar in the rice plus the smoked fish exacerbates my GERD. I
> don't use wasanabe/horseradish sauce
>

I love wassabi...but I don't go out for sushi enough to get a steady
intake of it. I do very well with spicy foods, but not acidic ones -
I've learned to substitute things like dill pickles or yellow peppers
for my former tomato tastes, and that's working quite well. Wish I was
closer to water and could get decent and more trustworthy seafood.

> I need daily vitamin C too and, like yourself, I don't do bubbles. If your
> red-wine habit is making you feel better, or not making you feel worse, then
> I would stick to it.
>

I'm going to try - a glass every other night seems reasonable, even if I
have to actually work to remember to drink that glass. I'm finding that
a single glass is enough to act as a nice sleep aid...I wake up much
more refreshed the day after a "red wine night". And my gut has been
notably more settled over the last couple days - I don't know if that's
a real or analgesic effect, though.

> A couple of my suggestions for the tiredness would be to take at least a
> vitamin B complex sublingual tablet, you could also look into Forvia
> http://www.forvia.com/cgi-bin/forvia2.storefront. Research into sleep
> hygiene http://www.google.de/search?hl=de&q=sleep+hygiene&meta= . I suspect
> that you are already having your bloods checked at a regular interval to
> keep an eye on the inflammatory parameters. Lots of sport is always a good
> idea as is lots of rest. I have difficulties with knowing my energy limits
> and I push myself until I almost drop. This is a mistake, but I know as soon
> as I sit down that I won't be able to get back up again, so I still do it
> and make myself unhappy in the process. It is, however, the only way that I
> can bring tasks to completion. I am fed up of tripping up over the vacuum
> cleaner placed strategically in the middle of a room for weeks at a time
> because I didn't have the strength to finish the vacuum cleaning project. A
> couple of female friends come and help me about once a month/every couple of
> months and I am too proud to ask for more help, but I also think that I must
> keep moving and light housework is the most sport I can do at present. I
> actually stopped driving around 7 years ago because of tiredness/exhaustion
> and inability to concentrate. I have not ridden a motorbike since 1993. I
> wouldn't be safe on the roads - pumped full of Opium and as tired as I am.
>
> Vanny
>

My worst time is really in the mornings - the hardest thing I do all day
is just to get myself started in the am. But once I do get on my feet
I'm generally up and alert...just body weary.

As for B-12, I've been watching my blood work and haven't had any
indications of B-12 deficiency. I've read about over-intake of B-12
leading to optic nerve or retinal damage, and as I'm already taking
drops for glaucoma I'm skeptical about taking a B-12 supplement unless
my blood panels indicate an actual deficiency...but I do keep an eye on
that. Vitamin C is the one sup I do take because I've cut out all
citrus for a multiple reasons - I used to drink a lot of lemonade (I
love the stuff) and that probably contributed to my severe flare in '06.
Now I drink green tea, but my favorite ready made one is sweetened
with honey (and ginseng) so I'm moderating it for sugar. I don't mind
drinking unsweetened tea, and do so if I'm out and about.

I try to get as much "incidental exercise" whenever I can - I walk a lot
during my day at work, and I always use the stairs vise the elevator
whenever I can. I can't recall the last time I took an Ultram...there
have been a couple of times in the last few months that I was tempted
because I was spasming, but I didn't and just "gutted" it out; I have an
aversion to taking any drug at all - even my Colazal...but I know I have
to take what I do, so I do. I think the red wine is calming my spasms
too, but again I can't really say if it's calming or masking because I'm
so de-sensitized to the spasms because I've had them for so long...for
years before I got knocked off my feet by Crohn's I just ignored them.

--
- Rufus
From: Rufus on 27 Jul 2008 18:16
anon wrote:
> "Vanny" wrote:
> IBD patients are prone to thrombosis (blood clotting, e.g. pulmonary
> thrombosis, ischaemic stroke,
> ischaemic heart attack, deep vein thrombosis) and light intake (one glass
> every other evening) of red wine may help prevent this.
>
> RESPONSE:
> Do you have any documentation to support this statement about IBD patients
> being prone to clotting, thrombosis, etc.?
>
>

http://qjmed.oxfordjournals.org/cgi/content/abstract/90/3/183

--
- Rufus
First  |  Prev  |  Next  |  Last
Pages: 1 2 3
Prev: Iron Induced Injury
Next: Clinical Trials at Rush U in Chicago.