Recipes for people on dialysis
in [Kidney Failure]
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From: Spot on 14 Jun 2005 21:22 I saw the dietician to learn what foods were high in potassium, salt & phosphorus. Then my doctor told me, "Look the diet sucks I know that, I don't expect you to follow it to the tee. I've seen too many people do it and then go off the deep end and splurge and end up in here with high potassium or fluid overload. Instead I would rather you eat a bite of what ever it is you are craving and get it over with. If you are having a chocolate craving have 1 bite of chocolate cake or an Oreo cookie then be sensible and stop. You can eat your normal foods in moderation and watch those things that are high in potassium and you'll do just fine. I did as he instructed and I never found myself in the position of having my potassium too high where I saw many people who did. Celeste "Pete" <nospam(a)hotmail.com> wrote in message news:lgire.5315$yU.200554(a)news20.bellglobal.com... > Personally, I've tried a number of renal/dialysis cookbooks, and to be > honest, there hasn't been too many recipes I've actually liked enough to > keep using them. I just eat normal food, just less of certain things. > > If you don't have access to a renal dietician, the local chapter of the > Kidney Foundation should have some or, at least a list. > > Pierre > >
From: Larry Krzewinski on 14 Jun 2005 21:35 On Wed, 15 Jun 2005 01:22:44 GMT, "Spot" <NoSpamMe(a)verizon.net> wrote: >I saw the dietician to learn what foods were high in potassium, salt & >phosphorus. > >Then my doctor told me, "Look the diet sucks I know that, I don't expect you >to follow it to the tee. I've seen too many people do it and then go off >the deep end and splurge and end up in here with high potassium or fluid >overload. Instead I would rather you eat a bite of what ever it is you are >craving and get it over with. If you are having a chocolate craving have 1 >bite of chocolate cake or an Oreo cookie then be sensible and stop. You can >eat your normal foods in moderation and watch those things that are high in >potassium and you'll do just fine. > >I did as he instructed and I never found myself in the position of having my >potassium too high where I saw many people who did. > >Celeste You know, Celeste, the nephrologist has the option of changing the potassium bath you use in dialysis. If someone seems to be eating too much potassium they can lower the concentration to accommodate. Some nephrologists will do all they can to help you be comfortable while others are real sticklers. One of the most welcome changes at our dialysis unit was when the nephrologists decided to change the sodium modeling and all of a sudden all those effected by severe cramping stopped getting cramps while on the machine.
From: daniel.granot@gmail.com on 15 Jun 2005 10:18 I have to admit that I have trouble sticking to strict diets. I also have trouble keeping away from fluids. I'm so used to having lots of fluids (to help the transplant) that I sometimes have trouble restraining myself. To combat this, I occassionaly buy the drink and imagine myself drinking it (and the feeling) without actually drinking it. Thankfully I don't do this often otherwise I'd be wasting a lot of money. There are a few things that are VERY high in potassium like chocolate and bananas. I keep away from both completely. If I eat out and have a meal that is likely to be high in potassium, I change my diet accordingly leading up to the next dialysis. I've found in the past that if I spend too much time worrying about my diet, then not only do I have greater stress to worry about but that my mind is more frequently on food (or my requirement to eat less) makes me more hungry. This has required a shift to moderating my diet depending on what I eat and when I eat it (relevant to when the next dialysis is).
From: Pete on 15 Jun 2005 17:36 Luckily, I've retained a better than average residual kidney function since I started hemodialysis about 3 years ago, and so I've always been able to eat more phosphorus and more potassium than many other dialysis patients. It's important for people new or approaching dialysis that it's not usually a case of going from 10% kidney function when they usually start you on dialysis, to none all of a sudden. That 10% kidney function may well continue for some time. Because of this, there are really no blanket recommendations with regards to diet. It's an individual thing, and you may find that you can eat a lot more than what you hear about when people talk about dialysis diets. After you actually start dialysis, you can usually but cautiously and sensibly experiment a little, on days preceding the monthly blood work. Eventually, you get to know what you can and can't tolerate as far as foods go. Pierre P.S. I do my own hemodialysis at home now, 6 days a week, and I can eat almost a normal diet. If that's important to you, you could always see if daily home hemo is available where you live. I'm not saying it's for everybody, but it could be one of the options open to you.
From: Larry Krzewinski on 15 Jun 2005 19:01
On Wed, 15 Jun 2005 17:36:16 -0400, "Pete" <nospam(a)hotmail.com> wrote: >Luckily, I've retained a better than average residual kidney function since >I started hemodialysis about 3 years ago, and so I've always been able to >eat more phosphorus and more potassium than many other dialysis patients. >It's important for people new or approaching dialysis that it's not usually >a case of going from 10% kidney function when they usually start you on >dialysis, to none all of a sudden. That 10% kidney function may well >continue for some time. Because of this, there are really no blanket >recommendations with regards to diet. It's an individual thing, and you may >find that you can eat a lot more than what you hear about when people talk >about dialysis diets. After you actually start dialysis, you can usually but >cautiously and sensibly experiment a little, on days preceding the monthly >blood work. Eventually, you get to know what you can and can't tolerate as >far as foods go. >Pierre >P.S. I do my own hemodialysis at home now, 6 days a week, and I can eat >almost a normal diet. If that's important to you, you could always see if >daily home hemo is available where you live. I'm not saying it's for >everybody, but it could be one of the options open to you. Pete, by dialyzing six days per week you are able to eat more electrolytes than someone who only dialyses three times per week. In general, once a person starts on dialysis their kidneys become "lazy" due to not having to perform as needed. |