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From: strevetr on 30 Sep 2005 10:01
I started having pulsatile tinnitus just before Christmas last year. I
am able to stop the noise my gently holding my fingers on my neck. I
also periodically feel lightheadedness that makes me feel nauseous. I
discovered in Feb. that I had Thyroid Cancer and had my TT on April 25.
I am on .125 Levothyroxine. My TSH is 0.09 and FT3 and FT4 are in the
normal range. The endo has told me that the noise cannot be related to
my thyroid with levels like that. I have had an ultrasound of my neck;
been to an ENT who told me to turn the radio up and had a carotid
doppler. Has anyone experienced anything like this? My dr.s seem to
think I need to learn to live with it, but I'm not satisfied with this
(I am only 31). I would appreciate any advice. Thanks
Tracy

From: Daisy on 30 Sep 2005 10:15
I have had this too -no-one could offer an explanation -in fact I am
sure they think i was making it up. Would love to see if anyone has any
answers!
Daisy-Claire

From: moriarte on 30 Sep 2005 10:50
Hi, I have had pulsatile tinnitus in one ear which started in my early
teens, around the time that my thyroiditis did too. Both flared up
really badly in my early 20s, and I now have chronic otitis and an odd
sensation that stretches the length of my jugular groove from my
thyroid to my ear. I am sure this is due to damage from the first
serious flareup. I am also deaf in this ear too, hearing loss started
around the same time and worsened in parallel with the other symptoms.

I spent a year back and fore to ENT having MRIs and a CT scan which
turned up nothing. I asked them if there could be a link with the
thyroid condition and they said 'no way' too. I have to take citalopram
to control the tinnitus (which can be louder than the tv) and chronic
neuralgic pain. I noticed no difference in the condition before and
after treatment of my thyroid.

From: Daisy on 30 Sep 2005 12:04
I have one theory - it is do do with equalization of ear pressures. I
think that all the mess in our throats with thyroid glands etc stops
the eustachian tube working properly and air sort of builds up in the
tube. his then acts like a sounding board for your pulse -hence the
pulsatile tinnitus. try holding your nose and blowing gently til your
ears pop. See if the sound gets better?

Frustrated andsearching for an answer

daisy-Claire

From: skipperbeers on 30 Sep 2005 12:51

strev...(a)teacher.com wrote:
> I started having pulsatile tinnitus just before Christmas last year. I
> am able to stop the noise my gently holding my fingers on my neck. I
> also periodically feel lightheadedness that makes me feel nauseous. I
> discovered in Feb. that I had Thyroid Cancer and had my TT on April 25.
> I am on .125 Levothyroxine. My TSH is 0.09 and FT3 and FT4 are in the
> normal range. The endo has told me that the noise cannot be related to
> my thyroid with levels like that. I have had an ultrasound of my neck;
> been to an ENT who told me to turn the radio up and had a carotid
> doppler. Has anyone experienced anything like this? My dr.s seem to
> think I need to learn to live with it, but I'm not satisfied with this
> (I am only 31). I would appreciate any advice. Thanks
> Tracy

Tinnitus can be caused by thyroid troubles. It sounds like your endo
may be aware of that since he said it couldn't be related "with levels
like that.

Not everyone does well on Levothyroxine, some need dessicated (Armour)
thyroid. After all, your thyroid does produce some active T3 in
addition to the T4 that's inactive until it's converted to T3.

Labs are not perfect indicators of adequate thyroid treatment.

Also, some drugs and antibiotics can cause tinnitus. Since I don't
know by which mechanism they cause tinnitus, it is possible that
different formulatins of thyroid meds may cause it.

Skipper

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