From: Musashi on
Hi guys,

Before I went on Pred I had normal, perfect blood pressure readings. On Pred
my blood pressure raised, which I did expect really, as did my heart beat
rate raise. It all got very uncomfortable actually on high doses, as I would
feel like my heart was going to explode out of my chest. Anyway, I have been
off the Pred now for 2 months and got my blood pressure reading yesterday.
It's still high, and my heart rate was at 113 bpm!!!!! That's not right!!
It's really worried me. My mother assured me it's still because the Pred
isn't out of my system (I have actually heard from other that it takes about
6 months off Pred to get out of the system). Is this right? I'm not happy, I
don't want a heart attack (only 21) on top of everything else.

I'm also worried because I'm am on the contraceptive pill to not have
periods, because they are horrendous to have on top of my Crohn's (and they
spark the Crohn's off worse). I got told if my blood pressure doesn't come
down then they'd take me off the pill. I don't know how I'd be able to cope
with that. I won't let them do that to me, I can't cope with my Crohn's
being even worse than it is.

I also noticed that when I was on Pred, when I had a drink (alcoholic) my
face would go blotchy red and feel like it was burning so much, was very hot
to touch. I had a drink yesterday and it happened again. I thought it
wouldn't now I'm off the Pred. Must prove it's still in my system.

Any comments?

Musashi


From: jitow on
Musashi:
When is the last time you had blood work? Your heart rate could be high
due to a low blood count. I have had heart rate problems from the Pred
too. My doc's had to give me something to control it. The Pred really
amps me up, and it takes a while when I am off of it for it to settle
down. However, after 2 mos, I seem to be back to my "normal self". I
have also had heart rate and BP probs from low blood. Best thing is to
ask your doc.
Now, I dont want to lecture you but please heed what I say. Alcohol, in
ANY form is detremental to this illness. The small intestine takes a
beating from alcohol, not to mention the rest of your upper digestive
tract, and your major organs. I know when you are young you want to
have fun, and do what your peers are doing, but take it from me,
alcohol will make your disease take turns for the worse like you cannot
even imagine. Even in small amounts, it can be harmful to people with
this illness.
I know someone is going to say they are able to drink this or that,
with no problem. The point here is no problem they know of, yet.
Furthermore, how do they know they would not be feeling even better had
they not had any alcohol.
This is one point that I really draw the line in the sand on. I KNOW it
is harmful to this illness. I have seen too many people with this
illness try to drink, and get REALLY sick. Also, my experience with
trying to drink alcohol has been very negative relative to my illness.
I know its hard when you are young to not want to have a social drink.
Try to avoid it if you can. Sipping on a 7-Up or a sprite can be just
as enjoyable. You dont have to drink to fit in or have a good time.
Okay, I am off my soapbox now. Good luck.

From: Musashi on
Thanks you for all your advise. I will talk to my doctor about my blood
then. Usually he just says "that's strange" or "never heard of that before"
writes it down, and doesn't do anything to help me.

As for the alcohol. Please can you not be so patronising. Yes I am 21, but I
am not a flippin' baby where I feel peer pressure. Do me a favour! Do you
really think that because I'm 21 I give in to doing things because of peer
pressure? For goodness sake. I'm not in school or something suffering
playground bullying. I am a highly qualified professional, who's more
interested in going over to her best friends house and seeing her children
than partying hard and taking anything I can get my hands on. I am a
responsible, independent, intelligent individual. It is very judgemental for
you to stick someone in a box because of their age.

For your information I don't actually drink. I had a very bad shock the
other day and had one shot of a spirit. It didn't do my Crohn's any harm,
only my face which only lasted half and hour.

I'm sorry to go on at you, but I really did find your post silly.

Musashi





"jitow" <jitow04(a)yahoo.com> wrote in message
news:1130336211.767952.117080(a)o13g2000cwo.googlegroups.com...
> Musashi:
> When is the last time you had blood work? Your heart rate could be high
> due to a low blood count. I have had heart rate problems from the Pred
> too. My doc's had to give me something to control it. The Pred really
> amps me up, and it takes a while when I am off of it for it to settle
> down. However, after 2 mos, I seem to be back to my "normal self". I
> have also had heart rate and BP probs from low blood. Best thing is to
> ask your doc.
> Now, I dont want to lecture you but please heed what I say. Alcohol, in
> ANY form is detremental to this illness. The small intestine takes a
> beating from alcohol, not to mention the rest of your upper digestive
> tract, and your major organs. I know when you are young you want to
> have fun, and do what your peers are doing, but take it from me,
> alcohol will make your disease take turns for the worse like you cannot
> even imagine. Even in small amounts, it can be harmful to people with
> this illness.
> I know someone is going to say they are able to drink this or that,
> with no problem. The point here is no problem they know of, yet.
> Furthermore, how do they know they would not be feeling even better had
> they not had any alcohol.
> This is one point that I really draw the line in the sand on. I KNOW it
> is harmful to this illness. I have seen too many people with this
> illness try to drink, and get REALLY sick. Also, my experience with
> trying to drink alcohol has been very negative relative to my illness.
> I know its hard when you are young to not want to have a social drink.
> Try to avoid it if you can. Sipping on a 7-Up or a sprite can be just
> as enjoyable. You dont have to drink to fit in or have a good time.
> Okay, I am off my soapbox now. Good luck.
>


From: mudboy on
Ooooooh boy! Are those thunderheads on the horizon.....




"Musashi" <pippystix(a)fondutown.freeserve.co.uk> wrote in message
news:djodam$od1$1(a)newsg1.svr.pol.co.uk...
> Thanks you for all your advise. I will talk to my doctor about my blood
> then. Usually he just says "that's strange" or "never heard of that
> before" writes it down, and doesn't do anything to help me.
>
> As for the alcohol. Please can you not be so patronising. Yes I am 21, but
> I am not a flippin' baby where I feel peer pressure. Do me a favour! Do
> you really think that because I'm 21 I give in to doing things because of
> peer pressure? For goodness sake. I'm not in school or something suffering
> playground bullying. I am a highly qualified professional, who's more
> interested in going over to her best friends house and seeing her children
> than partying hard and taking anything I can get my hands on. I am a
> responsible, independent, intelligent individual. It is very judgemental
> for you to stick someone in a box because of their age.
>
> For your information I don't actually drink. I had a very bad shock the
> other day and had one shot of a spirit. It didn't do my Crohn's any harm,
> only my face which only lasted half and hour.
>
> I'm sorry to go on at you, but I really did find your post silly.
>
> Musashi
>
>
>
>
>
> "jitow" <jitow04(a)yahoo.com> wrote in message
> news:1130336211.767952.117080(a)o13g2000cwo.googlegroups.com...
>> Musashi:
>> When is the last time you had blood work? Your heart rate could be high
>> due to a low blood count. I have had heart rate problems from the Pred
>> too. My doc's had to give me something to control it. The Pred really
>> amps me up, and it takes a while when I am off of it for it to settle
>> down. However, after 2 mos, I seem to be back to my "normal self". I
>> have also had heart rate and BP probs from low blood. Best thing is to
>> ask your doc.
>> Now, I dont want to lecture you but please heed what I say. Alcohol, in
>> ANY form is detremental to this illness. The small intestine takes a
>> beating from alcohol, not to mention the rest of your upper digestive
>> tract, and your major organs. I know when you are young you want to
>> have fun, and do what your peers are doing, but take it from me,
>> alcohol will make your disease take turns for the worse like you cannot
>> even imagine. Even in small amounts, it can be harmful to people with
>> this illness.
>> I know someone is going to say they are able to drink this or that,
>> with no problem. The point here is no problem they know of, yet.
>> Furthermore, how do they know they would not be feeling even better had
>> they not had any alcohol.
>> This is one point that I really draw the line in the sand on. I KNOW it
>> is harmful to this illness. I have seen too many people with this
>> illness try to drink, and get REALLY sick. Also, my experience with
>> trying to drink alcohol has been very negative relative to my illness.
>> I know its hard when you are young to not want to have a social drink.
>> Try to avoid it if you can. Sipping on a 7-Up or a sprite can be just
>> as enjoyable. You dont have to drink to fit in or have a good time.
>> Okay, I am off my soapbox now. Good luck.
>>
>
>


From: jitow on
Good for you! :)
J

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