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From: Hugh Watkins on 3 Jan 2006 19:46 have just seen a UK ITV documentary about this "My child can't stop eating." tells the shocking stories of three youngsters who suffer from Prader Willi Syndrome (PWS). Only 2000 people in the UK suffer from this rare condition which is caused by damage to a chromosome http://www.itv.com/page.asp?partid=3023 http://www.nlm.nih.gov/medlineplus/praderwillisyndrome.html http://www.med.umich.edu/1libr/yourchild/praders.htm caused by a disorder of chromosome 15. and affects one in every 12,000-15,000 people of both sexes and all races and ethnic groups. http://www.pwsausa.org/syndrome/Genetics_of_PWS.htm defined in 1956 not usually an inherited condition; it just happens Although every case of Prader-Willi syndrome is due to the baby failing to receive active genes from a specific section of the father's chromosome 15, there are three different ways that this can happen http://www.geneclinics.org/profiles/pws/ When hyperphagia begins or weight centiles are increasing (often age two to four years), a program of a well-balanced, low-calorie diet, regular exercise, and close supervision to minimize food stealing should be instituted to prevent obesity and its consequences. The same program is appropriate if obesity is present at any time. Consultation with a dietician and close follow-up are usually necessary, and locking the kitchen, refrigerator, and/or cupboards is often needed. The energy requirement of people with PWS, which rarely exceeds 1000 to 1200 Kcal/day, should be considered in planning daily food intake. <<<< food pyramid http://www.pwsausa.org/syndrome/foodpyramid.htm this is very much the food triangle I know from Denmark and use myself http://www.pwsausa.org/images/Image15.gif my weigh in day is going to be thursdays for the next few months Hugh W |