Plaquenil, anyone?
in [Lupus]
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From: Mair on 25 Nov 2007 21:41 Hi Everyone, Zinn's letter reminded me, I have a special appointment to see my ophthalmologist, for "Yellow Things" on my macula. He said he had seen them before, and he lightly reprimanded me for skipping several appointments, and said he wanted to keep a closer eye on them. I have been taking Plaquenil for such a long time, and I take so many meds, that it is hard to calculate how much help I am actually getting from the Plaquenil. Are any of you taking Plaquenil alone? Are you getting a real benefit from it? It would really help me to know. Love to all, Mair
From: janers on 25 Nov 2007 23:30 I was on it for awhile and it did help with joint pain level and rashes. then sad to say I HAD a bad reaction to it and developed blisters and allergic reaction. boy you are lucky if you an take it Mair. I wish you the best but good for you keeping an "eye" out for problems. SORRY the pun but could not resist that one LOL But honestly glad to see they keeping up with your exams too good luck janers
From: zinn.46350 on 26 Nov 2007 00:04 On Nov 25, 8:41 pm, "Mair" <no-spam-b...(a)sbcglobal.net> wrote: > Hi Everyone, > Zinn's letter reminded me, > I have a special appointment to see my ophthalmologist, for "Yellow Things" > on my macula. He said he had seen them before, and he lightly reprimanded > me for skipping several appointments, and said he wanted to keep a closer > eye on them. I have been taking Plaquenil for such a long time, and I take > so many meds, that it is hard to calculate how much help I am actually > getting from the Plaquenil. > > Are any of you taking Plaquenil alone? Are you getting a real benefit from > it? It would really help me to know. > > Love to all, > Mair The exams are very important, my vision dimmed in clarity, but the med did help with the pain I was having, and I only took a couple of other meds. My system will not handle medications as a rule, I am Chemical Sensitive so already overloaded to begin with. Keep your appointment and let us know how it went, ok. Zinn
From: zinn.46350 on 26 Nov 2007 00:07 On Nov 25, 10:30 pm, "janers" <rojak...(a)bright.net> wrote: > I was on it for awhile and it did help with joint pain level and rashes. then sad to say I HAD a > bad reaction to it and developed blisters and allergic reaction. boy you are lucky if you an take > it Mair. > > I wish you the best but good for you keeping an "eye" out for problems. SORRY the pun but could not > resist that one LOL > > But honestly glad to see they keeping up with your exams too > > good luck > janers I could never tolerate the full dose the doc wanted me on, he wanted 2 doses a day and I had to break one dose into two times a day, then down to half a pill a day, sick feeling and out of sorts on it, Are you over the reaction and back to a base line? Zinn
From: kodama on 26 Nov 2007 12:08
On Nov 25, 9:07 pm, zinn.46...(a)yahoo.com wrote: > On Nov 25, 10:30 pm, "janers" <rojak...(a)bright.net> wrote: > > > I was on it for awhile and it did help with joint pain level and rashes. then sad to say I HAD a > > bad reaction to it and developed blisters and allergic reaction. boy you are lucky if you an take > > it Mair. > > > I wish you the best but good for you keeping an "eye" out for problems. SORRY the pun but could not > > resist that one LOL > > > But honestly glad to see they keeping up with your exams too > > > good luck > > janers > > I could never tolerate the full dose the doc wanted me on, he wanted 2 > doses a day and I had to break one dose into two times a day, then > down to half a pill a day, sick feeling and out of sorts on it, > > Are you over the reaction and back to a base line? > Zinn I've been on plaquenil for about 15 years. It was the first drug I was started on. I had great success with it. Took about a year and a half to work completely. I took it alone for probably about three years but then my Lupus got worse and over the years several other meds were added to the equation (cellcept, prednisone, methotrexate...) I've never had any problems with it other than when I first started I had horrendous headaches for about two weeks. Then they went away. I see the opthamologist once a year and he feels for now that's fine. J |