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From: Nicky on 8 Aug 2008 12:01
On Thu, 7 Aug 2008 21:34:51 -0700 (PDT), Larry <boelkowj(a)aol.com>
wrote:

>Larry/T2 changed to T 1 1/2 after 6 years of IR drugs which did very
>little. Misdiagnosis from the beginning.

Wow!! Glad it's sorted now!

Nicky.
T2 dx 05/04 + underactive thyroid
D&E, 100ug thyroxine
Last A1c 5.4% BMI 25
From: Alan S on 8 Aug 2008 18:21
On Thu, 7 Aug 2008 21:34:51 -0700 (PDT), Larry
<boelkowj(a)aol.com> wrote:

>On Aug 6, 2:19�pm, Susan <neverm...(a)nomail.com> wrote:
>> x-no-archive: yes
>>
>> Larry wrote:
>> > Thank you Susan for your input. Yes I do remember your comments about
>> > Statins. Right now I am wondering about electroyte imbalance which
>> > metformin may cause. Particulary high potassium levels that it may
>> > cause. As you may know electrolyte imbalance can cause heart block in
>> > some patients of which I am coping with at the moment.
>>
>> I think you need to have endocrine evaluation, and a standing renin and
>> aldosterone test (stand upright for 30 minutes prior to and during blood
>> draw) and other adrenal hormones.
>>
>> In addition, if you're having problems with electrolyte balance, perhaps
>> you need to stop the metformin for a while and see if things improve.
>>
>> Also, don't ever pump your fist or allow a tight tournequet to be used
>> for your serum testing; it raises the potassium results and renders them
>> completely inaccurate, as will shaking of the test tube, or sitting out
>> too long after draw.
>>
>> Susan
>
>Hello Susan: Just saw my Endo. today here in San Diego. Pretty
>competent young Doc I'd say. Anyway at my request GAD test was done
>and results today show 14+... high and indicates LADA. I've been
>diagnosed by at least 2 doc before as T2. I do believe the recent
>findings particularly supported by todays GAD results. So now
>metformin, actos are dc'd, amaryl tapered and more insulin ( bolus
>PP ) added. Where is dear "old Al?"
>
>Larry/T2 changed to T 1 1/2 after 6 years of IR drugs which did very
>little. Misdiagnosis from the beginning.

Remind me. Haven't you suspected this for a while?

Good to know you can stop wondering and get on with the
right treatment.

Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
Blog http://loraldiabetes.blogspot.com
DLife column http://tinyurl.com/5v74xr
http://loraltravel.blogspot.com (The Taj Mahal)
From: Larry on 9 Aug 2008 09:42
On Aug 8, 3:21 pm, Alan S <loralgtweightandca...(a)gmail.com> wrote:
> On Thu, 7 Aug 2008 21:34:51 -0700 (PDT), Larry
>
>
>
>
>
> <boelk...(a)aol.com> wrote:
> >On Aug 6, 2:19 pm, Susan <neverm...(a)nomail.com> wrote:
> >> x-no-archive: yes
>
> >> Larry wrote:
> >> > Thank you Susan for your input. Yes I do remember your comments about
> >> > Statins. Right now I am wondering about electroyte imbalance which
> >> > metformin may cause. Particulary high potassium levels that it may
> >> > cause. As you may know electrolyte imbalance can cause heart block in
> >> > some patients of which I am coping with at the moment.
>
> >> I think you need to have endocrine evaluation, and a standing renin and
> >> aldosterone test (stand upright for 30 minutes prior to and during blood
> >> draw) and other adrenal hormones.
>
> >> In addition, if you're having problems with electrolyte balance, perhaps
> >> you need to stop the metformin for a while and see if things improve.
>
> >> Also, don't ever pump your fist or allow a tight tournequet to be used
> >> for your serum testing; it raises the potassium results and renders them
> >> completely inaccurate, as will shaking of the test tube, or sitting out
> >> too long after draw.
>
> >> Susan
>
> >Hello Susan: Just saw my Endo. today here in San Diego. Pretty
> >competent young Doc I'd say. Anyway at my request GAD test was done
> >and results today show 14+... high and indicates LADA. I've been
> >diagnosed by at least 2 doc before as T2. I do believe the recent
> >findings particularly supported by todays GAD results. So now
> >metformin, actos are dc'd, amaryl tapered and more insulin ( bolus
> >PP ) added. Where is dear "old Al?"
>
> >Larry/T2 changed to T 1 1/2 after 6 years of IR drugs which did very
> >little. Misdiagnosis from the beginning.
>
> Remind me. Haven't you suspected this for a while?
>
> Good to know you can stop wondering and get on with the
> right treatment.
>
> Cheers, Alan, T2, Australia.
> --
> Everything in Moderation - Except Laughter.
> Bloghttp://loraldiabetes.blogspot.com
> DLife columnhttp://tinyurl.com/5v74xrhttp://loraltravel.blogspot.com(The Taj Mahal)- Hide quoted text -
>
> - Show quoted text -

Alan: I have never been overweight, metformin never seemed to improve
things. C-peptide seemed to show mid range endogenous insulin so doc
continued to assume I was T2 and treated as such adding on Actos and
then Amaryl. I managed to keep my A1c in low 7s with lots of exercise
and pretty good dieting. Actos didn't do anything and Amaryl worked to
improve fbg levels for a little while. I insisted to see an Endo and
also insisted that a GAD be done. So you know once again how patients
need to take charge as best they can. Consequently I've been over
medicated and have a heart block which could be related. This may
resolve itself since most orals are being tapered or dcd at this time.
Thanks for asking.

Larry
From: Susan on 9 Aug 2008 10:37
x-no-archive: yes

Larry wrote:

> Alan: I have never been overweight, metformin never seemed to improve
> things. C-peptide seemed to show mid range endogenous insulin so doc
> continued to assume I was T2 and treated as such adding on Actos and
> then Amaryl. I managed to keep my A1c in low 7s with lots of exercise
> and pretty good dieting. Actos didn't do anything and Amaryl worked to
> improve fbg levels for a little while. I insisted to see an Endo and
> also insisted that a GAD be done. So you know once again how patients
> need to take charge as best they can. Consequently I've been over
> medicated and have a heart block which could be related. This may
> resolve itself since most orals are being tapered or dcd at this time.
> Thanks for asking.
>


Larry, so sorry it took so long and that you had to find your own
diagnosis, like so many of us, while docs mess around and fumble.

I hope things will improve now that you're on the right track.

Susan
From: Alan S on 9 Aug 2008 17:43
On Sat, 9 Aug 2008 06:42:49 -0700 (PDT), Larry
<boelkowj(a)aol.com> wrote:

>On Aug 8, 3:21�pm, Alan S <loralgtweightandca...(a)gmail.com> wrote:
>> On Thu, 7 Aug 2008 21:34:51 -0700 (PDT), Larry
>>
>>
>>
>>
>>
>> <boelk...(a)aol.com> wrote:
>> >On Aug 6, 2:19�pm, Susan <neverm...(a)nomail.com> wrote:
>> >> x-no-archive: yes
>>
>> >> Larry wrote:
>> >> > Thank you Susan for your input. Yes I do remember your comments about
>> >> > Statins. Right now I am wondering about electroyte imbalance which
>> >> > metformin may cause. Particulary high potassium levels that it may
>> >> > cause. As you may know electrolyte imbalance can cause heart block in
>> >> > some patients of which I am coping with at the moment.
>>
>> >> I think you need to have endocrine evaluation, and a standing renin and
>> >> aldosterone test (stand upright for 30 minutes prior to and during blood
>> >> draw) and other adrenal hormones.
>>
>> >> In addition, if you're having problems with electrolyte balance, perhaps
>> >> you need to stop the metformin for a while and see if things improve.
>>
>> >> Also, don't ever pump your fist or allow a tight tournequet to be used
>> >> for your serum testing; it raises the potassium results and renders them
>> >> completely inaccurate, as will shaking of the test tube, or sitting out
>> >> too long after draw.
>>
>> >> Susan
>>
>> >Hello Susan: Just saw my Endo. today here in San Diego. Pretty
>> >competent young Doc I'd say. Anyway at my request GAD test was done
>> >and results today show 14+... high and indicates LADA. I've been
>> >diagnosed by at least 2 doc before as T2. I do believe the recent
>> >findings particularly supported by todays GAD results. So now
>> >metformin, actos are dc'd, amaryl tapered and more insulin ( bolus
>> >PP ) added. Where is dear "old Al?"
>>
>> >Larry/T2 changed to T 1 1/2 after 6 years of IR drugs which did very
>> >little. Misdiagnosis from the beginning.
>>
>> Remind me. Haven't you suspected this for a while?
>>
>> Good to know you can stop wondering and get on with the
>> right treatment.
>>
>> Cheers, Alan, T2, Australia.
>> --
>> Everything in Moderation - Except Laughter.
>> Bloghttp://loraldiabetes.blogspot.com
>> DLife columnhttp://tinyurl.com/5v74xrhttp://loraltravel.blogspot.com(The Taj Mahal)- Hide quoted text -
>>
>> - Show quoted text -
>
>Alan: I have never been overweight, metformin never seemed to improve
>things. C-peptide seemed to show mid range endogenous insulin so doc
>continued to assume I was T2 and treated as such adding on Actos and
>then Amaryl. I managed to keep my A1c in low 7s with lots of exercise
>and pretty good dieting. Actos didn't do anything and Amaryl worked to
>improve fbg levels for a little while. I insisted to see an Endo and
>also insisted that a GAD be done. So you know once again how patients
>need to take charge as best they can. Consequently I've been over
>medicated and have a heart block which could be related. This may
>resolve itself since most orals are being tapered or dcd at this time.
>Thanks for asking.
>
>Larry

From reading the various forums I'm on, I'm starting to
believe that the traditional binary Type 1/Type 2 diagnosis
made in a hurry by overworked GPs is masking a significantly
higher number of MODY, LADA and variants not yet given a
name than the medical profession realises are part of the
diabetes spectrum.

I'm fairly certain I'm a "straight" Type 2, if there is such
a thing, in that my pancreas presently works but I've got
minimal first-phase response and I have insulin resistance;
but I'm also certain that there are a lot more people like
yourself who are being incorrectly treated for their
variant.


Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
Blog http://loraldiabetes.blogspot.com
DLife column http://tinyurl.com/5v74xr
http://loraltravel.blogspot.com (The Taj Mahal)
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