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From: Paul on 13 Jul 2008 04:06 On Sat, 12 Jul 2008 13:45:17 -0700, "Waterspider" <nospam(a)all.com>, in message ID <KK6dnQVuXsx-iuTVnZ2dnUVZ_q3inZ2d(a)posted.deltacablecommunications>, in the newsgroup alt.support.hepatitis-c wrote: >You told us that you are depressed, and that you are self-medicating with >St. John's wort, but you have decided that you're not a good candidate for >treatment because you're depressed. A very to the point post as usual WS. The bit I've quoted concerns me as I though that St John's Wort shouldn't be taken by people with a compromised liver.
From: Paul on 13 Jul 2008 04:17 On Sat, 12 Jul 2008 17:52:19 -0400, chardonney9 <chardonney9(a)notearthlink.net>, in message ID <3ZKdnYFsIdEMuuTVnZ2dnUVZ_vWdnZ2d(a)earthlink.com>, in the newsgroup alt.support.hepatitis-c wrote: >> 3. You believe that colloidal silver and other "alternative treatments" >> will, if not erradicate the hepatitis c virus, make you healthy. > >Show me they can't. Yes, I believe they can help me. I'm willing to look >at evidence that I'm wasting my time. Nobody has been able to provide >that. Anybody? > > The trouble with taking this line is that it would be impossible to totally refute the case for colloidal silver until you were very sick - possibly too sick to take interferon or too sick for a transplant. AS WS says in another post, you can't prove a negative. I cannot prove that the Loch Ness monster doesn't exist either but, IMO, there is more chance that the Loch Ness monster exists than of colloidal silver getting rid ofd your hep-c. >> 4. You do not believe that you are critically ill. > >I wasn't told I was critically ill. I can't believe something I was not >aware of. You think I'm faking my lack of knowledge? Is it unbelievable >that my doc would not have me aware of the whole picture? I do too but >it's happening to me which is why I want to talk to others in my position. > Unfortunately, I have witnessed some poor quality medical practitioners too (along with some very good ones). My biggest complaint was also about lack of information. It's as if some doctors decide that what is going on inside your body is none of your business. Thankfully, the nurse used to scribble some of the test results on secretive pieces of paper and sneak them to me. >And giving absolutely no proof for their allegations. That's what I'm >looking for. Show me what I'm doing won't work. I don't take anyone's >word for it. Show me! > Of course that can only be shown with certainty once your very sick. Hopefully it won't come to that.
From: dog on 14 Jul 2008 02:35 On Sat, 12 Jul 2008 13:45:17 -0700, "Waterspider" <nospam(a)all.com> wrote: >After reading the numerous posts to you and your responses in the For The >Newbies thread, I've come to some conclusions... > <SNIP> > >Waterspider > Hey Chardonney, A few thoughts for you -- take them for whatever they're worth to you: 1. If your doctors won't tell you anything, FIRE THEM! You're paying for medical services and you're entitled to you you're paying for. Do not rely on doctors, or anyone else, for understanding what is and is going to happen to you as time progresses. Use the Internet -- Google in particular -- to research Hepatitis C for yourself. 2. My wife is an expert in Naturopathy, Homeopathy, vitamins and herbal treatments and probably some 'opathys I don't even know about. When I was finally diagnosed with Hep-C she was the first to tell me not to rely on natural or alternative remedies as a cure for hepatitis. It is extremely unlikely that alternative treatments have the ability to punch through the hard protein shell surrounding a constantly mutating RNA virus and destroy it when your body's own "Hunter-Killer" T-Cells can't. 3. If they make you feel better and don't cause your liver more problems or prevent you from starting a combined treatment (Peg-Interferon with Ribivirin) then by al means do what feels good. Do not, however, choose the colloidal silver over the, proven, treatment I already mentioned. 4. If you have genotype 2, you're one lucky Hep-C victim since, as WaterSpider noted, it responds very well to short terms treatment and the cure rate for this genotype is tremendous. I have genotype 1 sub-type "A" at borderline stage 3/4 -- I'd give an arm to have genotype 2. 5. Now that you've been diagnosed with Hep-C, don't let GP's try to treat it. Find yourself a good Gastroenterologist (GI) that specializes in Hepatology. Universities with their own hospitals are a great place to look since thay are ofter doing studies that include the newest, approved, treatments and are generally more upu-to-date on the disease and what's happening in that field of research. Best wishes to you -- go get well! -- Steve
From: chardonney9 on 14 Jul 2008 08:34 dog(a)cat.com wrote: > On Sat, 12 Jul 2008 13:45:17 -0700, "Waterspider" <nospam(a)all.com> > wrote: > >> After reading the numerous posts to you and your responses in the For The >> Newbies thread, I've come to some conclusions... >> > <SNIP> >> Waterspider >> > > Hey Chardonney, > > A few thoughts for you -- take them for whatever they're worth to you: > > 1. If your doctors won't tell you anything, FIRE THEM! You're paying > for medical services and you're entitled to you you're paying for. Do > not rely on doctors, or anyone else, for understanding what is and is > going to happen to you as time progresses. Use the Internet -- Google > in particular -- to research Hepatitis C for yourself. I'm getting free services from the county so I'm stuck with what I can get. The good part is that I am at a teaching hospital so I'm supposed to get some of the most recent treatment out there. The drugs are good, just the doctors are overworked and can't really do their job. > > 2. My wife is an expert in Naturopathy, Homeopathy, vitamins and > herbal treatments and probably some 'opathys I don't even know about. > When I was finally diagnosed with Hep-C she was the first to tell me > not to rely on natural or alternative remedies as a cure for > hepatitis. It is extremely unlikely that alternative treatments have > the ability to punch through the hard protein shell surrounding a > constantly mutating RNA virus and destroy it when your body's own > "Hunter-Killer" T-Cells can't. > > 3. If they make you feel better and don't cause your liver more > problems or prevent you from starting a combined treatment > (Peg-Interferon with Ribivirin) then by al means do what feels good. > Do not, however, choose the colloidal silver over the, proven, > treatment I already mentioned. I wouldn't do that. I've tried the CS and it's great for energy but slow on killing especially if you don't take massive doses. I have been trying two other treatments and want to see what they have accomplished. Once I get another viral count and insist on a biopsy (thanks for that info!) I will make a decision. > > 4. If you have genotype 2, you're one lucky Hep-C victim since, as > WaterSpider noted, it responds very well to short terms treatment and > the cure rate for this genotype is tremendous. I have genotype 1 > sub-type "A" at borderline stage 3/4 -- I'd give an arm to have > genotype 2. > > 5. Now that you've been diagnosed with Hep-C, don't let GP's try to > treat it. Find yourself a good Gastroenterologist (GI) that > specializes in Hepatology. Universities with their own hospitals are > a great place to look since thay are ofter doing studies that include > the newest, approved, treatments and are generally more upu-to-date on > the disease and what's happening in that field of research. Well, that's what I have at present. I'm just not thrilled or trusting because of several other incidents that include ending up with a half numb hand and more. I've had several docs insist on giving me Tramadol for pain while I'm on anti-depressants and when I called them on it, all they could say is they do it all the time. As if doing something wrong all the time makes it right. At least the psychiatrist knew better and told me not to take it. I had to wait about a month for pain meds of any kind because I refused the Tramadol and because there is no way to directly contact your own doctor. All you can do is leave a message and usually it's a nurse who gets back to you and of course they can't write scripts. The one specialist actually threw me out of his office and refused to treat me because I refused the Tramadol. Now I find out here that my body pains and headaches may be a hep c thing and not my parathyroid, which was giving me problems but something I am taking actually shrunk that tumor so now they won't operate and take it out. > > Best wishes to you -- go get well! > > -- > Steve Thanks for being a friendly voice among the flamers! And I don't see why the two modalities can't be mixed. If CS gives energy why not take it just for that reason? I make it at home so it's not expensive. It's kept me cold and flu free for a long time. Milk thistle doesn't cure it at all but it surely supports the liver and my doc is ok with me taking it. Char
From: metspitzer on 14 Jul 2008 18:14
On Mon, 14 Jul 2008 08:34:04 -0400, chardonney9 <chardonney9(a)notearthlink.net> wrote: > >Thanks for being a friendly voice among the flamers! > You haven't been flamed. If you check the messages closely, you should be able to tell from some of posts that a couple of people have been re-reading information that is directly related to the concerns you have posted here. No one here is talking down to you, but no one has been sugar coating things either. |