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From: louise on 14 Dec 2005 09:12
I have FM, but a lot of my symptom picture really adheres
more closely to polymyalgia. I was told several years ago
that technically speaking, my biggest problem is
"insertional tendonitis".

At various times Physical Therapy has been prescribed with
minimal results.

Most recently, I discovered I have degenerative disc disease
and retrolethesis. PT was prescribed.

I've now had two rounds of PT with two different therapists,
both of whom have been caring and have made their best effort.

In both cases, I'm worse after the treatments, often for
several days. Different techniques have been tried with
similar results. I also have trouble doing many of the
exercises they recommend - even if I only do half the reps
suggested.

But - if I don't exercise and I don't do PT, how do I ever
get stronger - or, more honestly - how do I stop myself from
continuing to become weaker?

Suggestions?

Louise
From: janers on 14 Dec 2005 13:12
Try water therapy. That helps alot. But you have to remember DO not over
do. Most PT places offer water therapy and I am surprised your therapist
for PT didn't tell you or offer you that.

I did the land and found it was "terrible" for me especially with just
coming or going for that matter, on a flare. I have FM along with Lupus
and MCTD. Myositis is very much painful for me sometimes but with the warm
water and stretches it really does help.

Please look into it.

janers


From: louise on 14 Dec 2005 21:36
janers wrote:
> Try water therapy. That helps alot. But you have to remember DO not over
> do. Most PT places offer water therapy and I am surprised your therapist
> for PT didn't tell you or offer you that.
>
> I did the land and found it was "terrible" for me especially with just
> coming or going for that matter, on a flare. I have FM along with Lupus
> and MCTD. Myositis is very much painful for me sometimes but with the warm
> water and stretches it really does help.
>
> Please look into it.
>
> janers
>
>
Thanks for your suggestion.

Problem is I live in NYC, Manhattan, where real estate is
beyond expensive. As a result, no physical therapy facility
I've ever been to has had a pool for water therapy.

There are some gyms that have pools and they often have a
class for PTish kinds of activities. But my experience is
that the pools are much too cold for me and I tense all my
muscles due to the temperature of the water.

I gather your facility offers really warm water rather than
the temperature of a swimming pool?

Louise
From: janers on 15 Dec 2005 12:17
Me again Louise
I usually go to the Y for swimming exercises . OUR pt places do no have
deep enough pools only wadding type.
One Y has therapy pool and it is great but once you start to exercise you
get Way to warm sometimes. I like it though and found when I got out, I was
so darn tired I slept when I went home.

I did the Y in another town, my home town one. That is the regular pool.
Silly people said the pool was a meer 85 but when you got in it after the
third week, they must of meant 58 degrees LOL. That took awhile to get used
to.
I went for arthritis level one and it is stretches and such. I liked it
alot and will go back come this spring.

Usually that last pool is warm enough but like you I DO NOT LIKE COLD water
LOL. I get tense too most of the first 5 minutes but then they have you
march in place and believe this, it warms ya right up LOL. After wards we
go into the whirlpool at a meer 100 plus degrees that is a whammy in
itself LOL.

good luck in finding something, Maybe ask the Y what they think and what
the temp for arthritis classes are. MOST have therapy pools at a hot temp,
so go for it if they do

take care, if you want private email, send it to me

janers


From: Paul T. Holland on 16 Dec 2005 18:50
arthritis foundation has some info:

http://www.arthritis.org/Communities/Chapters/SignMeupProg.asp?idchap=43

fibro groups, aquatics, 'stuff' that you may not have seen

paul

louise wrote:

> janers wrote:
> > Try water therapy. That helps alot. But you have to remember DO not over
> > do. Most PT places offer water therapy and I am surprised your therapist
> > for PT didn't tell you or offer you that.
> >
> > I did the land and found it was "terrible" for me especially with just
> > coming or going for that matter, on a flare. I have FM along with Lupus
> > and MCTD. Myositis is very much painful for me sometimes but with the warm
> > water and stretches it really does help.
> >
> > Please look into it.
> >
> > janers
> >
> >
> Thanks for your suggestion.
>
> Problem is I live in NYC, Manhattan, where real estate is
> beyond expensive. As a result, no physical therapy facility
> I've ever been to has had a pool for water therapy.
>
> There are some gyms that have pools and they often have a
> class for PTish kinds of activities. But my experience is
> that the pools are much too cold for me and I tense all my
> muscles due to the temperature of the water.
>
> I gather your facility offers really warm water rather than
> the temperature of a swimming pool?
>
> Louise

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