From: greyhackles on
On Sat, 19 Apr 2008 11:19:08 -0500, "tom" <lebens61842(a)mypacks.net> wrote:

>
>"greyhackles" <greyhackles(a)REMOVEyahoo.com> wrote in message
>news:tb5k04t7g0lpeoqrve4qtso5oe1hkn4t2e(a)4ax.com...
>> On Sat, 19 Apr 2008 07:08:40 -0700 (PDT), "ironjustice(a)aol.com"
>> <ironjustice(a)aol.com> wrote:
>> [...]
>> >Understand .. ? "effective cure rate in the area of 75-80%"
>>
>> Hmmm....a four year old speculative statement...
>>
>> Much more recently, *someone* posted this result of retrospective
>analysis:
>>
>> "SVR was attained in 50/182 (27%) patients in the phlebotomy plus IFN
>> group"
>>
>> Seems like *someone* is confused about speculation verses actual facts...
>>
>> /greyhackles
>
>I'm not taking sides on this issue and am only stating MY personal
>experience. I received phlebotomy's about every 2 weeks through most of my
>11 months of tx as a result of elevated Ferritin levels. It was suspected I
>suffered from Hemachromotosis before tx. I suffered from severe Anemia
>during tx but my Hematologist felt my high Ferritin levels were a greater
>risk that the anemia. I'm 2 1/2 years post tx now and am still enjoying SVR
>and have sustained a normal Ferritin level since completing tx requiring no
>phlebotomy's.
>

The only "sides" apparent to the question are the use of phlebotomy in place
of Ribavirin and the success rate of same, using Real Life(tm) data - as
opposed to four year old speculation without any basis in fact...

Unless you did not take Ribavirin as part of your course of therapy, you would
be an example of conventional treatment.

As for your phlebotomy, Hemochromatosis is something easily verified.
Was yours?

Cheers

/greyhackles
From: tom on

"greyhackles" <greyhackles(a)REMOVEyahoo.com> wrote in message
news:9hjk04lv8eh4khavv6bt4qdo5nhkiumvkf(a)4ax.com...
> On Sat, 19 Apr 2008 11:19:08 -0500, "tom" <lebens61842(a)mypacks.net> wrote:
>
> >
<snip>
> >I'm not taking sides on this issue and am only stating MY personal
> >experience. I received phlebotomy's about every 2 weeks through most of
my
> >11 months of tx as a result of elevated Ferritin levels. It was suspected
I
> >suffered from Hemachromotosis before tx. I suffered from severe Anemia
> >during tx but my Hematologist felt my high Ferritin levels were a greater
> >risk that the anemia. I'm 2 1/2 years post tx now and am still enjoying
SVR
> >and have sustained a normal Ferritin level since completing tx requiring
no
> >phlebotomy's.
> >
>
> The only "sides" apparent to the question are the use of phlebotomy in
place
> of Ribavirin and the success rate of same, using Real Life(tm) data - as
> opposed to four year old speculation without any basis in fact...
>
> Unless you did not take Ribavirin as part of your course of therapy, you
would
> be an example of conventional treatment.
>
> As for your phlebotomy, Hemochromatosis is something easily verified.
> Was yours?
>
> Cheers
>
> /greyhackles

As I understand it, prior to tx I tested positive for one of the
"non-dominant" genes that can cause the disorder. But my Gastroentrologist
admittedly doesn't know what to think since my Ferritin level has stabilized
at normal since completing tx 2 1/2 years ago. And yes, Ribavirin was very
much a part of my tx.


From: greyhackles on
On Sat, 19 Apr 2008 16:24:50 -0500, "tom" <lebens61842(a)mypacks.net> wrote:

>
>"greyhackles" <greyhackles(a)REMOVEyahoo.com> wrote in message
>news:9hjk04lv8eh4khavv6bt4qdo5nhkiumvkf(a)4ax.com...
>> On Sat, 19 Apr 2008 11:19:08 -0500, "tom" <lebens61842(a)mypacks.net> wrote:
>>
>> >
> <snip>
>> >I'm not taking sides on this issue and am only stating MY personal
>> >experience. I received phlebotomy's about every 2 weeks through most of
>my
>> >11 months of tx as a result of elevated Ferritin levels. It was suspected
>I
>> >suffered from Hemachromotosis before tx. I suffered from severe Anemia
>> >during tx but my Hematologist felt my high Ferritin levels were a greater
>> >risk that the anemia. I'm 2 1/2 years post tx now and am still enjoying
>SVR
>> >and have sustained a normal Ferritin level since completing tx requiring
>no
>> >phlebotomy's.
>> >
>>
>> The only "sides" apparent to the question are the use of phlebotomy in
>> place of Ribavirin and the success rate of same, using Real Life(tm) data - as
>> opposed to four year old speculation without any basis in fact...
>>
>> Unless you did not take Ribavirin as part of your course of therapy, you
>> would be an example of conventional treatment.
>>
>> As for your phlebotomy, Hemochromatosis is something easily verified.
>> Was yours?
>>
>> Cheers
>>
>> /greyhackles
>
>As I understand it, prior to tx I tested positive for one of the
>"non-dominant" genes that can cause the disorder. But my Gastroentrologist
>admittedly doesn't know what to think since my Ferritin level has stabilized
>at normal since completing tx 2 1/2 years ago. And yes, Ribavirin was very
>much a part of my tx.

Right, then.

fwiw, my serum ferritin level was borderline high pre-tx (340 ng/ml - high
normal being 322 for my lab), and went through the ceiling while on therapy
(1200 ng/ml, roughly three months into tx). I was negative for Hemochromatosis
genes, and my bcld stated it was not unusual for serum ferritin levels to soar
in the presence of hemolytic anemia from the Ribavirin (which I experienced in
spades - along with aplastic anemia from the Peg-Interferon).

I've been virus-free for going on three years now...

Cheers

/greyhackles

From: greyhackles on
On Sat, 19 Apr 2008 19:32:19 -0700 (PDT), "ironjustice(a)aol.com"
<ironjustice(a)aol.com> wrote:

>On Apr 19, 7:14�pm, greyhackles <greyhack...(a)REMOVEyahoo.com> wrote:
>Like when you post the speculative statement - totally unsupported by
>factual data - that Interferon with phlebotomy can provide a "75-80%" cure rate <<
>
>I included the link which says it ..

You.....included a link......to an article......which provided speculation....
unsupported.....by.......fact.

[...]

>YOU .. **deliberately** posted .. the NEGATIVE .. post ..

I.......merely.....pointed out.....that the other article.....YOU.....also....
posted.....which....provided....the.....results....of retrospective
analysis.....of SIX STUDIES.....that used IFN......with and without
phlebotomy.....shows that the speculation....found in the
other.....article......was NOT SUPPORTED......by.....FACTS...
NOT EVEN CLOSE....

Six....studies.....only....one....showed.....any....statistically....significant....
.....difference...in....outcomes.....and....that....only....showed....a...25%....cure...rate....

Hmmmmm.......which.....article.....should....people.....put....their.....faith.....into?
The....speculative.....article?
Or....the....article.....with.....real.....data?
Is.....this....really.....that....difficult....for.....you.....to....comprehend?

>For some specific .. reason .. ?:
>
>YES ..
>
>To .. denigrate the .. thread ..

NO...

Clearly......it was......to show.....how you.....use articles...laced with...
....SPECULATION.....as FACT.....when actual FACTS....show....OTHERWISE...

>Both article were written by .. others ..

And? ....

>All the studies are done by .. others ..

And? .......

>YOU .. have no articles BUT the ones I .. post ..

And.....I....don't......need......to.....post.....any.....articles.....if......you....
post....articles...which...so clearly....contradict.......your......claims....


IRONic....isn't....it? ;-)


ahahaha....hahahaha.....hahahaha!....


Consider...this...to...be...a...free...service....which...I...am...pleased....
...to.....provide.....and.....will.....continue.....to....provide....
....just...as...long...as...charlatans...like...you...post...factually...unsupportable...claims...

<snicker>

/greyhackles (still got an endless supply of elipses, too ;-)
From: Waterspider on

<ironjustice(a)aol.com> is off his meds again :-(


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