Perspective with T3 = anger
in [Thyroid]
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From: district on 7 Jul 2008 23:17 This disease is so aggravating and I need to vent. What a rollercoaster hypothyroidism is. I know this is a common story for hypothyroid patients, but I need to get it all out. I went from feeling very, very sick and not knowing what was wrong to being elated that I had a reason and therefore a solution - hypothyroidism. I started taking Synthroid and almost immediately felt like a 16 year old. Problem solved! or so I thought. It only lasted a week. I went from that to having extreme hypothyroid symptoms - I was so sick I felt like I had the flu. I yo-yo'd between feeling like a 16 year old and having the flu each time we increased my dose for 10 months while my doctor told me I should be "fine". I had to fight to retest and increase my dose each time. I found this e-mail list. I discovered that my doc was wrong on quite a few accounts. I felt like I'd been taken advantage of. My depression and anxiety worsened. I pretty much had a nervous breakdown at work because I just couldn't handle it anymore. I gave in, found a new doctor and switched to Armour. It changed my life. The difference in my mood was profound. I felt better than I can remember ever feeling. Better in a much more wholesome way than the Synthroid ever made me feel. My depression, which I have suffered from for at least 15 years, literally went away. I was motivated and energized. I was a new person. I thought, "This is what other people feel like" I realized that I had spent years (years!) of beating myself up for being "lazy" and succumbing to depression. I always thought I had a weak character. What perspective the T3 gives me. I am so angry! I actually felt like I didn't deserve to feel better. I didn't deserve to feel as well as most other people do. This disease is invisible, insidious and destructive. The doctors, who are supposed to help you, supposed to make visible this invisible force, only validate your beliefs that you are "crazy" or a hypochondriac. Why do we have to fight for the care we need and deserve? I used to be so active, I used to do so much more. I realized that I've stopped doing so many things over the years because I've simply been too tired. I've lost part of my life to this disease and I am so angry that doctors didn't help me more. Sooner. Better. Things aren't perfect. After 4 weeks of feeling great - I've slid again. It's become very clear that I need more Armour, and probably some straight up T4. I've been very sick and tired the past few days while I await my test results. My mood has gotten worse. Feeling bad again only reinforces how much this disease affects my mood - and how much I need the T3 - which doctors refused to give me for so long. I now know that treating Hypothryoidism takes years of patience. I'm not complaining about that and lord knows I'm glad this is a "solveable" medical condition. I just wish the doctors had prepared me for all this last year when it all started. It is so much more complicated than it is made out to be.
From: Rod on 8 Jul 2008 03:06 district wrote: > This disease is so aggravating and I need to vent. > > What a rollercoaster hypothyroidism is. I know this is a common story > for hypothyroid patients, but I need to get it all out. > > I went from > > feeling very, very sick and not knowing what was wrong > > to being elated that I had a reason and therefore a solution - > hypothyroidism. > > I started taking Synthroid and almost immediately felt like a 16 year > old. Problem solved! or so I thought. It only lasted a week. > > I went from that to having extreme hypothyroid symptoms - I was so > sick I felt like I had the flu. > > I yo-yo'd between feeling like a 16 year old and having the flu each > time we increased my dose for 10 months while my doctor told me I > should be "fine". I had to fight to retest and increase my dose each > time. > > I found this e-mail list. I discovered that my doc was wrong on quite > a few accounts. I felt like I'd been taken advantage of. > > My depression and anxiety worsened. I pretty much had a nervous > breakdown at work because I just couldn't handle it anymore. > > I gave in, found a new doctor and switched to Armour. > > It changed my life. The difference in my mood was profound. I felt > better than I can remember ever feeling. Better in a much more > wholesome way than the Synthroid ever made me feel. My depression, > which I have suffered from for at least 15 years, literally went away. > I was motivated and energized. I was a new person. I thought, "This > is what other people feel like" > > I realized that I had spent years (years!) of beating myself up for > being "lazy" and succumbing to depression. I always thought I had a > weak character. What perspective the T3 gives me. I am so angry! I > actually felt like I didn't deserve to feel better. I didn't deserve > to feel as well as most other people do. > > This disease is invisible, insidious and destructive. The doctors, > who are supposed to help you, supposed to make visible this invisible > force, only validate your beliefs that you are "crazy" or a > hypochondriac. > > Why do we have to fight for the care we need and deserve? I used to > be so active, I used to do so much more. I realized that I've stopped > doing so many things over the years because I've simply been too > tired. I've lost part of my life to this disease and I am so angry > that doctors didn't help me more. Sooner. Better. > > Things aren't perfect. After 4 weeks of feeling great - I've slid > again. It's become very clear that I need more Armour, and probably > some straight up T4. I've been very sick and tired the past few days > while I await my test results. My mood has gotten worse. Feeling bad > again only reinforces how much this disease affects my mood - and how > much I need the T3 - which doctors refused to give me for so long. > > I now know that treating Hypothryoidism takes years of patience. I'm > not complaining about that and lord knows I'm glad this is a > "solveable" medical condition. I just wish the doctors had prepared > me for all this last year when it all started. It is so much more > complicated than it is made out to be. Rants/vents - welcome. :-) The message I have received from suffering partner, posters here, and other sources is - the medics at least appear to believe that it *is* as simple as they say, and if it isn't they don't know what to do. -- Rod Hypothyroidism is a seriously debilitating condition with an insidious onset. Although common it frequently goes undiagnosed. <www.thyromind.info> <www.thyroiduk.org> <www.altsupportthyroid.org>
From: Rodney Pont on 8 Jul 2008 06:41 On Mon, 7 Jul 2008 20:17:55 -0700 (PDT), district wrote: >I realized that I had spent years (years!) of beating myself up for >being "lazy" and succumbing to depression. I always thought I had a >weak character. What perspective the T3 gives me. I am so angry! I >actually felt like I didn't deserve to feel better. I didn't deserve >to feel as well as most other people do. I know what you mean about the 'lazy' label. In my case it's true though, I have gotten lazy. I've sat for over an hour trying to decide whether I could be bothered to reply to this :-) >Why do we have to fight for the care we need and deserve? I used to >be so active, I used to do so much more. I realized that I've stopped >doing so many things over the years because I've simply been too >tired. I've lost part of my life to this disease and I am so angry >that doctors didn't help me more. Sooner. Better. I've lost 8 years after having my thyroid destroyed and it's only recently that my TSH has decided to rise so now I'm believed when I say I don't have enough thyroid hormone. It's been at 0.1 for 7 years, rode to 2 last year and now has gone to 8.3 so they increased my dose from 100mcg to 125 daily (T4). I'd been hyper for 7 years that I know off and it's taken that long for the TSH to decide I need more hormone. I felt well in 2001 when my fT4 had fallen to 42 but since that's above the normal range and TSH was still 0.1 it was ignored. It's not really the doctors fault since they are taught that all is known about the thyroid so most of them aren't even aware of any research and most of them practising today have never treated patients by symptoms. I always smile to myself when doctors are referred to as 'practising', in the case of thyroid it's too close to the truth for a lot of patients :-) When I first heard the joke 'What's the difference between a doctor and God?" I thought it a bit harsh but I now know it has a lot of truth in it. >Things aren't perfect. After 4 weeks of feeling great - I've slid >again. It's become very clear that I need more Armour, and probably >some straight up T4. I've been very sick and tired the past few days >while I await my test results. My mood has gotten worse. Feeling bad >again only reinforces how much this disease affects my mood - and how >much I need the T3 - which doctors refused to give me for so long. A healthy person only needs about 6mcg of T3 a day. See http://www.thyroidmanager.org, chapter 3c, where it says that the liver needs T3 in order to fuel the conversion of T4 to T3. I don't know how much T3 you are getting but it may be worth while adding just T4 now since your liver ought to be able to convert it as needed. I don't know the reason you were hypo but if you have any thyroid functioning it may be seeing the extra hormone and shutting down it's production to compensate. So when you increase the dose you have a boost but that gets taken away as the thyroid slows production and you then need more hormone. That's one possibility for your roller coater ride. The good news is that eventually you should get to the point where you feel well all the time. >I now know that treating Hypothryoidism takes years of patience. I'm >not complaining about that and lord knows I'm glad this is a >"solveable" medical condition. I just wish the doctors had prepared >me for all this last year when it all started. It is so much more >complicated than it is made out to be. The doctors just know that treatment is going to be easy, it's just getting the TSH in range that matters, so there is nothing to warn you about. You now know differently. In my opinion the problem is that you simply cannot use a feedback value (TSH) to adjust an output level. My last blood test said the range was 0.1 to 3.3, I don't know of another range where the top is 33 times what it is at the bottom. The doctors just cannot see a problem with having a range that wide. If someone is healthy at 0.1 how can they be healthy still at 33 times that level? Thanks for the chance to have another rant, I do feel better for it :-) I hope it's not too long until you start to feel better more often. -- Regards - Rodney Pont The from address exists but is mostly dumped, please send any emails to the address below e-mail ngpsm4 (at) infohitsystems (dot) ltd (dot) uk
From: Alan B. Mac Farlane on 8 Jul 2008 09:18 in article 60dd34ff-2b8b-4d89-b4c5-cd73c412e1b0(a)c65g2000hsa.googlegroups.com, district at jtdistrict(a)gmail.com wrote on 7/7/08 8:17 PM: > It is so much more > complicated than it is made out to be. Only if seen through the eyes of fear is it complicated ... once the love comes in ... you will see better. It really is easy to say and easy to work out ... just hurts like hell to fix it. If the bitter salty tears are coming out you are going in the right direction ... IMO and all that rot. sumbuddie wear blind sea :)
From: Elizabeth on 8 Jul 2008 09:55
JT, I am so totally with you on what you have written. Your posts have helped a lot of people, and I don't know what your faith or spirituality may be, but if you believe that we are put here for a purpose, maybe that is part of it. Anger is not a bad thing. Has anything great been accomplished in this world without strong emotion behind it? In time, the anger will subside, as all feelings do eventually. To have a taste of what feeling good again is like is better than some people who have not had the chance yet. I believe your heart is in the fight and you will get there soon. Elizabeth "district" <jtdistrict(a)gmail.com> wrote in message news:60dd34ff-2b8b-4d89-b4c5-cd73c412e1b0(a)c65g2000hsa.googlegroups.com... > This disease is so aggravating and I need to vent. > > What a rollercoaster hypothyroidism is. I know this is a common story > for hypothyroid patients, but I need to get it all out. > > I went from > > feeling very, very sick and not knowing what was wrong > > to being elated that I had a reason and therefore a solution - > hypothyroidism. > > I started taking Synthroid and almost immediately felt like a 16 year > old. Problem solved! or so I thought. It only lasted a week. > > I went from that to having extreme hypothyroid symptoms - I was so > sick I felt like I had the flu. > > I yo-yo'd between feeling like a 16 year old and having the flu each > time we increased my dose for 10 months while my doctor told me I > should be "fine". I had to fight to retest and increase my dose each > time. > > I found this e-mail list. I discovered that my doc was wrong on quite > a few accounts. I felt like I'd been taken advantage of. > > My depression and anxiety worsened. I pretty much had a nervous > breakdown at work because I just couldn't handle it anymore. > > I gave in, found a new doctor and switched to Armour. > > It changed my life. The difference in my mood was profound. I felt > better than I can remember ever feeling. Better in a much more > wholesome way than the Synthroid ever made me feel. My depression, > which I have suffered from for at least 15 years, literally went away. > I was motivated and energized. I was a new person. I thought, "This > is what other people feel like" > > I realized that I had spent years (years!) of beating myself up for > being "lazy" and succumbing to depression. I always thought I had a > weak character. What perspective the T3 gives me. I am so angry! I > actually felt like I didn't deserve to feel better. I didn't deserve > to feel as well as most other people do. > > This disease is invisible, insidious and destructive. The doctors, > who are supposed to help you, supposed to make visible this invisible > force, only validate your beliefs that you are "crazy" or a > hypochondriac. > > Why do we have to fight for the care we need and deserve? I used to > be so active, I used to do so much more. I realized that I've stopped > doing so many things over the years because I've simply been too > tired. I've lost part of my life to this disease and I am so angry > that doctors didn't help me more. Sooner. Better. > > Things aren't perfect. After 4 weeks of feeling great - I've slid > again. It's become very clear that I need more Armour, and probably > some straight up T4. I've been very sick and tired the past few days > while I await my test results. My mood has gotten worse. Feeling bad > again only reinforces how much this disease affects my mood - and how > much I need the T3 - which doctors refused to give me for so long. > > I now know that treating Hypothryoidism takes years of patience. I'm > not complaining about that and lord knows I'm glad this is a > "solveable" medical condition. I just wish the doctors had prepared > me for all this last year when it all started. It is so much more > complicated than it is made out to be. |