Pancaking...
in [Ostomy]
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From: tom spillman on 13 Apr 2006 08:20 I am having a REAL problem. I was diagnosed in December, 1999 as a stage III. I had a colostomy in June of 2000. I have had a number of surgeries, chemo and radiation. However, I had a checkup in March at M D Anderson and I was STILL disease free! I was using the same pouch since 2001 with good results. I could usually get wear between five and eight days. Last fall, my reliable pouching system seemed to fail me. Pouches started to fail. I seldom got as long as four days. I had not changed anything in my pouching system or my diet that I was aware of. First I went to the manufacturer to see if it was a bad batch. They sent a replacement box and I had exactly the same problem. Since then, I have received samples from a number of different manufacturers and still have the problem I did some research and found that my problem appears to be called "pancaking", according to Coloplast. I have been working with an ET nurse at CyMed who has been very helpful. She has sent me a number of samples to try, but so far, none have been the answer. The pouch which was the most comfortable had an integral filter which was very comfortable, but it seems to exacerbate the problem by removing air from the pouch. The best results I have had recently were with another CyMed pouch and she is sending me more samples of those. I am also going to look at my diet. I have made no changes to my diet that I am aware of, but I have noticed that some meals seem to cause more troubles than others. I changed the pouch last night before bed and had the problem again this morning. Last night we had pasta and a salad. Does anyone have any suggestions? This is really getting to be a real pain and a hassle!! Thanks in advance... Tom
From: waruth on 13 Apr 2006 13:02 Just exactly what is the definition of "pancaking"? Did the Coloplast representative define it or simply say you were a victim of it. Did he/she suggest a remedy? Thank you Tom for your post. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
From: tom spillman on 13 Apr 2006 13:56 waruth(a)webtv.net wrote: > Just exactly what is the definition of "pancaking"? Did the Coloplast > representative define it or simply say you were a victim of it. Did > he/she suggest a remedy? > Thank you Tom for your post. > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > fecal matter builds up on top of the stoma and doesn't drop to the bottom of the pouch. As it continues to build up it often gets between the wafer and the peristomal skin, causing a leak in the system. You can get more info on the Coloplast website: http://tinyurl.com/zoo3n I hope that helps... Regards.. Tom
From: M on 13 Apr 2006 16:29 I have an ileo not a colo, but I'm presuming it would be similar to pancaking with an ileo, in that the output tends to stay at the top of the bag and not move down so that in the end there is so much output at the top that it's leaks out under the flange? There are a couple of ways that I've used to solve this problem with an ileo, and hopefully one or both of these might help a bit. One is to try drinking extra water. As an ileostomate drinking fluids in very important anyway, but when I don't drink enough, my output is a lot thicker and tends not to slide to the bottom of the bag as easy, so by drinking the extra water, the output will now be a bit looser and hopefully won't sit at the top of the bag. Another way is to pour a few drops of baby oil into the bag before putting it on, this will make the inside of the bag more slippery again helping the output to move down to the bottom of the bag a bit easier. I hope this is of some help, if it's not quite relevant to you with a colostomy, I do appologise, maybe if you could describe in more details of what is actually happening when I may be able to help some more. Best wishes Michele ileo May 2002 due to CD dx'd in 1996 -- -------------------------------------- Please remove the .nospam. to reply -------------------------------------- "tom spillman" <nospam(a)austin.rr.com> wrote in message news:amr%f.25622$_26.1321(a)tornado.texas.rr.com... >I am having a REAL problem. > > I was diagnosed in December, 1999 as a stage III. I had a colostomy in > June of 2000. I have had a number of surgeries, chemo and radiation. > However, I had a checkup in March at M D Anderson and I was STILL > disease free! > > I was using the same pouch since 2001 with good results. I could > usually get wear between five and eight days. Last fall, my reliable > pouching system seemed to fail me. Pouches started to fail. I seldom > got as long as four days. I had not changed anything in my pouching > system or my diet that I was aware of. > > First I went to the manufacturer to see if it was a bad batch. They > sent a replacement box and I had exactly the same problem. Since then, > I have received samples from a number of different manufacturers and > still have the problem I did some research and found that my problem > appears to be called "pancaking", according to Coloplast. I have been > working with an ET nurse at CyMed who has been very helpful. She has > sent me a number of samples to try, but so far, none have been the > answer. The pouch which was the most comfortable had an integral filter > which was very comfortable, but it seems to exacerbate the problem by > removing air from the pouch. The best results I have had recently were > with another CyMed pouch and she is sending me more samples of those. > > I am also going to look at my diet. I have made no changes to my diet > that I am aware of, but I have noticed that some meals seem to cause > more troubles than others. I changed the pouch last night before bed > and had the problem again this morning. Last night we had pasta and a > salad. > > Does anyone have any suggestions? > > This is really getting to be a real pain and a hassle!! > > Thanks in advance... > > Tom
From: tom spillman on 13 Apr 2006 16:36
M wrote: > I have an ileo not a colo, but I'm presuming it would be similar to > pancaking with an ileo, in that the output tends to stay at the top of the > bag and not move down so that in the end there is so much output at the top > that it's leaks out under the flange? > > There are a couple of ways that I've used to solve this problem with an > ileo, and hopefully one or both of these might help a bit. > > One is to try drinking extra water. As an ileostomate drinking fluids in > very important anyway, but when I don't drink enough, my output is a lot > thicker and tends not to slide to the bottom of the bag as easy, so by > drinking the extra water, the output will now be a bit looser and hopefully > won't sit at the top of the bag. > > Another way is to pour a few drops of baby oil into the bag before putting > it on, this will make the inside of the bag more slippery again helping the > output to move down to the bottom of the bag a bit easier. > > I hope this is of some help, if it's not quite relevant to you with a > colostomy, I do appologise, maybe if you could describe in more details of > what is actually happening when I may be able to help some more. > > Best wishes > Michele > ileo May 2002 due to CD dx'd in 1996 > Thanks for the information. Unfortunately, I was already familiar with these. I tried oil in the pouch with no luck. I could see no change in the behavior. I may need to try it again... I drink LOTS of water, also... Regards... Tom |