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New message board for FAP/Gardners/Desmoid people Hello all, After years of telling myself that I wanted to do SOMETHING to give back to all of the semi-anonymous people online that helped me when I was at my worst, I finally have started to do something. I've setup a message board at http://desmoids.org/bboard My background is FAP/Gardner Syndrome/Desmo... 4 Feb 2010 21:24
HL475 Get £30 for taking part in a survey about Ostomy of Stoma operations The Patients Voice is look for people in Great Britain who have had a Colostomy, Ileostomy or Urostomy in the last 12 months. If you have we would be delighted to give you £30 for taking part in a twenty minute survey. Or £20 if you can recommend somebody who does qualify For more information please go to ht... 7 Dec 2009 11:49
Bags I have been using supermarket plastic bags for disposing of my used colostomy bags but , as they are no longer being handed out in many places what else can I use. ... 20 Sep 2009 23:05
Ostomy Now that plastic bags are no longer given by supermarkets what do people use to dispose of colostomy bags such as Hollister. ... 7 Sep 2009 01:17
Deleted Posts? Deano wrote: I keep seeing posts that won't let me read them. Is anybody posting here at all?? ;-Deano And now I am getting posts from February...... ... 3 Sep 2009 08:19
ostomy gas and odour hi all i was just would like to know if there was a product that can control both gas and odour i am not to sure wate to do about it it drives me nuts ... 3 Sep 2009 08:19
funny video http://www.photonews-fotovideo.it/videos/24/salvataggio-acrobatico-di-un-operaio-a-torino ... 3 Sep 2009 08:19
AT&T Usenet Netnews Service Shutting Down I was told on 6/20 by "Robert" (2nd level AT&T Customer Service rep) that the usenet service I've been using ( news.col.sbcglobal.net ) will still be available post 7/15. Hope he's right. PJF <news-support(a)sbcglobal.net> wrote in message news:1245343632.75727_9031(a)flph199.ffdc.sbc.com... Please note... 3 Sep 2009 08:19
Colorectal cancer culprit found I'm doing something bad by releasing this press release early. But It's something that has given me so much hope in my battle and I hope it does the same for others. I've snipped out the extreme details as they are not pertinent to the general public and to not destroy the noteworthiness of the real press relea... 3 Sep 2009 08:19
double pouches greetings. about a month ago i had "pelvic exenteration" surgery. this involved removing by bladder and prostate, among other tissue. previously, i had an colostomy installed in 2005. now i have two pouches! but i am having a terrible time with leaking pouches. i suspect this has to do with the dip in my belly ca... 28 Nov 2008 02:03
Nuhope support belts? How do you determine which size support belt to order. What width? What size hole? How do you place the hole on the pouch? Haven't seen these things explained anywhere. Thanks WLW ... 5 Nov 2008 19:43
Ostomates With Sleep Apnea Forgive the cross-posting, but I would like to raise a topic which should be of interest to both groups. I am a sleep apniac and an ostomate. I generally have no problem with the two conditions. I make certain my pouch is empty prior to going to sleep, and should it fill during the night I will awaken to deal ... 11 Oct 2008 12:35 |