From: The Rocket Scientist on
Forgive the cross-posting, but I would like to raise a topic which
should be of interest to both groups.

I am a sleep apniac and an ostomate. I generally have no problem with
the two conditions. I make certain my pouch is empty prior to going
to sleep, and should it fill during the night I will awaken to deal
with it.

An illeostomate on ASO has posted a concern about a possible sleep
disorder. He suspects OSA, but is frightened that using CPAP might
put him into a deep sleep and he will be unable to awaken and empty
his pouch.

So is there anyone on ASSD who might be able to share his or her
experience with him, and maybe provide some positive reinforcement?

Thanks ever so much, and Pleasant Dreams.

Bill Sullivan
From: GB on
The Rocket Scientist wrote:
> Forgive the cross-posting, but I would like to raise a topic which
> should be of interest to both groups.
>
> I am a sleep apniac and an ostomate. I generally have no problem with
> the two conditions. I make certain my pouch is empty prior to going
> to sleep, and should it fill during the night I will awaken to deal
> with it.

Forgive some basic questions, as I have apnea but not ostomy.

What wakes you, and why wouldn't that apply to the person you are asking
about?

>
> An illeostomate on ASO has posted a concern about a possible sleep
> disorder. He suspects OSA, but is frightened that using CPAP might
> put him into a deep sleep and he will be unable to awaken and empty
> his pouch.

Surely, he needs to get the OSA seen to? On the whole, people using cpap
don't sleep any deeper than people without apnea, and probably less deeply.
So, using OSA as a kind of alarm clock is unnecessary. Personally, I cannot
imagine trying to sleep without cpap, as my quality of life would be so
impaired.

Finally, I take it that the problems from a pouch getting too full are not
very nice. Can you use a larger pouch at night time? What happens, in any
case, if you roll over onto the pouch whist asleep?

As I said, apologies for the very basic questions.



From: The Rocket Scientist on
On Sep 30, 3:24 pm, "GB" <NOTsome...(a)microsoft.com> wrote:
> The Rocket Scientist wrote:
> > Forgive the cross-posting, but I would like to raise a topic which
> > should be of interest to both groups.
>
> > I am a sleep apniac and an ostomate.  I generally have no problem with
> > the two conditions.  I make certain my pouch is empty prior to going
> > to sleep, and should it fill during the night I will awaken to deal
> > with it.
>
> Forgive some basic questions, as I have apnea but not ostomy.
>
> What wakes you, and why wouldn't that apply to the person you are asking
> about?
>
>
>
> > An illeostomate on ASO has posted a concern about a possible sleep
> > disorder.  He suspects OSA, but is frightened that using CPAP might
> > put him into a deep sleep and he will be unable to awaken and empty
> > his pouch.
>
> Surely, he needs to get the OSA seen to? On the whole, people using cpap
> don't sleep any deeper than people without apnea, and probably less deeply.
> So, using OSA as a kind of alarm clock is unnecessary. Personally, I cannot
> imagine trying to sleep without cpap, as my quality of life would be so
> impaired.
>
> Finally, I take it that the problems from a pouch getting too full are not
> very nice. Can you use a larger pouch at night time? What happens, in any
> case, if you roll over onto the pouch whist asleep?
>
> As I said, apologies for the very basic questions.

No apologies necessary. I have advised him (as I advise anyone
suspecting a sleep disorder) to consult a board-certified sleep
specialist. And I have shared my own experience with him. I am
reaching out to the sleep disorder newsgroup in search of ostomates
who might also share their experience. The goal is to reassure him.

Pleasant Dreams

Bill Sullivan
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