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From: The Rocket Scientist on 30 Sep 2008 12:12 Forgive the cross-posting, but I would like to raise a topic which should be of interest to both groups. I am a sleep apniac and an ostomate. I generally have no problem with the two conditions. I make certain my pouch is empty prior to going to sleep, and should it fill during the night I will awaken to deal with it. An illeostomate on ASO has posted a concern about a possible sleep disorder. He suspects OSA, but is frightened that using CPAP might put him into a deep sleep and he will be unable to awaken and empty his pouch. So is there anyone on ASSD who might be able to share his or her experience with him, and maybe provide some positive reinforcement? Thanks ever so much, and Pleasant Dreams. Bill Sullivan
From: GB on 30 Sep 2008 15:24 The Rocket Scientist wrote: > Forgive the cross-posting, but I would like to raise a topic which > should be of interest to both groups. > > I am a sleep apniac and an ostomate. I generally have no problem with > the two conditions. I make certain my pouch is empty prior to going > to sleep, and should it fill during the night I will awaken to deal > with it. Forgive some basic questions, as I have apnea but not ostomy. What wakes you, and why wouldn't that apply to the person you are asking about? > > An illeostomate on ASO has posted a concern about a possible sleep > disorder. He suspects OSA, but is frightened that using CPAP might > put him into a deep sleep and he will be unable to awaken and empty > his pouch. Surely, he needs to get the OSA seen to? On the whole, people using cpap don't sleep any deeper than people without apnea, and probably less deeply. So, using OSA as a kind of alarm clock is unnecessary. Personally, I cannot imagine trying to sleep without cpap, as my quality of life would be so impaired. Finally, I take it that the problems from a pouch getting too full are not very nice. Can you use a larger pouch at night time? What happens, in any case, if you roll over onto the pouch whist asleep? As I said, apologies for the very basic questions.
From: The Rocket Scientist on 2 Oct 2008 15:34 On Sep 30, 3:24 pm, "GB" <NOTsome...(a)microsoft.com> wrote: > The Rocket Scientist wrote: > > Forgive the cross-posting, but I would like to raise a topic which > > should be of interest to both groups. > > > I am a sleep apniac and an ostomate. I generally have no problem with > > the two conditions. I make certain my pouch is empty prior to going > > to sleep, and should it fill during the night I will awaken to deal > > with it. > > Forgive some basic questions, as I have apnea but not ostomy. > > What wakes you, and why wouldn't that apply to the person you are asking > about? > > > > > An illeostomate on ASO has posted a concern about a possible sleep > > disorder. He suspects OSA, but is frightened that using CPAP might > > put him into a deep sleep and he will be unable to awaken and empty > > his pouch. > > Surely, he needs to get the OSA seen to? On the whole, people using cpap > don't sleep any deeper than people without apnea, and probably less deeply. > So, using OSA as a kind of alarm clock is unnecessary. Personally, I cannot > imagine trying to sleep without cpap, as my quality of life would be so > impaired. > > Finally, I take it that the problems from a pouch getting too full are not > very nice. Can you use a larger pouch at night time? What happens, in any > case, if you roll over onto the pouch whist asleep? > > As I said, apologies for the very basic questions. No apologies necessary. I have advised him (as I advise anyone suspecting a sleep disorder) to consult a board-certified sleep specialist. And I have shared my own experience with him. I am reaching out to the sleep disorder newsgroup in search of ostomates who might also share their experience. The goal is to reassure him. Pleasant Dreams Bill Sullivan
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