From: me on
Anon <anon(a)nowhere.net> wrote:

>I had problems with Canasa, but in my opinion a drug delivered to the
>problem, that doesn't go throughout your body is better.

Normally I would agree

But suppose the UC is higher up in the colon where the
suppository fluids may not reach as it melt in the
body?

Wouldn't there be some advantage to taking an oral drug
as well?

Just curious...
From: Anon on
It bothered me, I felt raw inside and symptoms didn't improve.

me(a)privacy.net wrote:
> Anon <anon(a)nowhere.net> wrote:
>
>> I had problems with Canasa
>
> what problems did you have?
From: Anon on
Every time I post my personal opinion on the subject I get flamed. In
any event, keeping it brief....

Go to: http://www.savvypatients.com/ibd.htm and read the Galland
articles on Leaky Gut. In fact read them all. If you are in the NYC
area, make an appointment with him - he was still practicing the last
time I looked.

I became convinced that intestinal flora (yeah bacteria) was the cause
of my problems when a course of Cipro gave me 100% relief.

I went 100% carb free. Mostly because of the 50 pounds of steroid
weight I gained. I took the herbal supplements mentioned in the article
for 6 weeks, two weeks before the end I began probiotics, several
different kinds, only bought refrigerated varieties.

I continue to take some probiotics on occasion, but they have gotten old
and are likely useless at this point.

Everyone complains of gas pains with probiotics - it is normal when you
are changing the mix of bacteria in the gut.

I must say that before doing this procedure, I resolved my GERD, after 6
years of Zantac and 3 years of Previcid. It has been written here
before that stomach acid is important to kill off bacteria that doesn't
belong in the gut.

JK



anon wrote:
> What helped you go into remission? Were there any foods you preferred or
> avoided?
>
> "Anon" <anon(a)nowhere.net> wrote in message
> news:OCj4k.4283$LL4.596(a)bignews7.bellsouth.net...
>> I had problems with Canasa, but in my opinion a drug delivered to the
>> problem, that doesn't go throughout your body is better.
>>
>> While I hated oral steroids, the cortisone suppositories and enemas were
>> very effective for me. Again, different people have different results.
>>
>> I had severe crohns colitis for about three years, but am currently
>> without a serious problem for 4 years and am not taking any meds for three
>> years.
>>
>> me(a)privacy.net wrote:
>>> I'm age 50 male with UC diagnosed abt three years ago.
>>>
>>> I'm currently using only Canasa suppositories..... one
>>> at night before bed. fairly good results but nor
>>> perfect...still have problems.
>>>
>>> I saw an add on TV last night for 30 day supply of oral
>>> drug Lialda....so I signed up for it and go the coupon
>>>
>>> Now I just have to get the doc to make a scrip for me
>>> for it.
>>>
>>> I'm curious what people think abt oral ASA vs
>>> suppository style ASA and if its worth me giving the
>>> oral meds a try?
>>>
>>> see link
>>>
>>> http://www.lialda.com/aboutLialda/aboutLialda.asp
>
>
From: anon on
Thanks--I know all about getting flamed from the surly know-it-alls out
here. The information you provided is quite interesting and valuable.


"Anon" <anon(a)nowhere.net> wrote in message
news:MnC4k.6356$s77.5752(a)bignews3.bellsouth.net...
> Every time I post my personal opinion on the subject I get flamed. In any
> event, keeping it brief....
>
> Go to: http://www.savvypatients.com/ibd.htm and read the Galland articles
> on Leaky Gut. In fact read them all. If you are in the NYC area, make an
> appointment with him - he was still practicing the last time I looked.
>
> I became convinced that intestinal flora (yeah bacteria) was the cause of
> my problems when a course of Cipro gave me 100% relief.
>
> I went 100% carb free. Mostly because of the 50 pounds of steroid weight
> I gained. I took the herbal supplements mentioned in the article for 6
> weeks, two weeks before the end I began probiotics, several different
> kinds, only bought refrigerated varieties.
>
> I continue to take some probiotics on occasion, but they have gotten old
> and are likely useless at this point.
>
> Everyone complains of gas pains with probiotics - it is normal when you
> are changing the mix of bacteria in the gut.
>
> I must say that before doing this procedure, I resolved my GERD, after 6
> years of Zantac and 3 years of Previcid. It has been written here before
> that stomach acid is important to kill off bacteria that doesn't belong in
> the gut.
>
> JK
>
>
>
> anon wrote:
>> What helped you go into remission? Were there any foods you preferred or
>> avoided?
>>
>> "Anon" <anon(a)nowhere.net> wrote in message
>> news:OCj4k.4283$LL4.596(a)bignews7.bellsouth.net...
>>> I had problems with Canasa, but in my opinion a drug delivered to the
>>> problem, that doesn't go throughout your body is better.
>>>
>>> While I hated oral steroids, the cortisone suppositories and enemas were
>>> very effective for me. Again, different people have different results.
>>>
>>> I had severe crohns colitis for about three years, but am currently
>>> without a serious problem for 4 years and am not taking any meds for
>>> three years.
>>>
>>> me(a)privacy.net wrote:
>>>> I'm age 50 male with UC diagnosed abt three years ago.
>>>>
>>>> I'm currently using only Canasa suppositories..... one
>>>> at night before bed. fairly good results but nor
>>>> perfect...still have problems.
>>>>
>>>> I saw an add on TV last night for 30 day supply of oral
>>>> drug Lialda....so I signed up for it and go the coupon
>>>>
>>>> Now I just have to get the doc to make a scrip for me
>>>> for it.
>>>>
>>>> I'm curious what people think abt oral ASA vs
>>>> suppository style ASA and if its worth me giving the
>>>> oral meds a try?
>>>>
>>>> see link
>>>>
>>>> http://www.lialda.com/aboutLialda/aboutLialda.asp
>>

From: Rufus on
me(a)privacy.net wrote:
> Anon <anon(a)nowhere.net> wrote:
>
>> I had problems with Canasa, but in my opinion a drug delivered to the
>> problem, that doesn't go throughout your body is better.
>
> Normally I would agree
>
> But suppose the UC is higher up in the colon where the
> suppository fluids may not reach as it melt in the
> body?
>
> Wouldn't there be some advantage to taking an oral drug
> as well?
>
> Just curious...

I've been given a combination of both Asacol and Rowasa at the same time
for one month periods to ease a bleeding flare quickly - that was back
when my diagnosis was "indeterminate". I was told that that amounts to
attacking the flare from both sides, and that some delivery forms are
more effective in certain areas of the bowel.

What I didn't do (because I wasn't told to) was to stay on the Asacol
once the bleeding had been stopped (which was why I never encountered
any side effects from it until after I was hospitalized and then put on
it for a longer term). They were just treating the bleeding and not
maintaining me. Yes, a one month course stopped the episode, but only
for about six months of not taking anything at all. Then I was back
with another one.

Now that things are under fair control and I've been strictly sticking
with my regimen of Colazal (balsalazide) I've been doing really well -
no bleeding for nearly a year, other than after some extensive
biopsies...and that ceased after about a week.

I have some left side discomfort, but very minimal compared to what I
had been suffering...and I haven't even had to take a pain killer in a
few months now.

--
- Rufus