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From: sosw222 on 4 Nov 2005 17:49
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From: fen...(a)aol.com (Fenisz)
Newsgroups: alt.support.tourette
Date: 30 Dec 2003 08:00:19 GMT
References: <3FF12529.C7E4B012(a)indyme.com>
Organization: AOL http://www.aol.com
Subject: Re: Care Facilities
Message-ID: <20031230030019.26046.00002129(a)mb-m06.aol.com>

>Hi All,
>
>I'm new to this newsgroup and I may not even be doing this right, so
>bear with me. I am Steve Alborn from Escondido, Ca. My wife is Liz and
>our son, Jeff, who is 18, has severe, and I emphasize severe, Tourette
>Syndrome. He is on various meds which don't appear to do much good any
>more, and we are at our wits end. I don't know if he is now reacting to
>the drugs or if it's the natural progression of the disease, but he
>can't hold still, bangs the walls, injures himself by slapping his face
>and banging his feet against things, along with the screaming and
>swearing. If anyone knows of care homes where they can just detox him
>and start from square one, it would be appreciated. He's on Risperdal,
>Zoloft, Zyprexa, and Depakote. We took him off Abilify recently and
>Ativan several months ago. I'm not convinced our doctors know what they
>are talking about, hence I think it's time to clean him out and start
>over. We can't do it at home or he may get totally out of hand coming
>off the meds. If anyone knows of anyone (good doctors), anything, or
>anyplace that may help please contact me. Thanks!
>
>Steve Alborn
>scalb...(a)juno.com
>
>--------------DC46D6CA8A2A48930CD1CEFE
>Content-Type: text/html; charset=us-ascii
>Content-Transfer-Encoding: 7bit
>
>Hi All,
>I'm new to this newsgroup and I may not even bedoing this right, so bear with
>me. I am Steve Alborn from Escondido,Ca. My wife is Liz and our son, Jeff,
>who is 18, has severe, andI emphasize severe, Tourette Syndrome. He is on
>various medswhich don't appear to do much good any more, and we are at our
>wits end. I don't know if he is now reacting to the drugs or if it's the
>naturalprogression of the disease, but he can't hold still, bangs the walls,
>injureshimself by slapping his face and banging his feet against things,
>alongwith the screaming and swearing. If anyone knows of care homes
>wherethey can just detox him and start from square one, it would be
>appreciated. He's on Risperdal, Zoloft, Zyprexa, and Depakote. We took him
>offAbilify recently and Ativan several months ago. I'm not convincedour
>doctors know what they are talking about, hence I think it's time toclean him
>out and start over. We can't do it at home or he may gettotally out of hand
>coming off the meds. If anyone knows of anyone(good doctors), anything, or
>anyplace that may help please contact me. Thanks!
>Steve Alborn
>scalb...(a)juno.com
>
Steve,
The doctor I use is a Neuropharmopsychiatrist. He got his training at
NIMH and
is board certified. If you can do some research as to someone in your
area
with these credentials, I think you might have some better luck. Mine
is in
Boulder, CO. Maybe a call to NIMH might help you find someone.
Fred Enisz

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