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From: Robert on 3 Sep 2005 22:16 Hi. I've been thru many tests this year, and the results fit best with a diagnosis of Irritable Bowel Syndrome. Now, after some recent blood tests, my GI doc is thinking I have Celiac Disease. He wants to run another endoscopy (I've already had one this year) to take a biopsy from the small intestine. He is basing this preliminary diagnosis solely on my t-Transglutaminase (tTG) IgA reading of 9 (a reading of 4-10 is indicated as a weak positive result; greater than 10 is positive). The other blood test results were: Antigliadin IgA: 2 (negative) Antigliadin IgG: 8 (negative) My question to you: if one has Celiac Disease, do you get GI distress when eating gluten, wheat, grains, etc.? I ask because, I do not. There is a long list of foods that trigger my IBS symptoms, but wheat products are not among them. In fact, I eat plenty of bread, cereals, pasta and oat products because they have never bothered me. I would think that if I truly had CD, I would have some kind of obvious reaction to wheat products. Is that how CD works? Or could it be that the wheat may not produce obvious and immediate symptoms, but still does damage that may be responsible for my sensitivity to other foods? Please share your thoughts on this. (I was unable to ask my doctor, because he is so wired on caffeine that he doesn't hang around long enough for me to take in all the data he has just thrown at me and come up with questions like this. I need to get a new doctor. I called back later and asked his nurse, and she thought I was right: a true CD patient would have a noticeable reaction to wheat products.) Thanks in advance for your assistance! Robert
From: Shirley Thebaglady on 4 Sep 2005 07:26 If you ignore the diagnosis of your tests you can be damaging your intestines. I ignored my symptoms (not knowing I had a problem for years internally). I have had cancer, have osteoporosis, allergies, Gerds and constipation for years. Since I took wheat and gluten out of my diet, I feel better, more energy, no rashes and no more stomachaches. Some people have diarrhea for years and do not know why until they go gluten free. shirley
From: Christopher Jahn on 4 Sep 2005 08:58 Robert <nuance(a)post.com> wrote in news:h2mkh1l6l6lji6ttmrgrg91dvd3sb6g736 @4ax.com: > > My question to you: if one has Celiac Disease, do you get > GI distress when eating gluten, wheat, grains, etc.? I didn't have many GI problems; my symptoms included sinuses, muscle cramps, joint pain and chronic fatigue. Once in a great while I'd cramp after a spaghetti dinner, and just before I was diagnosed I did start having problems with bread staying down. But nothing that made me say "ah HA!" I had 38 years of an iron gut. -- }:-) Christopher Jahn {:-( http://home.comcast.net/~xjahn/Main.html The only real problem in life is what to do next.
From: Janice on 5 Sep 2005 18:00 The results may not be apparent for a week or so of no gluten intakes. It, like most allergies and intolerences, is very subtle getting free of it but very dramatic getting back on. Sort of like "You can't see the forest for the trees" or vice versa...LOL When you react to foods or substances all the time it becomes "normal" for you. When you get off and feel the difference it is amazing. Gluten will take about a week at least to clear your system and you flora starting to return to normal. healing takes much longer and much more abstinence. Best of luck! "Robert" <nuance(a)post.com> wrote in message news:h2mkh1l6l6lji6ttmrgrg91dvd3sb6g736(a)4ax.com... > Hi. > > I've been thru many tests this year, and the results fit best > with a diagnosis of Irritable Bowel Syndrome. Now, after > some recent blood tests, my GI doc is thinking I have Celiac > Disease. He wants to run another endoscopy (I've already > had one this year) to take a biopsy from the small intestine. > > He is basing this preliminary diagnosis solely on my > t-Transglutaminase (tTG) IgA reading of 9 (a reading of 4-10 > is indicated as a weak positive result; greater than 10 is positive). > > The other blood test results were: > Antigliadin IgA: 2 (negative) > Antigliadin IgG: 8 (negative) > > My question to you: if one has Celiac Disease, do you get > GI distress when eating gluten, wheat, grains, etc.? > I ask because, I do not. There is a long list of foods that trigger > my IBS symptoms, but wheat products are not among them. > In fact, I eat plenty of bread, cereals, pasta and oat products > because they have never bothered me. I would think that if I > truly had CD, I would have some kind of obvious reaction to > wheat products. > > Is that how CD works? Or could it be that the wheat may not > produce obvious and immediate symptoms, but still does damage > that may be responsible for my sensitivity to other foods? > Please share your thoughts on this. > > (I was unable to ask my doctor, because he is so wired on > caffeine that he doesn't hang around long enough for me to > take in all the data he has just thrown at me and come up with > questions like this. I need to get a new doctor. I called back later > and asked his nurse, and she thought I was right: a true CD patient > would have a noticeable reaction to wheat products.) > > Thanks in advance for your assistance! > > > Robert >
From: Robert on 7 Sep 2005 22:30
Many thanks to everyone who replied. I am just starting down this road, and I'm sure I'll have more questions for you in the days ahead. I'm finding lots of info thru Google, etc., but I'm especially interested in feedback from people who are actually living with this condition. Thanks again! Robert On Mon, 5 Sep 2005 18:00:01 -0400, "Janice" <Janice(a)hotmail.ca> wrote: >The results may not be apparent for a week or so of no gluten intakes. It, >like most allergies and intolerences, is very subtle getting free of it but >very dramatic getting back on. Sort of like "You can't see the forest for >the trees" or vice versa...LOL > >When you react to foods or substances all the time it becomes "normal" for >you. When you get off and feel the difference it is amazing. Gluten will >take about a week at least to clear your system and you flora starting to >return to normal. healing takes much longer and much more abstinence. > >Best of luck! > >"Robert" <nuance(a)post.com> wrote in message >news:h2mkh1l6l6lji6ttmrgrg91dvd3sb6g736(a)4ax.com... >> Hi. >> >> I've been thru many tests this year, and the results fit best >> with a diagnosis of Irritable Bowel Syndrome. Now, after >> some recent blood tests, my GI doc is thinking I have Celiac >> Disease. He wants to run another endoscopy (I've already >> had one this year) to take a biopsy from the small intestine. >> >> He is basing this preliminary diagnosis solely on my >> t-Transglutaminase (tTG) IgA reading of 9 (a reading of 4-10 >> is indicated as a weak positive result; greater than 10 is positive). >> >> The other blood test results were: >> Antigliadin IgA: 2 (negative) >> Antigliadin IgG: 8 (negative) >> >> My question to you: if one has Celiac Disease, do you get >> GI distress when eating gluten, wheat, grains, etc.? >> I ask because, I do not. There is a long list of foods that trigger >> my IBS symptoms, but wheat products are not among them. >> In fact, I eat plenty of bread, cereals, pasta and oat products >> because they have never bothered me. I would think that if I >> truly had CD, I would have some kind of obvious reaction to >> wheat products. >> >> Is that how CD works? Or could it be that the wheat may not >> produce obvious and immediate symptoms, but still does damage >> that may be responsible for my sensitivity to other foods? >> Please share your thoughts on this. >> >> (I was unable to ask my doctor, because he is so wired on >> caffeine that he doesn't hang around long enough for me to >> take in all the data he has just thrown at me and come up with >> questions like this. I need to get a new doctor. I called back later >> and asked his nurse, and she thought I was right: a true CD patient >> would have a noticeable reaction to wheat products.) >> >> Thanks in advance for your assistance! >> >> >> Robert >> > |