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From: DebbRussell on 3 Jun 2007 13:29
I'm looking for new Ostomy friends to share
information with and just to talk to. It's easier to talk to people who
are in the same boat as myself. Have had this illeostomy since 2005. And I
am considered to be a "Problem Child". Am going into hospital soon for my
third hernia and a twisted bowel. I also have mesh inside.Am having lots
of problems, and this upcommng surgery will be my 5th! Please write and
share, helping one another is what it's all about.

From: tom spillman on 3 Jun 2007 14:06
DebbRussell wrote:
> I'm looking for new Ostomy friends to share
> information with and just to talk to. It's easier to talk to people who
> are in the same boat as myself. Have had this illeostomy since 2005. And I
> am considered to be a "Problem Child". Am going into hospital soon for my
> third hernia and a twisted bowel. I also have mesh inside.Am having lots
> of problems, and this upcommng surgery will be my 5th! Please write and
> share, helping one another is what it's all about.
>
I can identify with your problems. I have had a total of about 13
surgeries since my diagnosis of colorectal cancer in 1999. I was given
a colostomy in 2000 (lucky me!).

My surgeries are not as bad as it sounds. The last 6 were relatively
minor. I had a port-a-cath installed and removed to facilitate chemo, I
have had two cataract lens implants installed (I am 76!), and I have had
a couple of stents replaced which is relatively minor. There was some
radiation damage from pre-surgical radiation which damaged a ureter.
This was found during a CT scan on routine follow up and I went so see a
urologist who recommended installing a stent to keep my kidney healthy,
which I thought was a great idea! Because of potential mineral build
ups, it's replaces about every six months under low sedation as day
surgery. I'm due to have another stent replaced on Wednesday. While
there in there, they are going to zap my enlarged prostate with a laser
to improve my benign prostatic hyperplasia, something that's adverted
here quite regularly as a means for selling medication. If they
weren't going in any way I probably would not have it done.

I have been disease free (and major surgery free!) for the last three
years or so, and I generally feel great, for my age! I took up an
instrument again that I used to play fifty years ago and I am now the
proud member of a community band. We played a concert last night that
was well received and I had a ball!

Hang in there! Things *will* get better!!

Regards...

Tom

--
Thomas M. Spillman, Jr.

Asst. Professor (retired)
Information Technology
MBA Program
School of Management
St. Edward's University
Austin, TX
From: be1952 on 4 Jun 2007 00:35
i celebrated the 5th anniversary of my ileostomy surgery last weekend.
i guess i've been lucky inasmuch as i havent had any problems since,
hmm surgical problems anyway. the usual, bags breaking, falling off
type things probably happens to everone at sometime. much of which is
more a result of the tropical environment i live in, as well as living
on my yacht.

tell me please, what is "mesh inside"?

cheers for now
bruce
north australia



On Sun, 03 Jun 2007 13:29:50 -0400, "DebbRussell"
<jrussell23(a)cogeco.ca> wrote:

>I'm looking for new Ostomy friends to share
>information with and just to talk to. It's easier to talk to people who
>are in the same boat as myself. Have had this illeostomy since 2005. And I
>am considered to be a "Problem Child". Am going into hospital soon for my
>third hernia and a twisted bowel. I also have mesh inside.Am having lots
>of problems, and this upcommng surgery will be my 5th! Please write and
>share, helping one another is what it's all about.
From: ginzu97 on 4 Jun 2007 08:57
On Jun 3, 1:29 pm, "DebbRussell" <jrussel...(a)cogeco.ca> wrote:
> I'm looking for new Ostomy friends to share
> information with and just to talk to. It's easier to talk to people who
> are in the same boat as myself. Have had this illeostomy since 2005. And I
> am considered to be a "Problem Child". Am going into hospital soon for my
> third hernia and a twisted bowel. I also have mesh inside.Am having lots
> of problems, and this upcommng surgery will be my 5th! Please write and
> share, helping one another is what it's all about.

Well, I can't say i am in the same boat, but I definately feel your
pain. I had 4 surgeries in 2 weeks last July to give me my colostomy,
then had another surgery in september to revise the stoma. I had
complications with my gallbladder and just didn't feel right for a
while. I was lucky enough to have had it reversed in May, but am still
recovering from that and of course have life long risks of ending up
with it again due to possible complications. I definately have nothing
compared to the stories i have read, but have been doing a lot of
research and learning on the various conditions as i never know when I
may end up in one of the many different situations i have read about!
This is a great forum for support and has definately helped me!!

From: beckyjean00 on 6 Jun 2007 05:08
On Jun 3, 10:29 am, "DebbRussell" <jrussel...(a)cogeco.ca> wrote:
> I'm looking for new Ostomy friends to share
> information with and just to talk to. It's easier to talk to people who
> are in the same boat as myself. Have had this illeostomy since 2005. And I
> am considered to be a "Problem Child". Am going into hospital soon for my
> third hernia and a twisted bowel. I also have mesh inside.Am having lots
> of problems, and this upcommng surgery will be my 5th! Please write and
> share, helping one another is what it's all about.

Hi there!! I have had an iliostomy since I was 13, in 1987. in 1997 I
found a dr in la that made everything internal. for 9 years I fought
to keep that internal bag and had 14 surgeries, and in october of 2006
had to go back to the external bag. I have already had 3 surgeries
since then, and now they say I have crohns ( I was diagnosed with
ulcerative colitis when I was 13)
I have been off work this time since the beginning of april, and the
last time was off for 5 months from july to december of '06. I so
understand where you are coming from!! such a cruddy hand we have been
delt. but if you dont laugh, you cry, so I try to stay positive. I
would love to keep in contact with you!! I was beginning to think that
I was the only one who had complications!
take care and hope to hear from you!!

Becky
beckyjean00(a)yahoo.com

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