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From: Island Cathy on 11 Dec 2009 21:57
While I was diagnosed with SLE 4 months ago, I'm STILL waiting to see
a rheumatologist. There are only 3 or 4 for the whole province of
Nfld and Labrador!
I have recently heard and read about parasites being a possible cause
of Lupus, or at least exacerbating the inflammation.
Has anyone else heard of this?
I am having skin, joint, and bowel complications as well as fevers.

Island Cathy
From: Shelagh on 11 Dec 2009 23:13

"Island Cathy" <destrymay(a)nl.rogers.com> wrote in message
news:f04a3619-1c28-4cde-8bc8-495423ec31e4(a)z41g2000yqz.googlegroups.com...
While I was diagnosed with SLE 4 months ago, I'm STILL waiting to see
a rheumatologist. There are only 3 or 4 for the whole province of
Nfld and Labrador!
I have recently heard and read about parasites being a possible cause
of Lupus, or at least exacerbating the inflammation.
Has anyone else heard of this?
I am having skin, joint, and bowel complications as well as fevers.

Island Cathy

Perhaps you are hearing about 'Lyme's disease' which is an autoimmune
illness also, and is caused by a 'tick'....
but not that I am aware certainly, is S Lupus E caused by parasites.... or
ticks specifically.
In fact
the professionals don't really know the cause; if they did, they'd have a
cure
and they can
only treat it symptomatically at this time .... research ongoing but
otherwise
the cause is a mix and mingle
between: genetics, hormones <i.e.: 9/10 are women> and environmental
agents/factors....
but again,
I haven't heard of parasites as a potential factor, ever!
and I have had the illness now for 40 years Plus....
at times severely with organ involvement and other times mildly with easy
flare ups.
I have a web site with info gleaned from my own life experiences living with
lupus,
as well as links to other sites with greater information and help...
at http://www.members.shaw.ca/systemiclupus
and my site is called Lupus - Invisible in Plain Sight....
BTW, it is the same in every province
here in Canada; a real shortage of specialists and especially with
rheumatologists and internal medical specialists... here in our nearest town
there is a choice of ONE to choose from... so the wait is tremendous .... a
good thing my lupus has settled down since menopause LOL!!
The one good thing that has come from aging I must say!
I wish good luck to you with seeing your rheumy... when you do get in, have
a list of questions ready as you don't know the next time you'll get a
chance to ask them... could be another looooong wait <g>!
hugs,
Shelagh

From: Andy on 12 Dec 2009 05:24
In message
<f04a3619-1c28-4cde-8bc8-495423ec31e4(a)z41g2000yqz.googlegroups.com>,
Island Cathy <destrymay(a)nl.rogers.com> wrote
>While I was diagnosed with SLE 4 months ago, I'm STILL waiting to see
>a rheumatologist. There are only 3 or 4 for the whole province of
>Nfld and Labrador!
>I have recently heard and read about parasites being a possible cause
>of Lupus, or at least exacerbating the inflammation.
>Has anyone else heard of this?
>I am having skin, joint, and bowel complications as well as fevers.
>
No, I haven't seen any references to parasites causing Lupus. You could
however be having them at the same time, which might explain your bowel
problems.

Good luck in getting an appointment!
--
Andy Taylor [Chair, N E Lupus Group].
<URL:http://www.northeastlupus.org.uk>
From: Andy on 12 Dec 2009 05:30
In message <aMEUm.42167$kY2.21546(a)newsfe01.iad>, Shelagh
<systemiclupus(a)shaw.ca> wrote
[]
>when you do get in, have
>a list of questions ready

That's a good point. You will presumably have a limited time (10
minutes? 15?). Many people find that one side of paper is all there's
time for, so I'd suggest writing down everything, trying to condense it
into one-liners, then putting them in the order that matters to you.
Also, emphasise how bad you are when it's at its worst, and what
restrictions you experience on a bad day. Don't tell her or him that on
a good day you can more or less get by!

Try keeping a symptoms-and-happenings diary. You won't be able to read
it to the rheumy, but it might guide you on listing your concerns.
Remember that some causes can have a delayed effect - for example, many
people find that exposure to the sun (or 3 hours in a supermart) causes
a flare 2 or 3 days afterwards.
--
Andy Taylor [Chair, N E Lupus Group].
<URL:http://www.northeastlupus.org.uk>
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