I am post-surgery
in [Colitis]
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From: Kam on 13 Dec 2005 07:47 hi everyone, I am in the hospital right now on my laptop, which connects succesfully. I am a bit over 72 hours post j-pouch surgery successfully. During my operation they discovered I had toxic colitis which is the most severe form of UC apparently. It was caught right on time, during its last activities apparently. not sure but i think the docs meant i could have died had it been left a little longer. i feel very lucky to be alive. the surgery is extremely hard but worth it. i am in agony but just started having light meals tonight. trying to avoid painkillers unsuccesfully. have tummy cramps which are very very different to UC pains. i am UC free, i cannot believe that pain is gone and i will be off steroids within weeks. i would recommend this to anyone who has uc but choose wisely. it was certainly worth it for me. my bag comes off in 3 months. hope everyone else is managing well as well. and good luck to you all if not. i am stilll drowsy so will post more later.
From: Amy on 13 Dec 2005 09:55 Hi Kam, Wow! It certainly sounds like you made the right decision, and just in time! I'm glad to hear it all went successfully. Please keep us updated, and take it easy! Wow, you're cured!!!! Amy. Kam wrote: > hi everyone, > > I am in the hospital right now on my laptop, which connects > succesfully. I am a bit over 72 hours post j-pouch surgery > successfully. During my operation they discovered I had toxic colitis > which is the most severe form of UC apparently. It was caught right on > time, during its last activities apparently. not sure but i think the > docs meant i could have died had it been left a little longer. i feel > very lucky to be alive. the surgery is extremely hard but worth it. i > am in agony but just started having light meals tonight. trying to > avoid painkillers unsuccesfully. have tummy cramps which are very very > different to UC pains. i am UC free, i cannot believe that pain is gone > and i will be off steroids within weeks. i would recommend this to > anyone who has uc but choose wisely. it was certainly worth it for me. > my bag comes off in 3 months. hope everyone else is managing well as > well. and good luck to you all if not. i am stilll drowsy so will post > more later. >
From: Vanny on 13 Dec 2005 15:28 Hi Kam, It is great to hear from you and I am pleased that you are already experiencing a positive effect. I find it incredible that you are able to write to us, but things have definitely improved in the last 13 years since I was operated on. I was on morphine for the first 5 days or so and for the first 3 days or so I could not even talk let alone write. I floated about a food above my bed and wanted to scream at the other women in the ward for talking too loud (my hearing was really sensitive due to the morphine and I was having hallucinations). I agree, the surgery is very hard - with three different wound sites for yourself (four for me - was sewn up at the r-end). Was that toxic megacolon that you had? If so you were very lucky. I know that when I had the op. I just knew that it had to be done - the same as yourself - suddenly there weren't any other choices to be made. I don't want to burst your bubble, but don't be surprised if there is a sudden dip in your vitality before you come up again. The early post-op. period can feel wonderful because of residual anaesthetic and because you are not eating. Don't be too much of a hero and keep on taking the pain killers for at least the first week and (probably) a half. Be very careful with the hospital food. After my op. in Feb. they sent up all sorts of stuff from the kitchen, which would have made me really sick if I had eaten it - like coleslaw (blocks my stoma up) and raw tomatoes (can't eat because they are very acidic and exacerbate my GERD). Just because it is on your tray doesn't mean that you are allowed to eat it. If in doubt ask and peel things at this stage. Don't be too adventurous and drink as much as you can (when you are allowed to). Don't let your visitors tire you out and get plenty of sleep. It will take a fair few months for you to regain a moderate fitness level especially as you were so ill prior to the op. so be a patient patient. All the best, Vanny "Kam" <parasonik(a)hotmail.com> schrieb im Newsbeitrag news:1134478029.893184.324200(a)o13g2000cwo.googlegroups.com... hi everyone, I am in the hospital right now on my laptop, which connects succesfully. I am a bit over 72 hours post j-pouch surgery successfully. During my operation they discovered I had toxic colitis which is the most severe form of UC apparently. It was caught right on time, during its last activities apparently. not sure but i think the docs meant i could have died had it been left a little longer. i feel very lucky to be alive. the surgery is extremely hard but worth it. i am in agony but just started having light meals tonight. trying to avoid painkillers unsuccesfully. have tummy cramps which are very very different to UC pains. i am UC free, i cannot believe that pain is gone and i will be off steroids within weeks. i would recommend this to anyone who has uc but choose wisely. it was certainly worth it for me. my bag comes off in 3 months. hope everyone else is managing well as well. and good luck to you all if not. i am stilll drowsy so will post more later.
From: mgbio on 13 Dec 2005 22:32 Kam, I am glad that the surgery went well. I hope the rest of your convalescence goes smoothly, as well as your reversal. Don't be brave, take the painkillers, in the end it will help you heal quicker. :) mgbio Kam wrote: > hi everyone, > > I am in the hospital right now on my laptop, which connects > succesfully. I am a bit over 72 hours post j-pouch surgery > successfully. During my operation they discovered I had toxic colitis > which is the most severe form of UC apparently. It was caught right on > time, during its last activities apparently. not sure but i think the > docs meant i could have died had it been left a little longer. i feel > very lucky to be alive. the surgery is extremely hard but worth it. i > am in agony but just started having light meals tonight. trying to > avoid painkillers unsuccesfully. have tummy cramps which are very very > different to UC pains. i am UC free, i cannot believe that pain is gone > and i will be off steroids within weeks. i would recommend this to > anyone who has uc but choose wisely. it was certainly worth it for me. > my bag comes off in 3 months. hope everyone else is managing well as > well. and good luck to you all if not. i am stilll drowsy so will post > more later. >
From: Sdores on 14 Dec 2005 06:16
Kam nice to hear you are doing better. You are so coherent in this post, not bad after surgery. I hope you heal and get out soon. Keep feeling better as each day passes. UM MOM Susan "Kam" <parasonik(a)hotmail.com> wrote in message news:1134478029.893184.324200(a)o13g2000cwo.googlegroups.com... > > hi everyone, > > I am in the hospital right now on my laptop, which connects > succesfully. I am a bit over 72 hours post j-pouch surgery > successfully. During my operation they discovered I had toxic colitis > which is the most severe form of UC apparently. It was caught right on > time, during its last activities apparently. not sure but i think the > docs meant i could have died had it been left a little longer. i feel > very lucky to be alive. the surgery is extremely hard but worth it. i > am in agony but just started having light meals tonight. trying to > avoid painkillers unsuccesfully. have tummy cramps which are very very > different to UC pains. i am UC free, i cannot believe that pain is gone > and i will be off steroids within weeks. i would recommend this to > anyone who has uc but choose wisely. it was certainly worth it for me. > my bag comes off in 3 months. hope everyone else is managing well as > well. and good luck to you all if not. i am stilll drowsy so will post > more later. > |