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From: Scoresby on 16 Jan 2006 06:20
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Please DO NOT quote me in your replys, thank you.

Does anyone know of any new treatments that are available? I have
linear scleroderma, which covers most of the right side of my body. A
physician might say I have localised-generalised scleroderma, because
of the area of my body which is covered. I have had it for 13-14 years.

I would search the archives but I simply don't have the energy, as I
find it so painful to read about the disease.

Thanks

From: Doris on 17 Jan 2006 09:31
I am quite sure all the researchers are desperately trying to find what
actually causes all of our problems and I am quite sure it also is a
challenge for them as well as the patients.
My thoughts are if you don't read the things that are posted out there
especially on the Scleroderma Foundation website you will never come across
any of the new treatments that are out there.

Yes this disease is an overwhelming one, but I believe empowerment of
oneself is the answer to this. I have Scleroderma also and many serious
problems. I have found going to the sites that offer friendship and
support-you do find out about the different treatments that are out there.

Just my 2 cents worth.

Doris


"Scoresby" <scors.b(a)googlemail.com> wrote in message
news:1137410411.522713.157750(a)g47g2000cwa.googlegroups.com...
> X-No-Archive:yes
> Please DO NOT quote me in your replys, thank you.
>
> Does anyone know of any new treatments that are available? I have
> linear scleroderma, which covers most of the right side of my body. A
> physician might say I have localised-generalised scleroderma, because
> of the area of my body which is covered. I have had it for 13-14 years.
>
> I would search the archives but I simply don't have the energy, as I
> find it so painful to read about the disease.
>
> Thanks
>


From: Scoresby on 17 Jan 2006 17:48
X-No-Archive:yes

Thank you for your post... but really you didn't tell me anything did
you? I said everything in the post!!

"I would search the archives but I simply don't have the energy, as I
find it so painful to read about the disease."

Niether do I have the energy to properly address the reasons why I
don't share your opinions on 'empowerment' as you like to call it.

I wanted advice, I got an insulting waste of my time.

You also quoted me (everything) in your reply. THANK-YOU.

From: heidi.santer@bigfoot.com on 18 Jan 2006 06:46

Scoresby wrote:
> X-No-Archive:yes
>
> Thank you for your post... but really you didn't tell me anything did
> you? I said everything in the post!!
>
> "I would search the archives but I simply don't have the energy, as I
> find it so painful to read about the disease."
>
> Niether do I have the energy to properly address the reasons why I
> don't share your opinions on 'empowerment' as you like to call it.
>
> I wanted advice, I got an insulting waste of my time.
>
> You also quoted me (everything) in your reply. THANK-YOU.

From: heidi.santer@bigfoot.com on 18 Jan 2006 06:56

Hi Doris, I read your reply to Scoresby's message and I agree whole
heartedly with you. It is a real shame Scoresby is still so angry about
having the disease. It is attitude's like yours Doris that keeps
someone with Scleroderma going and managing the disease. I, like
Scoresby am very tired and frightened but reading all the information
on the different websites has been the way I have been informed enough
to request treatment. It is a real shame Scoresby read it as an insult
when anyone who is not in an angry place can see the positivity that
was meant.

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