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From: Peter on 24 Mar 2008 21:47
Blake...I wanted to ask you something else and forgot to in my last long
post just before this one. I hope you got through it (sorry for the
rambling - just venting my depression and frustration).

How do you deal with the non stop burning pain and discomfort. It consumes
me and makes me almost unable to function. I say it is every bit as bad as
cancer except in cancer you usually have a diagnosis and may not suffer
terribly till the end stages (but not always, and I am familiar with the
dreaded cancer and what it can do to people). But there is no doubt in my
mind that the normal person could not tolerate what I feel day to day and
really they do not have an understanding of it when someone says you just
have to bear with it, with no end in sight for improvement. What a slow way
to die. Because if I don't have cancer now, I damn sure will get it.

Sorry for all that. Anyway - back to how you deal with it. If you have a
wife and family and friends I know it would be much easier. But even with
the moral support and perhaps a loving person to prepare your meals and sit
down and eat with you, etc., you still have the constant non stop burning
pain and discomfort to deal with, which is unbearable IMO. I have to laugh
at the people who say they get heartburn after eating certain foods etc.
What I have doesn't have a damn thing to do with eating - it is non stop
24/7, as I believe yours is.

So the next thing is drugs - ie mainly the antidepressants and the dreaded
benzodiazepines, the latter of which are highly addicting and you are not
supposed to take them for more than two to four weeks. We can discuss the
drugs later if you want, but IMO they mask the underlying cause and will
just cause addiction (esp the benzo's which are dangerous at best). Some
people take the benzo's for years and I don't understand why they don't
build up intolerances (I would). Even low doses of valium (which it and
it's metabolites have an extremely long half life - up to 8 days) will mess
you up and if you take ativan or xanax with the short half lives you will
get serious withdrawal very soon if you don't wean off them properly. Low
dose valium can cause long lasting withdrawal except it takes longer before
you notice it.

Do you take any antidepressants or benzodiazepines for your condition and
does it help. If you don't then how the hell do you deal with it. Even
cancer patients don't get morphine until the later stages and I don't know
how they can poop because the opiates will constipate the hell out of you.
Perhaps your wife and family and friends are all you need, but I can tell by
your posts that you must be suffering just like me, and it is very hard for
me to deal with it, with no foreseeable improvement or light at the end of
the tunnel.

I didn't mean to write all that and started to ramble again - forgive me.
Please get back to me. Thanks...Pete


From: Billy Boy on 26 Mar 2008 10:55
On Sun, 23 Mar 2008 23:40:25 -0700 (PDT), ehcomeon(a)lycos.com wrote:


>Thank you for everything you wrote. But if I'm refluxing "acid of
>death" every day and all day, which is the evident root of my problem,
>I don't see how GRJ would be of any help with that?
>
>Blake

Blake,

I don't understand it either.

I also don't understand how when scurvy was killing British sailors in olden times and it
was discovered that simply eating a lime or lemon would stop scurvy and then it took the
British navy over 100 years to put limes and lemons on their ships.

I also don't understand how when Pasteur discovered microbe bacteria's, all the doctors in
the world didn't believe him and when Pasteur begged the doctors to wash their hands
between patients, the doctors laughed at him. Now washing hands has become a routine in
hospitals.

Now, research is showing that certain bacteria, Probiotics, are helpful to the gut and
digestive system. Research shows that while most people think all digestion takes place in
the stomach, actually research shows that some 85 % of digestion takes place in the small
intestine. Research has shown that humans need good bacteria in their gut and in some
extreme cases, doctors are actually implanting good bacteria from feces into the gut of
sick people through enemas and such actions make the sick person healthy again. (all of
this is on the Internet)

There are so many things I don't understand about our health, but, I am willing to try
something outside the box if I can find some facts that the procedure has helped people
with similar health problems.

While you are terrified of the GRJ, I am more terrified of going into a hospital and
having a surgeon cut into my stomach and alter my esophagus while most people have said
that the surgery doesn't last and many have to have more surgery done later.

In the end we all have to take responsibility for our own health. A hospital is one of the
most dangerous places for a person to be. I will try every possible alternative before
going into a hospital.

Have you looked at some of the web sites I suggested or Googled.com Ginger root juice?

I wish you well, but if you haven't honestly searched for all the possibilities and
alternatives, I think you will feel pretty bad when the surgery doesn't work.

Take care and good luck.

Bill





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