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From: topcat on 23 Aug 2008 01:19 Hello to the old timers and the new comers. I'm at week 22, still kickin, but a day don't go by that I don't think I'd be better off taking a long nap. I just keep thinking about the day I can walk up a flight of stairs without getting dizzy and stopping to rest, and actually putting in a real work-out in the gym, riding a bike again, climbing a mountain, or running again, god what I'd do if I had my energy back! about a month ago I thought I was finally in a "routine" I could handle, but then the nausea started to get worse, the fatigue is slightly worse. I am taking 1 1/2 tabs Norco about every 3 or 4 hours to get thru the day, and I know some of the nausea is from that, but without it, I can barely leave the house to work. Well, I just needed a good whine fest cuz no one else wants to hear it. My condolonces to fellow travelers and hang in there. If I can do this you can too!! TC
From: greyhackles on 23 Aug 2008 02:25 On Fri, 22 Aug 2008 22:19:04 -0700 (PDT), topcat <hopin(a)live.com> wrote: >Hello to the old timers and the new comers. I'm at week 22, still >kickin, but a day don't go by that I don't think I'd be better off >taking a long nap. I just keep thinking about the day I can walk up a >flight of stairs without getting dizzy and stopping to rest, and >actually putting in a real work-out in the gym, riding a bike again, >climbing a mountain, or running again, god what I'd do if I had my >energy back! about a month ago I thought I was finally in a "routine" >I could handle, but then the nausea started to get worse, the fatigue >is slightly worse. I am taking 1 1/2 tabs Norco about every 3 or 4 >hours to get thru the day, and I know some of the nausea is from that, >but without it, I can barely leave the house to work. Well, I just >needed a good whine fest cuz no one else wants to hear it. My >condolonces to fellow travelers and hang in there. If I can do this >you can too!! >TC Hey TC! That's a boat-load of Norco you're taking. Yikes! Have you been getting lab work done regularly? If so, how's the hemoglobin looking? If not, get on the horn and get new labs - don't let the docs cruise through this thinking you're doing just fine (been there, did that - and damned near killed myself). In the "riba rash" thread I responded to your nausea post - drink more water! Even though you may get really, *really* tired of drinking so much water/juice/whatever-as-long-as-it-ain't-alcohol, it really does help keep the nausea at bay. btw: Nothing wrong with just taking that nap and recharging the batteries. And if a good whine helps - go for it :-) Cheers /greyhackles
From: topcat on 23 Aug 2008 13:27 On Aug 23, 12:25 am, greyhackles <greyhack...(a)REMOVEyahoo.com> wrote: > On Fri, 22 Aug 2008 22:19:04 -0700 (PDT), topcat <ho...(a)live.com> wrote: > >Hello to the old timers and the new comers. I'm at week 22, still > >kickin, but a day don't go by that I don't think I'd be better off > >taking a long nap. I just keep thinking about the day I can walk up a > >flight of stairs without getting dizzy and stopping to rest, and > >actually putting in a real work-out in the gym, riding a bike again, > >climbing a mountain, or running again, god what I'd do if I had my > >energy back! about a month ago I thought I was finally in a "routine" > >I could handle, but then the nausea started to get worse, the fatigue > >is slightly worse. I am taking 1 1/2 tabs Norco about every 3 or 4 > >hours to get thru the day, and I know some of the nausea is from that, > >but without it, I can barely leave the house to work. Well, I just > >needed a good whine fest cuz no one else wants to hear it. My > >condolonces to fellow travelers and hang in there. If I can do this > >you can too!! > >TC > > Hey TC! That's a boat-load of Norco you're taking. Yikes! > > Have you been getting lab work done regularly? If so, how's the hemoglobin > looking? If not, get on the horn and get new labs - don't let the docs cruise > through this thinking you're doing just fine (been there, did that - and > damned near killed myself). > > In the "riba rash" thread I responded to your nausea post - drink more water! > Even though you may get really, *really* tired of drinking so much > water/juice/whatever-as-long-as-it-ain't-alcohol, it really does help keep the > nausea at bay. > > btw: Nothing wrong with just taking that nap and recharging the batteries.. And > if a good whine helps - go for it :-) > > Cheers > > /greyhackles- Hide quoted text - > > - Show quoted text - Hey Grey, how are you? Nice to hear from you. Well I've been wondering if the Norco wasn't part of the problem. My doc say's "not a problem", I could even take up to 2 every 3 or 4 hours before he's concerned. He tests my blood every month and so far he says no problems on that too, but I don't no what all they test for. Should I ask him to look at my hemoglobin? Well, I gotta git the laundry done and housework while I still have some energy left. later, TC
From: TX-012 on 23 Aug 2008 14:03 On Aug 22, 10:19 pm, topcat <ho...(a)live.com> wrote: I am taking 1 1/2 tabs Norco about every 3 or 4 > hours to get thru the day, and I know some of the nausea is from that, > but without it, I can barely leave the house to work. You might wish to do what I did: switch from Norco to OxyContin. A few months ago I was on 4 10/325 Norcos per day; the pain was only semi- controlled, and I experienced opiate withdrawal often, esp on waking. Then, at the urging of my hepatologist, I found a pain management specialist and switched to OxyContin; I am now on 3 20mg Oxys per day, find the pain is much better controlled, and due to the longer half life of the drug, very rarely feel myself withdrawing... Of course, another benefit is that I'm not slamming myself with several grams of acetaminophen every day... If your doctor won't do Oxy, or methadone, or controlled release morphine, or any of the other "hardcore" long lasting opiates, you might wish to try something like 300mgs per day of http://www.ultram-er.com/ultram-er/index.html As far as nausea, if it's from opiates it will generally go away; if it's from tx, you may wish to try 10 mgs http://en.wikipedia.org/wiki/Prochlorperazine several hours before you anticipate feeling like yer gonna hurl (if you can predict)...
From: greyhackles on 23 Aug 2008 17:07 On Sat, 23 Aug 2008 10:27:02 -0700 (PDT), topcat <hopin(a)live.com> wrote: >On Aug 23, 12:25�am, greyhackles <greyhack...(a)REMOVEyahoo.com> wrote: >> On Fri, 22 Aug 2008 22:19:04 -0700 (PDT), topcat <ho...(a)live.com> wrote: >> >Hello to the old timers and the new comers. �I'm at week 22, still >> >kickin, but a day don't go by that I don't think I'd be better off >> >taking a long nap. �I just keep thinking about the day I can walk up a >> >flight of stairs without getting dizzy and stopping to rest, and >> >actually putting in a real work-out in the gym, riding a bike again, >> >climbing a mountain, or running again, god what I'd do if I had my >> >energy back! �about a month ago I thought I was finally in a "routine" >> >I could handle, but then the nausea started to get worse, the fatigue >> >is slightly worse. �I am taking 1 1/2 tabs Norco about every 3 or 4 >> >hours to get thru the day, and I know some of the nausea is from that, >> >but without it, I can barely leave the house to work. �Well, I just >> >needed a good whine fest cuz no one else wants to hear it. �My >> >condolonces to fellow travelers and hang in there. �If I can do this >> >you can too!! >> >TC >> >> Hey TC! That's a boat-load of Norco you're taking. Yikes! >> >> Have you been getting lab work done regularly? If so, how's the hemoglobin >> looking? If not, get on the horn and get new labs - don't let the docs cruise >> through this thinking you're doing just fine (been there, did that - and >> damned near killed myself). >> >> In the "riba rash" thread I responded to your nausea post - drink more water! >> Even though you may get really, *really* tired of drinking so much >> water/juice/whatever-as-long-as-it-ain't-alcohol, it really does help keep the >> nausea at bay. >> >> btw: Nothing wrong with just taking that nap and recharging the batteries. And >> if a good whine helps - go for it :-) >> >> Cheers >> >> /greyhackles- Hide quoted text - >> >> - Show quoted text - > >Hey Grey, how are you? Nice to hear from you. Well I've been >wondering if the Norco wasn't part of the problem. My doc say's "not >a problem", I could even take up to 2 every 3 or 4 hours before he's >concerned. He tests my blood every month and so far he says no >problems on that too, but I don't no what all they test for. Should I >ask him to look at my hemoglobin? Well, I gotta git the laundry done >and housework while I still have some energy left. later, TC Hi again, TC. I'm doing well, thanks for asking. Aside from gaining nearly all the weight back that I lost on treatment (damn! ;-) life is pretty good. If your doc is doing monthly blood tests, it's likely he's including a CBC as it's as cheap as it is important. You should be getting copies, though, so you can get answers to questions such as "do I have anemia - and if so, how severe is it". Next time you speak with your doctor it wouldn't hurt to mention how gassed you're feeling these days, and whether your blood work suggests anemia. Cheers - and hope you're feeling better! /greyhackles
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