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From: tobesmom49 on 7 Oct 2005 01:25
Hello to all who share my pain! I've been looking for something, a
group online, anything because I'm so isolated. And here you are! I
found you by doing a Google search for groups, but also set up a Google
alert for any news on FmS/CFS.

I've been on disability since 1997; sick since '96 after a car
accident. I've been in pain every day since, gradually got worse. I'm
51, and my first doc said it shouldn't be too bad since I had late
onset. Yeah, right. I get condocondritis every other week, or maybe
it's just coming and going all the time. This week it's in my back; a
first. I guess that's what it is. Back pain constant from accident. Not
operational, though I've been told it may be now.

I have most all the symptoms listed in the materials provided in the
information pack. I had no idea why I couldn't stand...no doctor
believes me that my temp runs 97.0 all the time, and when it's 98.6 I
feel really sick. "That's still normal range". Before I got sick, I
was always 98.6. On several occasions I spike to 102 or so and stay
for a week; only once was it anything diagnosable, when I had
pneumonia.

I was first dx with Lupus. Since I moved to this gosh awful state
where I can't find a doctor to take me seriously. (I read someone else
in the same situation) When my Lupus tests came back negative, my
Rheumatologist (highly recommended here) says, "it's only fibromyalgia;
just go to your primary physician". Well, my primary doesn't believe in
FMS and obviously neither did he. Thank God that Ihave a delightful
pain specialist that understands Fibro, expresses empathy, makes
suggestions and lets me talk. He's wonderful. One out of three.

I've been sad lately. Lonely. Depressed. I did laugh at the Wellbutrin
XL commercial tonite, so I guess I'm okay. I've been here for 6 years
and have met no friends except one who is always very busy. I am
grateful for her; don't get me wrong. I am also fortunate to have a
healthy older sis who takes me around since I don't have a car (had to
turn it in when I couldn't work and haven't saved to get one...yet).
The same sis helps me with housework and just listens. She is an angel
and makes living here worthwhile. All my friends in Santa Monica where
I used to live vanished when I couldn't go out with them anymore. Bum
deal.

You seem like a good group. Good boundaries; not all negative, a sense
of humor; just what I was looking for. And yet it seems to be a place
where you can express feelings if you're having a hard time. I am glad
I found this.

I guess that's my intro for now. I am also blessed, btw, with a
wonderful dog; a Lhasa Apso named Tobe who loves me and is like a son
to me. And two male hampsters. I always have hampsters. They live about
3 years for me. I live having two males. My last set got along so well
I could connect their cages. These guys aren't there yet, but I'm
working with them. I don't know what I'd do without my 3 fur balls.
(hamsters are the bigger "teddy bear" variety).

Oh - I also have a spending/credit card problem/impulse disorder. I
could have bought a car by now if it wasn't for that. I don't seem to
be able to delay gratification and I'm addicted to the Trading Spaces
kind of shows. Constantly updating and improving my apt. But now I have
stuff for a 1000 sq. ft. apt stuffed into a 460 sq ft. apt.Gotta LOL!

Hugs to all you good people! Thanks for having me.

Kathie

From: Cripple on 7 Oct 2005 03:15
You say that you can not find a doctor where you live, but unless I missed
it, where do you live. If you are in my neighborhood I have a couple great
doctors to recommend. They also provide the pain meds that are needed. but
only truly needed.

Ed


<tobesmom49(a)gmail.com> wrote in message
news:1128662744.663206.292890(a)z14g2000cwz.googlegroups.com...
> Hello to all who share my pain! I've been looking for something, a
> group online, anything because I'm so isolated. And here you are! I
> found you by doing a Google search for groups, but also set up a Google
> alert for any news on FmS/CFS.
>
> I've been on disability since 1997; sick since '96 after a car
> accident. I've been in pain every day since, gradually got worse. I'm
> 51, and my first doc said it shouldn't be too bad since I had late
> onset. Yeah, right. I get condocondritis every other week, or maybe
> it's just coming and going all the time. This week it's in my back; a
> first. I guess that's what it is. Back pain constant from accident. Not
> operational, though I've been told it may be now.
>
> I have most all the symptoms listed in the materials provided in the
> information pack. I had no idea why I couldn't stand...no doctor
> believes me that my temp runs 97.0 all the time, and when it's 98.6 I
> feel really sick. "That's still normal range". Before I got sick, I
> was always 98.6. On several occasions I spike to 102 or so and stay
> for a week; only once was it anything diagnosable, when I had
> pneumonia.
>
> I was first dx with Lupus. Since I moved to this gosh awful state
> where I can't find a doctor to take me seriously. (I read someone else
> in the same situation) When my Lupus tests came back negative, my
> Rheumatologist (highly recommended here) says, "it's only fibromyalgia;
> just go to your primary physician". Well, my primary doesn't believe in
> FMS and obviously neither did he. Thank God that Ihave a delightful
> pain specialist that understands Fibro, expresses empathy, makes
> suggestions and lets me talk. He's wonderful. One out of three.
>
> I've been sad lately. Lonely. Depressed. I did laugh at the Wellbutrin
> XL commercial tonite, so I guess I'm okay. I've been here for 6 years
> and have met no friends except one who is always very busy. I am
> grateful for her; don't get me wrong. I am also fortunate to have a
> healthy older sis who takes me around since I don't have a car (had to
> turn it in when I couldn't work and haven't saved to get one...yet).
> The same sis helps me with housework and just listens. She is an angel
> and makes living here worthwhile. All my friends in Santa Monica where
> I used to live vanished when I couldn't go out with them anymore. Bum
> deal.
>
> You seem like a good group. Good boundaries; not all negative, a sense
> of humor; just what I was looking for. And yet it seems to be a place
> where you can express feelings if you're having a hard time. I am glad
> I found this.
>
> I guess that's my intro for now. I am also blessed, btw, with a
> wonderful dog; a Lhasa Apso named Tobe who loves me and is like a son
> to me. And two male hampsters. I always have hampsters. They live about
> 3 years for me. I live having two males. My last set got along so well
> I could connect their cages. These guys aren't there yet, but I'm
> working with them. I don't know what I'd do without my 3 fur balls.
> (hamsters are the bigger "teddy bear" variety).
>
> Oh - I also have a spending/credit card problem/impulse disorder. I
> could have bought a car by now if it wasn't for that. I don't seem to
> be able to delay gratification and I'm addicted to the Trading Spaces
> kind of shows. Constantly updating and improving my apt. But now I have
> stuff for a 1000 sq. ft. apt stuffed into a 460 sq ft. apt.Gotta LOL!
>
> Hugs to all you good people! Thanks for having me.
>
> Kathie
>


From: Charrlygrl1 on 7 Oct 2005 09:57
Hi Kathie,
Here is a link to the American College of Rheumatology, with a link
towards the middle of the page to find an RD in your area.

http://www.rheumatology.org/public/index.asp?aud=pat

It is frustrating to not be believed, or to be handily dismissed.
As far as laughing at the Wellbutrin commercial, there are many here
who are on antidepressents, it is not unusual with fibro. Some of them
also have muscle relaxant qualities which also can contribute to
relief. I, myself am not on them yet, but they seem to have helped
quite a few folks here. Someone else may pop in with more on that.
Welcome to you, your dog and your hamsters!
Charlene

From: Nanny on 7 Oct 2005 20:24
Hi Kathie. I'm glad you found this group and introduced yourself! Besides
sharing our FM pain, I also have something in common with you: compulsive
shopping. I don't do mine through the TV shows, but credit cards were my
downfall, and I get a lot of catalogs. I try to justify my spending habits
by telling myself that ordering through the mail is so much easier than
walking around in stores for 2-3 hours, and you can see pictures of exactly
what you are ordering. We can't use credit cards now, so that is just as
well! Pets are wonderful, aren't they! And, yes, we have a nice blend of
posts here - humor, information, venting, and every now and then, we get
into some pretty "hot" conversations. But, that seems to be the norm for
such a diversive group as this. Welcome aboard! Nanny
<tobesmom49(a)gmail.com> wrote in message
news:1128662744.663206.292890(a)z14g2000cwz.googlegroups.com...
> Hello to all who share my pain! I've been looking for something, a
> group online, anything because I'm so isolated. And here you are! I
> found you by doing a Google search for groups, but also set up a Google
> alert for any news on FmS/CFS.
>
> I've been on disability since 1997; sick since '96 after a car
> accident. I've been in pain every day since, gradually got worse. I'm
> 51, and my first doc said it shouldn't be too bad since I had late
> onset. Yeah, right. I get condocondritis every other week, or maybe
> it's just coming and going all the time. This week it's in my back; a
> first. I guess that's what it is. Back pain constant from accident. Not
> operational, though I've been told it may be now.
>
> I have most all the symptoms listed in the materials provided in the
> information pack. I had no idea why I couldn't stand...no doctor
> believes me that my temp runs 97.0 all the time, and when it's 98.6 I
> feel really sick. "That's still normal range". Before I got sick, I
> was always 98.6. On several occasions I spike to 102 or so and stay
> for a week; only once was it anything diagnosable, when I had
> pneumonia.
>
> I was first dx with Lupus. Since I moved to this gosh awful state
> where I can't find a doctor to take me seriously. (I read someone else
> in the same situation) When my Lupus tests came back negative, my
> Rheumatologist (highly recommended here) says, "it's only fibromyalgia;
> just go to your primary physician". Well, my primary doesn't believe in
> FMS and obviously neither did he. Thank God that Ihave a delightful
> pain specialist that understands Fibro, expresses empathy, makes
> suggestions and lets me talk. He's wonderful. One out of three.
>
> I've been sad lately. Lonely. Depressed. I did laugh at the Wellbutrin
> XL commercial tonite, so I guess I'm okay. I've been here for 6 years
> and have met no friends except one who is always very busy. I am
> grateful for her; don't get me wrong. I am also fortunate to have a
> healthy older sis who takes me around since I don't have a car (had to
> turn it in when I couldn't work and haven't saved to get one...yet).
> The same sis helps me with housework and just listens. She is an angel
> and makes living here worthwhile. All my friends in Santa Monica where
> I used to live vanished when I couldn't go out with them anymore. Bum
> deal.
>
> You seem like a good group. Good boundaries; not all negative, a sense
> of humor; just what I was looking for. And yet it seems to be a place
> where you can express feelings if you're having a hard time. I am glad
> I found this.
>
> I guess that's my intro for now. I am also blessed, btw, with a
> wonderful dog; a Lhasa Apso named Tobe who loves me and is like a son
> to me. And two male hampsters. I always have hampsters. They live about
> 3 years for me. I live having two males. My last set got along so well
> I could connect their cages. These guys aren't there yet, but I'm
> working with them. I don't know what I'd do without my 3 fur balls.
> (hamsters are the bigger "teddy bear" variety).
>
> Oh - I also have a spending/credit card problem/impulse disorder. I
> could have bought a car by now if it wasn't for that. I don't seem to
> be able to delay gratification and I'm addicted to the Trading Spaces
> kind of shows. Constantly updating and improving my apt. But now I have
> stuff for a 1000 sq. ft. apt stuffed into a 460 sq ft. apt.Gotta LOL!
>
> Hugs to all you good people! Thanks for having me.
>
> Kathie
>


From: fran on 9 Oct 2005 08:30
Kathy, if you're willing to share the state you live in, perhaps
someone can refer you to a sympathetic doctor. Welcome to AMF--fran

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