Geno type testing
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From: Pam on 29 Mar 2008 06:29 On Mar 27, 11:07 pm, Kozure Ookami <nob...(a)nowhere.org> wrote: > Don't blame yourself if the genotype is the same as you. Most people > have genotype 1. While she may have only shared a needle with her > husband that is probably not so for him as well. I also found out > about my HCV infection through a blood donation and it was just an > antibody test that was confirmed by qualitative, quantitative, and > genotype. > > Don Goodmorning, Hi, I am Pam Terry's sister and I have read everything but it confuses me. It has been 21 years since I was so stupid: My husband has been gone for 14 years so I can't blame him either. I don't blame my brother even if I do have the type he has, my care for him when he was sick was out of love and I would not hesitate to do everything all over again. I recieved blood in 1991 and again in 93 but Terry said by then they had starting testing blood, so I am pretty sure it came from sharing the needles and as stated I only shared them with my husband but not sure who he shared them with? I gave blood in 1991 and I guess at that time I was clean or they did not test it. Danny died in 93, so I have no answers. I will make a Dr. apponiment and let them test me and go from there? I guess I am not to worried about myself but I have two children one 19 and one 14 that I worry about. My daughter is donating blood so I guess it is safe to say she is clear. I can only be sad for them because there Dad is gone my brother is fighting this everyday so they worry now that they might loose there Mom! Thanks everyone for being gentle I know how this post can be. I haven't read up on this because most of it goes over my head i't really does'nt matter to me how I got it only if there is a fix for it and if it is doing damage to me? OK i'll shut up now Thanks Pam
From: Normin on 29 Mar 2008 21:02 "Pam" <Pamelablueeyes(a)peoplepc.com> wrote in message news:ace6baae-2d0f-41cd- (snipped) Sara, Thank you so much, I hope you continue to do weal. I am like you I don't care where it came from I can't change any of it any way right: Most say not to worry see the Dr. first, other than my brother it got him in the worst way but he has had a new liver almost 6 years, I can say he is doing good he still has alot of bad days there is alot that goes with that new part, some think new liver and your life is back to normal, does't work that way. My kids worry that I may have to go thru all of that. I can only say I will deal with whatever I have to it can't be changed. I feel great most of the time the days I feel bad I blame on age and kids LOL. Most say that the virus shows up in test but I may have been fighting it off and may not need any type of treatment but I will make a Dr appointment on Monday. I have meet him thru Terry and he seems to know his stuff. I will let you all know if you pray send one up for me and I will do the same for you. Thanks Pam ======== Will do :) Thanks, Pam. sounds like you have a great head on your shoulders about it all, you'll handle it like a champ. Glad to hear you are going to see a dr you feel good about. And tell Terry that now it's HIS turn to support YOU :) I'm betting you'll do well though and things will be much easier for you than they were for him. Please stay in touch, and feel free to vent, ask questions, whatever here. You can email me at this email address any time too, if you want to. Let us know how the dr appt goes, ok? and take it one day at a time. hugs Sara
From: Terry on 29 Mar 2008 23:52 On Sat, 29 Mar 2008 17:22:38 -0700 (PDT), Pam <Pamelablueeyes(a)peoplepc.com> wrote: > >Sara, > Thank you so much, I hope you continue to do weal. I am like you I >don't care where it came from I can't change any of it any way right: >Most say not to worry see the Dr. first, other than my brother it got >him in the worst way but he has had a new liver almost 6 years, I can >say he is doing good he still has alot of bad days there is alot that >goes with that new part, some think new liver and your life is back to >normal, does't work that way. My kids worry that I may have to go thru >all of that. What I have tried to tell my sister is that 2 in 10 will clear the virus with no meds. Wiki says as many as 4 in 10. http://en.wikipedia.org/wiki/Hepatitis_C 1 in 10 will develop serious problems. The other 7 out of 10 I am not really sure how to classify. They may never know they are infected or will experience some degree of cirrhosis. Numbers sound about right? I try to tell her that 9 out of 10 will die "with" HepC and not "from" HepC. And new meds may be just around the corner.
From: Normin on 30 Mar 2008 00:20 "Terry" <kilowatt(a)charter.net> wrote in message news:hg2uu3t460vm7cdllku1gmgtd5p5d3bhdg(a)4ax.com... > On Sat, 29 Mar 2008 17:22:38 -0700 (PDT), Pam > <Pamelablueeyes(a)peoplepc.com> wrote: > >> >>Sara, >> Thank you so much, I hope you continue to do weal. I am like >> you I >>don't care where it came from I can't change any of it any way >>right: >>Most say not to worry see the Dr. first, other than my brother >>it got >>him in the worst way but he has had a new liver almost 6 years, >>I can >>say he is doing good he still has alot of bad days there is >>alot that >>goes with that new part, some think new liver and your life is >>back to >>normal, does't work that way. My kids worry that I may have to >>go thru >>all of that. > > > What I have tried to tell my sister is that 2 in 10 will clear > the > virus with no meds. Wiki says as many as 4 in 10. > http://en.wikipedia.org/wiki/Hepatitis_C > > 1 in 10 will develop serious problems. > > The other 7 out of 10 I am not really sure how to classify. > They may > never know they are infected or will experience some degree of > cirrhosis. > > Numbers sound about right? > > I try to tell her that 9 out of 10 will die "with" HepC and not > "from" > HepC. > > And new meds may be just around the corner. I don't do numbers :) but I'd think it's a fair bet that the majority of folks with hepC are being diagnosed because of the damage that's already been done to their livers, probably decades after they caught it. That's what happened to me... my liver enzyme numbers were high and my current dr decided to do another test to see if he could find out 'why' they were high... two doctors before him had noted that the numbers were a bit high, but they decided to "keep an eye on it". Anyway, they did the bloodwork and it came back positive for hepc. I had a biopsy and I had stage 2 fibrosis. In Pam's case, it wasn't a liver enzyme reading but antibodies that showed up when she was donating blood. I'm thinking maybe that's a good thing, and if she does have it, hopefully it's still fairly early and she'll have a great chance to be cured. As far as the 'with' and not 'from' statement, I guess I feel that the hepC causes the liver damage that leads to many very serious problems that can lead to death, so I can't really agree with that statement. I believe that anyone with HepC who is a candidate for tx and can tolerate it should try it... heck, it just might work and then you don't have to worry about waiting for the next new thing to come along. Try to take it a day at a time and not anticipate the worst here... She's got a good support system (you!) and hopefully she will find some help here too. IF she winds up with the virus, her chances are a lot better at this point in time than they would have been 5 or 10 years ago as far as treatment goes. They are finding out more every day about HepC treatments, and yes, new meds are on the horizon for those who can wait a couple years. I hope you get a chance to talk to the doctor too when she goes in -- make a list of questions you have, and stuff you need to have answers for for the kids. I think that might help you most of all, to just get some straight answers about some of these things that are bothering you. geeze it's late and I can't see straight any more :) I guess I should shut up and go to bed! Take care Sara
From: greyhackles on 30 Mar 2008 01:43
On Sat, 29 Mar 2008 22:52:29 -0500, Terry <kilowatt(a)charter.net> wrote: >On Sat, 29 Mar 2008 17:22:38 -0700 (PDT), Pam ><Pamelablueeyes(a)peoplepc.com> wrote: > >> >>Sara, >> Thank you so much, I hope you continue to do weal. I am like you I >>don't care where it came from I can't change any of it any way right: >>Most say not to worry see the Dr. first, other than my brother it got >>him in the worst way but he has had a new liver almost 6 years, I can >>say he is doing good he still has alot of bad days there is alot that >>goes with that new part, some think new liver and your life is back to >>normal, does't work that way. My kids worry that I may have to go thru >>all of that. > >What I have tried to tell my sister is that 2 in 10 will clear the >virus with no meds. Wiki says as many as 4 in 10. >http://en.wikipedia.org/wiki/Hepatitis_C > >1 in 10 will develop serious problems. > >The other 7 out of 10 I am not really sure how to classify. They may >never know they are infected or will experience some degree of >cirrhosis. > >Numbers sound about right? > >I try to tell her that 9 out of 10 will die "with" HepC and not "from" >HepC. > >And new meds may be just around the corner. I believe Wikipedia is way optimistic about spontaneous clearance. The best numbers I've read are between 20-25%. One thing that isn't mentioned enough is HCV affects more than just the liver. A raging immune system can cause all sorts of collateral damage, and "quality of life" effects may be widespread. There have been plenty of peeps here that reported they were no longer diabetic post-treatment, others that had "arthritic" pain greatly reduced, folks that battled chronic fatigue got better, and so on. So, yes, the majority of HCV+ folks will not die from their disease, but their lives may be significantly impacted just the same. Leaving aside the possibility of passing the untreated disease along to others....we only get to ride this merry-go-round one time, so there should be plenty of motivation to get rid of any disease that takes the fun out of the ride. As for the potential for new medications appearing in any short time: I wish that were true, but at best - keying off the sobering Vertex VX950 results, for instance - it doesn't look as promising as it may have a couple of years ago. Thus, we're still looking out at least 4 or 5 years before anything makes it out of trials that provides a significant improvement in bottom line results - never mind reducing the side effects of treatment... /greyhackles |