Fistulas, Dr wants me on NPO plus TPN
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From: Johnny on 11 Sep 2008 16:08 My surgeon says the fistulas will heal on their own qith the help of HUMIRA. Anyone had similar experience? HELP!
From: mgbio on 12 Sep 2008 00:38 I took Remicade for my fistulas, which is very similar to Humira in effect. It closed the fistulas, but I'm not sure if they ever fully healed. In the end, a huge abscess formed that had to be surgically repaired. 6MP kept me fistula free since then. HTH :) mgbio Johnny wrote: > My surgeon says the fistulas will heal on their own qith the help of > HUMIRA. > > Anyone had similar experience? > > HELP!
From: the14thdisciple on 12 Sep 2008 04:24 On Sep 11, 10:08 pm, Johnny <johncro...(a)cox.net> wrote: > Fistulas, Dr wants me on NPO plus TPN .... does He also want you on CNN and NBC, Jehnny? i Mean, i KNOW thear is a limit two the amount of fistulas a man can grow, but if Hugh keep on at this rate it's only a matter of time befoar we see you on FOX! love From 14
From: Johnny on 12 Sep 2008 09:37 On Sep 12, 4:24 am, the14thdisciple <the14thdisci...(a)littleboxes.nl> wrote: > On Sep 11, 10:08 pm, Johnny <johncro...(a)cox.net> wrote: > > > Fistulas, Dr wants me on NPO plus TPN > > ... does He also want you on CNN and NBC, Jehnny? i Mean, i KNOW > thear is a limit two the amount of fistulas a man can grow, but if > Hugh keep on at this rate it's only a matter of time befoar we see you > on FOX! > > love From 14 Sorry for the acronyms NPO: Nothing by mouth, i.e., bowl rest TPN: Total parenteral nutrition, i.e., IV bag for 12 hours every day. This is of course a very difficult regime to go thru for however many weeks or months they want me to go thru. I was wondering if anyone else had this type of treatment or did the meds just clsoe the fisutlas on their own. thanks kindly, suffering... Johnny
From: Vanny on 12 Sep 2008 12:36
I had an enterovaginal fistula with associated abscess in 2005 and it took about 5 months to heal on a liquid diet with Entocort as the ileal Crohn's treatment. Remicade or Humira, etc., are recognised state-of-the-art treatments for fistulas. Old school was liquid diet plus antibiotics. However, your doctor sounds as though he is an expert as nil by mouth in conjunction with Humira should be even better. So he is seriously tackling your condition and sparing no expense. The fistulas should, if they are going to heal at all, heal faster using his method. If this approach fails you might, as mgbio indicated, need an operation. Abscesses are common, but not mandatory with fistulas. A word of warning, if your CVC (central venous catheter) starts itching or if there is any unusual discomfort it is a sign of infection and requires immediate antibiotic treatment and identification of the infection source. I had Pseudomonas infection in 2005 when I was on TPN and felt great for the first few days. Then I developed itching at the CVC site plus terrible migraine-type headaches. Once sepsis had set in (fever, chills, shakes...) they identified the bug and sent me for an immediate MRI because (luckily I was unaware of this at the time) Pseudomonas aeruginosa can cause brain abscesses amongst other things. The migraines were an indicator that something was not right in that department as I am not a migraine sufferer as such. The nursing staff did not tell me that I should report any itching or discomfort at the site to them, although it was probably on the consent form somewhere. They had to discontinue the TPN after only 6 days on it. I would also urge you to discuss the siting of the CVC - mine was on my neck (RHS) and I had very long hair at the time. In the future I would plead for an upper chest siting if possible, which I believe will be easier to keep sterile. Don't get water anywhere near it - it is obviously sterile bandaged and iodied, but nonetheless. Vanny "Johnny" <johncrohns(a)cox.net> schrieb im Newsbeitrag news:89db6cea-a1b7-4b7a-b5aa-e2ac982801e6(a)x41g2000hsb.googlegroups.com... On Sep 12, 4:24 am, the14thdisciple <the14thdisci...(a)littleboxes.nl> wrote: > On Sep 11, 10:08 pm, Johnny <johncro...(a)cox.net> wrote: > > > Fistulas, Dr wants me on NPO plus TPN > > ... does He also want you on CNN and NBC, Jehnny? i Mean, i KNOW > thear is a limit two the amount of fistulas a man can grow, but if > Hugh keep on at this rate it's only a matter of time befoar we see you > on FOX! > > love From 14 Sorry for the acronyms NPO: Nothing by mouth, i.e., bowl rest TPN: Total parenteral nutrition, i.e., IV bag for 12 hours every day. This is of course a very difficult regime to go thru for however many weeks or months they want me to go thru. I was wondering if anyone else had this type of treatment or did the meds just clsoe the fisutlas on their own. thanks kindly, suffering... Johnny |