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From: Steveo on 30 Jul 2008 16:02
Well, it has been a very long time since I posted here but I
wanted to let everyone know that Finally after 5yrs of treatment My
lupus is completely undercrontrol. Not only that but the Kidney
desease that came along with it is finally stopped. I guess the 8
rounds of Retuxin and all the Cellcept finally did what it was suppose
to. Althought my Kidneys are down to 45% they are currently clean and
there is no desease activity. So I am starting to taper off the
cellcept and all the other meds. I have been off steroids since Feb.
so I am flippin happy. 18months of treatment that went to 5
years.......... Man, I just need to tell some people that can
understand.

-Steve
From: George Parton on 30 Jul 2008 16:41
Steve,
I am so happy for you!
Good news is always refreshing.
Thanks for the bright spot in my day.....
George

Steveo wrote:
> Well, it has been a very long time since I posted here but I
> wanted to let everyone know that Finally after 5yrs of treatment My
> lupus is completely undercrontrol. Not only that but the Kidney
> desease that came along with it is finally stopped. I guess the 8
> rounds of Retuxin and all the Cellcept finally did what it was suppose
> to. Althought my Kidneys are down to 45% they are currently clean and
> there is no desease activity. So I am starting to taper off the
> cellcept and all the other meds. I have been off steroids since Feb.
> so I am flippin happy. 18months of treatment that went to 5
> years.......... Man, I just need to tell some people that can
> understand.
>
> -Steve
From: Shelagh on 30 Jul 2008 20:19
Congratulations Steveo!!
I completely 'feel' you about the steroid thing....
Now THAT is just too cool!!
And so now after 5 years you have made it!

Just keep on walkin that walk....talking that talk cause
it sounds so darn good coming from a new and healthier you!

And good luck with the tapering on the other meds...
I know you'll have no problems cause you've already
beat the 'mother' of all meds lol!!
If you can beat steroids? .... well, enough said!
hugs,
Shelagh
http://members.shaw.ca/tiderington - Lupus ~ Invisible in Plain Sight


"Steveo" <sjarrell(a)optonline.net> wrote in message
news:2c9100e4-a6df-4a79-b0f6-ffec0f1297fa(a)k13g2000hse.googlegroups.com...
> Well, it has been a very long time since I posted here but I
> wanted to let everyone know that Finally after 5yrs of treatment My
> lupus is completely undercrontrol. Not only that but the Kidney
> desease that came along with it is finally stopped. I guess the 8
> rounds of Retuxin and all the Cellcept finally did what it was suppose
> to. Althought my Kidneys are down to 45% they are currently clean and
> there is no desease activity. So I am starting to taper off the
> cellcept and all the other meds. I have been off steroids since Feb.
> so I am flippin happy. 18months of treatment that went to 5
> years.......... Man, I just need to tell some people that can
> understand.
>
> -Steve


From: Sherry on 30 Jul 2008 22:13
Great news Steve!

Sherry


"Steveo" <sjarrell(a)optonline.net> wrote in message
news:2c9100e4-a6df-4a79-b0f6-ffec0f1297fa(a)k13g2000hse.googlegroups.com...
> Well, it has been a very long time since I posted here but I
> wanted to let everyone know that Finally after 5yrs of treatment My
> lupus is completely undercrontrol. Not only that but the Kidney
> desease that came along with it is finally stopped. I guess the 8
> rounds of Retuxin and all the Cellcept finally did what it was suppose
> to. Althought my Kidneys are down to 45% they are currently clean and
> there is no desease activity. So I am starting to taper off the
> cellcept and all the other meds. I have been off steroids since Feb.
> so I am flippin happy. 18months of treatment that went to 5
> years.......... Man, I just need to tell some people that can
> understand.
>
> -Steve

From: Mair on 2 Aug 2008 12:22
Happy to hear it, Steve!

Way to go, and just keep on!

Mair


"Steveo" <sjarrell(a)optonline.net> wrote in message
news:2c9100e4-a6df-4a79-b0f6-ffec0f1297fa(a)k13g2000hse.googlegroups.com...
> Well, it has been a very long time since I posted here but I
> wanted to let everyone know that Finally after 5yrs of treatment My
> lupus is completely undercrontrol. Not only that but the Kidney
> desease that came along with it is finally stopped. I guess the 8
> rounds of Retuxin and all the Cellcept finally did what it was suppose
> to. Althought my Kidneys are down to 45% they are currently clean and
> there is no desease activity. So I am starting to taper off the
> cellcept and all the other meds. I have been off steroids since Feb.
> so I am flippin happy. 18months of treatment that went to 5
> years.......... Man, I just need to tell some people that can
> understand.
>
> -Steve


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