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From: TX-012 on 27 Jun 2008 20:12
Just a question for those on treatment, or for those of you who have
gone through the process--how well did those close to you, in your
estimation, comprehend and appreciate exactly what you were enduring
while on tx?

In my case, while I have a few very supportive individuals helping me
out, I feel...much, if not most of this experience remains...very
difficult to adequately communicate...or be understood, by those who
have not actually...walked the walk...
From: greyhackles on 27 Jun 2008 20:41
On Fri, 27 Jun 2008 17:12:24 -0700 (PDT), TX-012 <withbacon(a)aol.com> wrote:

>Just a question for those on treatment, or for those of you who have
>gone through the process--how well did those close to you, in your
>estimation, comprehend and appreciate exactly what you were enduring
>while on tx?
>
>In my case, while I have a few very supportive individuals helping me
>out, I feel...much, if not most of this experience remains...very
>difficult to adequately communicate...or be understood, by those who
>have not actually...walked the walk...

Before beginning treatment, the carpet to my office was worn out by peeps
lining up for help and guidance - being the senior engineer in a company of
roughly a thousand technoid dweebs it was my lot to provide counsel to pretty
much everyone, from techs through code monkeys through marketing veeps. The
flood didn't let up a bit until I got worn down to the point that I was taking
naps during lunch time instead of padding down to the cafeteria to join them
at the communal tables.

I'm not sure anyone can truly comprehend what battling dragons entails. And
I'd have to say, that until I had lost 40 pounds, was just able to put one
foot in front of the other, and looked like death-warmed-over, coworkers
didn't really understand that I was in the depths of treatment. Once I got to
that inescapably obvious point, however, folks generally got the clue that
this was a battle royale I was going through, and began to cut me just a
little slack - and let me snooze in peace.

That said, nobody ever relaxed a stretch-goal, never mind a deadline, or
picked up any of my responsibilities. That mid-day nap invariably cost me two
or three times the on-line time from home to keep things moving apace.
Management has little sympathy for the plight of the worker-bees, after all -
their bonus plans ultimately trump employee health, regardless.

On a more positive note, family and friends didn't have dollar signs ruling
their behavior. Thank goodness. They were much more sensitive to the changes
they were witnessing as time passed, and far more willing to extend themselves
to help me along the way. Without them, I suspect the sheer weight of
treatment would have dragged me much further down then it did.

So...basically, for some folks, treatment just beats the snot out of you, and
you just have to keep on keeping on, regardless, and take what solace you can
gain from those few who have a clue, and don't waste energy holding a grudge
against those who don't.

Hang in there, kiddo...

/greyhackles
From: TX-012 on 27 Jun 2008 21:36
On Jun 27, 5:41�pm, greyhackles <greyhack...(a)REMOVEyahoo.com> wrote:
> On Fri, 27 Jun 2008 17:12:24 -0700 (PDT), TX-012 <withba...(a)aol.com> wrote:
> >Just a question for those on treatment, or for those of you who have
> >gone through the process--how well did those close to you, in your
> >estimation, comprehend and appreciate exactly what you were enduring
> >while on tx?
>
> >In my case, while I have a few very supportive individuals helping me
> >out, I feel...much, if not most of this experience remains...very
> >difficult to adequately communicate...or be understood, by those who
> >have not actually...walked the walk...
>
> Before beginning treatment, the carpet to my office was worn out by peeps
> lining up for help and guidance - being the senior engineer in a company of
> roughly a thousand technoid dweebs it was my lot to provide counsel to pretty
> much everyone, from techs through code monkeys through marketing veeps. The
> flood didn't let up a bit until I got worn down to the point that I was taking
> naps during lunch time instead of padding down to the cafeteria to join them
> at the communal tables.
>
> I'm not sure anyone can truly comprehend what battling dragons entails. And
> I'd have to say, that until I had lost 40 pounds, was just able to put one
> foot in front of the other, and looked like death-warmed-over, coworkers
> didn't really understand that I was in the depths of treatment. Once I got to
> that inescapably obvious point, however, folks generally got the clue that
> this was a battle royale I was going through, and began to cut me just a
> little slack - and let me snooze in peace.
>
> That said, nobody ever relaxed a stretch-goal, never mind a deadline, or
> picked up any of my responsibilities. That mid-day nap invariably cost me two
> or three times the on-line time from home to keep things moving apace.
> Management has little sympathy for the plight of the worker-bees, after all -
> their bonus plans ultimately trump employee health, regardless.
>
> On a more positive note, family and friends didn't have dollar signs ruling
> their behavior. Thank goodness. They were much more sensitive to the changes
> they were witnessing as time passed, and far more willing to extend themselves
> to help me along the way. Without them, I suspect the sheer weight of
> treatment would have dragged me much further down then it did.
>
> So...basically, for some folks, treatment just beats the snot out of you, and
> you just have to keep on keeping on, regardless, and take what solace you can
> gain from those few who have a clue, and don't waste energy holding a grudge
> against those who don't.
>
> Hang in there, kiddo...
>
> /greyhackles

Thank Ewe;)
From: Waterspider on 27 Jun 2008 23:40

"TX-012" <withbacon(a)aol.com> wrote in message
news:2123b8fd-54d6-4119-a3eb-39033c4f78fe(a)j1g2000prb.googlegroups.com...
> Just a question for those on treatment, or for those of you who have
> gone through the process--how well did those close to you, in your
> estimation, comprehend and appreciate exactly what you were enduring
> while on tx?
>
> In my case, while I have a few very supportive individuals helping me
> out, I feel...much, if not most of this experience remains...very
> difficult to adequately communicate...or be understood, by those who
> have not actually...walked the walk...

Impossible to communicate, impossible for anyone to understand unless they
have been there... but you could say the same thing about smashing your
thumb with a hammer :-)

My boyfriend was a rock. Although only here on weekends, he cooked and
cleaned, ignored my craziness and hid my guns. He came as close to
understanding as anyone who hasn't been there, and I think the reason for
that was I shared many of the posts on this board with him, back in the old
days of Elmo, Lady Marmalade, Geb Bixer, Shawn, Dez, etc. (Russ, you were
around then too, weren't you?) in the Friday Night Shooters Club. Certainly
the pamphlet on Pegetron didn't provide any clue to the degree of physical
and mental side effects. Most of my "friends" stayed right the hell away
from me and I can't blame them because I did NOT want company and made it
clear.

You might find it helpful to google some of the old discussions on this
group. They were not nearly so kind, gentle and restrained, but certainly
you will be able to identify with much of the conversation. I guarantee
you'll get some good laughs out of it too. Hang in, hang on, your trip to
the dark side of the moon is a solo flight. But, you'll be back soon enough
and the light at the end of the tunnel isn't an oncoming train. I promise.


From: Woofmix on 28 Jun 2008 17:47
All I can say is what everyone else has said.
I can't remember how many times I tell people I'm on the treatment
for 48 weeks and I'm X weeks into it and when you see them a week or 2
later they say "oh you must be finished treatment now", and I explain
it to them yet again only to receive the same comments next I see
them.

I work in Satellite Ccommunications and we have an equipment room with
high power amplifiers that have have noisy cooling fans that pump out
hot air, I was caught standing in front of them warming up a few times
as I sometimes feel cold due to Tx and that gave my workmates a laugh
although thay never seemed to grasp why I felt so cold.

Unfortunately my dogs have no concept of my plight and when I settle
into my comfy chair with a blanket on my knees and the TV on feeling
knackered and happy to just be doing nothing they decide it's time for
walkies and harrass me as only dogs wanting walkies can do, I once
told them "walkies later" but all they heard was "WALKIES" and were
even more insistent :-) still I can't blame them and they give me a
good laugh most of the time.

Paul

TX-012 wrote:

> Just a question for those on treatment, or for those of you who have
> gone through the process--how well did those close to you, in your
> estimation, comprehend and appreciate exactly what you were enduring
> while on tx?
>
> In my case, while I have a few very supportive individuals helping me
> out, I feel...much, if not most of this experience remains...very
> difficult to adequately communicate...or be understood, by those who
> have not actually...walked the walk...
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