From: louise on
I have a strange "symptom" - one which has not been resolved
by an ENT, dentist or oral surgeon. My tongue burns quite
badly and the sensation is literally painful - sometimes I
don't want to eat or talk.

Since FM carries with it many strange and apparently
unrelated symptoms, I thought I'd ask if anyone knows
anything about a burning sensation on the tongue and in the
mouth.

TIA

Louise
From: FibroGuy on
Ask your doctor about Sjörgren's Syndrome...

("sure gruns", I think is how it's pronounced)

I know other fibromites with it, and the symptoms sound similar to
yours. Apparently, it's *no* fun, even compared to FMS.

From: Sampatron on

louise wrote:
> I have a strange "symptom" - one which has not been resolved
> by an ENT, dentist or oral surgeon. My tongue burns quite
> badly and the sensation is literally painful - sometimes I
> don't want to eat or talk.
>

The first thing that comes to mind is a vitamin B12 deficiency. Even
if your blood tests might show that your levels are normal, you could
try taking sublingual (under the tongue) B12 for a while and see if it
helps. Or you could just try a potent B vitamin combination but I
think the B12 would be the place to start.

Sam

From: Vashti on
It wasn't a dark and stormy night when Sampatron(a)aol.com wrote:

> louise wrote:
> > I have a strange "symptom" - one which has not been resolved
> > by an ENT, dentist or oral surgeon. My tongue burns quite
> > badly and the sensation is literally painful - sometimes I
> > don't want to eat or talk.
> >
>
> The first thing that comes to mind is a vitamin B12 deficiency. Even
> if your blood tests might show that your levels are normal, you could
> try taking sublingual (under the tongue) B12 for a while and see if it
> helps. Or you could just try a potent B vitamin combination but I
> think the B12 would be the place to start.

That's one thing I thought of too but if there *is* a B12 deficiency
using sublingual B12 might mask it so a doc wouldn't be able to
pin-point the cause. Does folic acid deficiency also have tongue
symptoms? I know some B12 and folic acid defiency symptoms seem to
overlap... it's always worthwile testing both(or all B's) at the same
time IMO.

I think it's the MMA(methylmalonic acid) measurement which can show a
deficiency at a functional level.


Vashti
From: Sampatron on
> if there *is* a B12 deficiency
>using sublingual B12 might mask it so a doc wouldn't be able to
>pin-point the cause. Does folic acid deficiency also have tongue
>symptoms?

I don't think taking B12 would mask the deficiency, it should correct
it, at least if taken in sufficient quantities and for a long enough
time. Taking folic acid, OTOH, can mask a B12 deficiency and that's
the usual caveat about these two vitamins.

>I think it's the MMA(methylmalonic acid) measurement which can show a
>deficiency at a functional level.

That's my understanding, too.

Sam