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From: Quentin Grady on 29 Oct 2008 18:11 On 28 Oct 2008 14:57:30 GMT, Chris Malcolm <cam(a)holyrood.ed.ac.uk> wrote: >Quentin Grady <quentin(a)paradise.net.nz> wrote: >> On 27 Oct 2008 15:03:28 GMT, Chris Malcolm <cam(a)holyrood.ed.ac.uk> >> wrote: > >>>Quentin Grady <quentin(a)paradise.net.nz> wrote: >>> >>>> Once I've had the chemo in four more days time I >>>> should begin to get rid of the lymphoma related problems like the >>>> swollen feet and then I can look forward to getting strong enough to >>>> walk the dogs and do ordinary things like that. All good things to >>>> looks forward to. Who cares about hair falling out and stuff like >>>> that. > >>>If you do you might like to look into the hair preserving scalp >>>cooling chemo protocols that are being developed, such as wrapping the >>>scap in a cold wet towel during and for a while after the chemo >>>infusion. > >> G'day G'day Chris, > >> At first I thought you were trying to cheer me up with some made up >> baloney. It seems so far fetched. > >> Now I'm not so sure. > >> Maybe I have to do a search in scholar google. > >> http://scholar.google.co.nz/ > >> for me here. > >> Best wishes to you, Chris. > >> If you have an URL in mind that you think is worth looking at please >> let me know. > >Although a number of NHS cancer clinics now routinely offer scome kind >of scalp cooling which they claim reduces hair loss, it's surprisingly >hard to find good research justification. Suggest googling on "chemo >hair loss scalp cooling", and also the words "Paxman" and "Penguin" >which are the names of two makers of scalp cooling devices. The >results seem to vary a lot depending on the chemo drugs used. > >Try > >http://annonc.oxfordjournals.org/cgi/content/full/16/3/352 > >which does complain about the poor research in the area > >and > >http://www.cancerbackup.org.uk/Resourcessupport/Symptomssideeffects/Hairloss/Scalpcooling > >which is from a very well respected professional UK nursing >organisation. Thanks Chris, This time I am to have CEOP not CHOP that I had last time. Does that make a difference? As it happens I'm not worried about the hair loss. It came back curly last time. I've always had dead straight hair. And it was stronger and better than before. Hopefully I'll get through all the cycles this time and I won't have it coming back again. Best wishes, -- Quentin Grady ^ ^ / New Zealand, >#,#< [ / \ /\ "... and the blind dog was leading." http://homepages.paradise.net.nz/quentin
From: Quentin Grady on 29 Oct 2008 18:17 On Tue, 28 Oct 2008 17:48:07 -0400, sassybklynlady(a)webtv.net (Loretta Eisenberg) wrote: >Quentin, I just found out that you were going for chemo on Friday. I >hope they have given you some tyoe of emetic to lower the side effects. >Fifteen years ago, they gave out zofran. I am sure there are better >drugs on the market today. > >Good luck > >Loretta Hi Loretta, They are pretty good with the anti nausea medications. I get three tablets of ondansetron for each cycle. It doesn't seem like much but it lasts a day and half and works very well for me. In that respect I'm the lucky one. I also already have domperidone taken half an hour before meals. It was something the nurses would often be slack about in hospital giving them AT meal times. By that time regurgitation had occurred and I had to take gavascon. Timing made all the difference. At home I have only myself to blame. Thank you for thinking of me, -- Quentin Grady ^ ^ / New Zealand, >#,#< [ / \ /\ "... and the blind dog was leading." http://homepages.paradise.net.nz/quentin
From: Wes Groleau on 29 Oct 2008 23:40 Quentin Grady wrote: > Does that make a difference? As it happens I'm not worried about the > hair loss. It came back curly last time. I've always had dead > straight hair. And it was stronger and better than before. My wife's hair was also quite different when it came back. I hear that's very common. -- Wes Groleau Why Study German instead of French? http://Ideas.Lang-Learn.us/russell?itemid=577
From: bgl on 29 Oct 2008 23:52 "Wes Groleau" <Groleau+news(a)FreeShell.org> wrote in message news:gebab7$p7l$1(a)aioe.org... > Quentin Grady wrote: >> Does that make a difference? As it happens I'm not worried about >> the >> hair loss. It came back curly last time. I've always had dead >> straight hair. And it was stronger and better than before. > > My wife's hair was also quite different when it came back. > I hear that's very common. > Now all they have to do is figure out just exactly what it is in the chemo that makes the hair come back better, so they can bottle it & make Big Bucks. bj
From: Quentin Grady on 7 Nov 2008 23:28
On Fri, 7 Nov 2008 11:31:20 -0600, "Robert Miles" <robertmiles(a)bellsouthNOSPAM.net> wrote: >Quentin, I'm not sure if this should be of interest to you: > >http://www.sciencedaily.com/releases/2004/12/041206205351.htm G'day G'day Robert, There is a problem with vaccine approaches for me. They tend to be very specific. What I recall when the matter was discussed when it came up before the first chemo was "Tough luck, the strain you have is uncommon so a suitable vaccine isn't going to be a high priority." With the multiple myeloma the bone marrow makes immunoglobulin G not one of the more common letters. Same with the lymphoma. Best wishes, -- Quentin Grady ^ ^ / New Zealand, >#,#< [ / \ /\ "... and the blind dog was leading." http://homepages.paradise.net.nz/quentin |