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From: Thomas on 23 Jan 2006 14:11 I guess Since I am feeling guilty for starting all of this, I will try to get back on topic. I first noticed "symptoms" around early 1996 or so. At this point, I was sought after and considered an authority in my field. What I didn't realize was that whatever was bothering me was effecting my mind as well as my body. So here I was, speaking at conferences and making some bucks just for talking to people. I was very good at this and made a name for myself. But then things started to go awry. Only I didn't realize it until it was too late. :( What was once good had turned bad. I was saying and doing things that were setting the cause back. The same cause I had wanted to move forward. :( Then in July of 1996, I was invited to keynote the national Autism Society of America conference, held in Milwaukee. I was so excited because there were thousands there and I wanted to do well. It was one of the worst talks I ever did. That was the beginning of the end for me. Then I started really feeling the effects. I couldn't think because my head was foggy, my arms and legs felt like lead on me, I was in constant pain and it hurt even to P. :( Sometimes I would lose my muscle tone and just FALL and not be able to get up. Like that lady in that commercial. :) I went ot the doctor and received the diagnosis of FMS, like all of yew did. I tried to keep doing my work, but soon it got to the point where I just wasn't able to anymore. Every now and again, I do try to go back to work, but always I get the flares and have to stop. According to all the doctors, I should be institutionalized in some autistic home somewhere, rocking in the corner. I should also be in a wheelchair by now. I have managed to avoid both of these, The chair I have avoided by swimming. A *lot* of swimming, over at the Y. I also take Melaleuca REPLENEX (the one suppliment that Melaleuca got right) and that has helped me immensely, too. Most of my problems now come under rain or cold weather or stress. Okay I am done rambling, I guess. Just wanted to ramble on topic for a change. Thomas <>< www.thomasamckean.com thomas(a)thomasamckean.com Colonel, HOKC Author, Soon Will Come The Light: A View From Inside The Autism Puzzle Author, Light On The Horizon: A Deeper View From Inside The Autism Puzzle
From: MikesBrain on 23 Jan 2006 17:16 2006-01-23, Responding to Thomas... [...] > According to all the doctors, I should be institutionalized in some > autistic home somewhere, rocking in the corner. I should also be in a > wheelchair by now. I have managed to avoid both of these, The chair I > have avoided by swimming. Just a comment on the side here... Wheelchairs are useful tools many people associate, wrongly, with "giving in", when in fact *appropriate* use of a suitable wheelchair can extend health significantly. www.ju90.co.uk ....may be of interest here? Mike(a)N.UK -- ---- * MikesBrain+WebStuff @ http://tinyurl.com/5ayqt - Schauen Sie immer auf der hellen Seite des Lebens! :)
From: Thomas on 23 Jan 2006 17:27 MikesBrain wrote: > Just a comment on the side here... > Wheelchairs are useful tools many people associate, wrongly, > with "giving in", when in fact *appropriate* use of a > suitable wheelchair can extend health significantly. So far I have done okay without one. Though there have been times I have hopped in the carts at the grocery store... :) Thomas
From: MikesBrain on 23 Jan 2006 19:50 2006-01-23, Responding to Thomas... > > MikesBrain wrote: > >> Just a comment on the side here... > >> Wheelchairs are useful tools many people associate, wrongly, >> with "giving in", when in fact *appropriate* use of a >> suitable wheelchair can extend health significantly. > > So far I have done okay without one. Though there have been times I > have hopped in the carts at the grocery store... :) > http://grampahugs.ath.cx/UK_Mike/articles_mdayout2.html Wheelchairs are (a strange kinda) FUN! :) Mike(a)N.UK -- ---- * MikesBrain+WebStuff @ http://tinyurl.com/5ayqt - Schauen Sie immer auf der hellen Seite des Lebens! :)
From: Carol J on 23 Jan 2006 20:40 That's a tough way to have to learn you're no longer able to do things you once did, I know:-( Honestly, I threw an absolute fit over being removed as Assistant Director of Nursing almost a year ago. I was not ready to stop being a nurse yet. They didn't really remove me, although that's how I felt at the time, they were in sore need of a qualified person to manage the medical records department. Someone who could review the charts and get things completed before being put away. The time you find out something's not right in a medical chart these days should NOT be when a law firm is asking for the record. I'm thankful they did it now but I sure wasn't last April. And even though no one ever said anything, I knew I was slipping, brain wise. I tried to leave the position twice but my boss would call me back to work telling me that there was no one better than me to do that job and Lord knows I appreciated her for making me feel like I was still capable of contributing to our fine facility. But my boss (the whole upper management team really) left our facility and the owners nephew got put in charge and he wanted me in medical records, they'd already been thru 3 directors. Now I like what I'm doing, physically most days I can handle it. I'm still hoping to get back to nursing one of these days though, you never know. Don't feel guilty for being off topic, we're all off topic on ocassion:-) Carol J Thomas wrote: > I guess > > Since I am feeling guilty for starting all of this, I will try to get > back on topic. > > I first noticed "symptoms" around early 1996 or so. At this point, I > was sought after and considered an authority in my field. What I > didn't realize was that whatever was bothering me was effecting my > mind as well as my body. > > So here I was, speaking at conferences and making some bucks just for > talking to people. I was very good at this and made a name for > myself. But then things started to go awry. Only I didn't realize > it until it was too late. :( > > What was once good had turned bad. I was saying and doing things that > were setting the cause back. The same cause I had wanted to move > forward. :( > > Then in July of 1996, I was invited to keynote the national Autism > Society of America conference, held in Milwaukee. I was so excited > because there were thousands there and I wanted to do well. > > It was one of the worst talks I ever did. > > That was the beginning of the end for me. > > Then I started really feeling the effects. I couldn't think because > my head was foggy, my arms and legs felt like lead on me, I was in > constant pain and it hurt even to P. :( > > Sometimes I would lose my muscle tone and just FALL and not be able to > get up. Like that lady in that commercial. :) I went ot the doctor > and received the diagnosis of FMS, like all of yew did. > > I tried to keep doing my work, but soon it got to the point where I > just wasn't able to anymore. Every now and again, I do try to go back > to work, but always I get the flares and have to stop. > > According to all the doctors, I should be institutionalized in some > autistic home somewhere, rocking in the corner. I should also be in a > wheelchair by now. I have managed to avoid both of these, The chair > I have avoided by swimming. A *lot* of swimming, over at the Y. I > also take Melaleuca REPLENEX (the one suppliment that Melaleuca got > right) and that has helped me immensely, too. > > Most of my problems now come under rain or cold weather or stress. > > Okay I am done rambling, I guess. Just wanted to ramble on topic for > a change. > > Thomas <>< > www.thomasamckean.com > thomas(a)thomasamckean.com > Colonel, HOKC > Author, Soon Will Come The Light: A View From Inside The Autism Puzzle > Author, Light On The Horizon: A Deeper View From Inside The Autism > Puzzle
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