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From: Amie on 10 Dec 2006 15:30
(this was posted anonymously on my Yahoo Group - funny!)

20) It's easy to point around corners.
19) If there's a contest to see who can hang from a horizontal bar
the longest, you would win.
18) Free face lift.
17) Nice tan.
16) You don't have to hire a lawyer to get approved for disability
coverage.
15) You meet your yearly medical deductible by January 15th.
14) You and the Pharmacist are on a first name basis.
13) You always get to ride in the front seat.
12) You don't feel guilty using the handicapped stall.
11) You have an excuse for typing badly.
10) If all your friends are doing 'it', you have a reason not to.
9) No one will pick a fight with you.
8) Your mother stops asking you to do chores at her house.
7) You can chill a soda with your bare hands.
6) Your doctor offers you pain pills instead of you having to ask.
5) You have a legitimate reason for "no sex tonight".
4) If medical marijuana is passed in your state, you'll qualify.
3) If you forget or do something bad, remember that dementia is a
symptom also.
2) You'll never be accused of having loose lips.

And the number one reason it's good to have Scleroderma:

1) Handicapped Parking !

From: Robert DeSavage on 10 Dec 2006 16:23
On 10 Dec 2006 12:30:09 -0800, "Amie" <amiey(a)blackmule.com> wrote:

>(this was posted anonymously on my Yahoo Group - funny!)
>

>16) You don't have to hire a lawyer to get approved for disability
>coverage.

BINGO! Went to the S.S. site today and there's some interesting info
about SD. As sad as it is to say, because I lost part of my right
index finger and nearly total use of the remaining finger, I can truly
fall into the category of being disabled due to SD. I needed surgery
to remove the fingertip as a worse case scenario of Raynaud's (which
is also listed), including gangrene at the affected area. According to
my rheumy, because my overall condition is classified as CREST, the
degree of Raynaud's is at the most severe. There are few 'finger
related' and 'temperature restrictions' jobs that I can do. This in
the past was delivering mail, which as a result had to retire at the
minimum age and service; servicing computers in a post retirement job,
which I was unable to do properly; and finally a retirement job
working for a floral shop where I often worked in cold temps, both in
the store and on the road as a delivery driver. We all know how
Raynaud's goes into play there. Based on the above 'quoted', this
gives me food for thought. Being one that is a walking file cabinet, I
have all kinds of documentation from Jump Street. What I need to do is
sort thru it all and then make an appointment with S.S. and lay it all
down on the table. I wish I knew or thought of this sooner when I
applied for regular S.S. benefits this past summer. It could have
gotten the ball rolling a lot sooner. I'll keep you all posted as to
what's going on. Since we're basically all on the same boat, we should
get any and all benefits that we're rightfully entitled. We worked
hard all our lives and paid into the system. S.S. is NOT charity or
welfare - it's clearly what it 'proclaims' to be - INSURANCE.
From: Robert DeSavage on 10 Dec 2006 16:50
On 10 Dec 2006 12:30:09 -0800, "Amie" <amiey(a)blackmule.com> wrote:

>(this was posted anonymously on my Yahoo Group - funny!)
>
>20) It's easy to point around corners.
>19) If there's a contest to see who can hang from a horizontal bar
>the longest, you would win.
>18) Free face lift.
>17) Nice tan.
>16) You don't have to hire a lawyer to get approved for disability
>coverage.
>15) You meet your yearly medical deductible by January 15th.
>14) You and the Pharmacist are on a first name basis.
>13) You always get to ride in the front seat.
>12) You don't feel guilty using the handicapped stall.
>11) You have an excuse for typing badly.
>10) If all your friends are doing 'it', you have a reason not to.
>9) No one will pick a fight with you.
>8) Your mother stops asking you to do chores at her house.
>7) You can chill a soda with your bare hands.
>6) Your doctor offers you pain pills instead of you having to ask.
>5) You have a legitimate reason for "no sex tonight".
>4) If medical marijuana is passed in your state, you'll qualify.
>3) If you forget or do something bad, remember that dementia is a
>symptom also.
>2) You'll never be accused of having loose lips.
>
>And the number one reason it's good to have Scleroderma:
>
>1) Handicapped Parking !
I love every issue on the list. As far as reason #1, be especially
careful in Mass. where if you don't have a card or HP plates and park
in a handicapped parking spot, you're sure to be ticketed by any
passing cop. It doesn't matter if you were on a stretcher or in a
wheelchair at the time, what matters to the law is the tags.

As to #4 - It's about time if and when there's a law that sanctions
it's use. I just hope that what the Commonwealth of Massachusetts
consider to be of acceptable standards of quality, that it's equal or
if not better than what's available on the 'street' or thru 'friends
only co-ops'. Just my 2 cents plain on that, being that some agree or
disagree with my attitude. We're all different in terms of 'standards'
of attitude and conduct.
From: Robert DeSavage on 10 Dec 2006 22:36
On 10 Dec 2006 12:30:09 -0800, "Amie" <amiey(a)blackmule.com> wrote:

>(this was posted anonymously on my Yahoo Group - funny!)
>
>16) You don't have to hire a lawyer to get approved for disability
>coverage.

I did a Google and came up with quite a few sites for information
regarding disabilities. Below is the link to the index.

http://images.google.com/search?hl=en&sa=X&oi=spell&resnum=0&ct=result&cd=1&q=disability+for+scleroderma&spell=1
From: Amie on 12 Dec 2006 13:59
Vance wrote:
> Does anyone have GI problems? My gut has come almost to a complete stop. I
> have to take so many GI meds per day. I can't eat this, I can't eat that,
> no fiber, no fresh fruit, no fresh veggies, no salad.......... all the stuff
> I love.
>
> Vance

Sorry to hear this, Vance, especially during the eating holidays we're
presently enjoying. The Scleroderma Foundation has great medical
articles on GI involvement at
http://www.scleroderma.org/medical/gastro.shtm

Are you supplementing with Ensure or some other yummy (!) liquid like
that to keep your calorie intake up? My father-in-law drank shakes
made with Ensure and said they were much more palatable.

Scary as it sounds, I have heard of SSc patients going on total
parenteral feeding for a period of time to give the GI tract some "time
off" and allow it to kick back in on its own. Hopefully, your gut will
get more normal before that.

Amie

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